-Grace's cardiologist in Boston commented today on how great Grace looks and is breathing! He was also very impressed at how much she was eating... that's my girl!
- NG tube (feeding tube) is officially and intentionally out!
-David was able to send me a couple pictures and videos of Grace smiling!
-Grace is cutting her first tooth and NOT happy about it (perfect timing, right?)! To make matters worse, her night nurse didn't give her Tylenol as scheduled, so Grace was very unhappy in the middle of the night (and Daddy too :-). This evening a different nurse was an hour late giving her Tylenol, so needless to say... Grace has had some serious fuss bombs today!
-We are praying that Grace gets the green light on discharge tomorrow. Please pray that she is ready to go home (we want to make sure we are bringing a healthy baby home) and that it is a seamless process (getting a hotel, plane flight home when it's time, etc)
-We have prayed a lot about what to do regarding Grace's cardiologist in Texas. Do we switch? If we switch, who do we switch to, etc? We think that we have found a new cardiologist in Texas that would be a great fit for us because she trained in Boston (she did her internship, residency, and part of her fellowship there- that's a lot of time spent at Boston's Children's Hosptial :-), so she knows their philosophy and will likely be able to collaborate well with Grace's team in Boston. Please pray that if she is supposed to be our new cardiologist that the switch will go smoothly and for us to be able to get in to see her when Grace gets home, etc.
-Please pray for all of the other families with "heart babies" in the hospital at Boston Children's (and everywhere really...). It is truly a community of people that are all on this roller coaster together, so when you hear that another "heart baby" has hit a bump in the road it impacts us all. Please pray that they/we would all find our hope, peace, and strength in the great Physician, Jesus Christ!
THANK YOU!!! (((BIG HUGS))) to each of you!