Saturday, March 9, 2013

Day 3 post surgery...

Today was a LONG, but good day! I had to leave Grace's hospital room at 9:10 am (at the latest) in order to get to the airport in time, and thankfully, Grace's team finished rounding on her at exactly 9:10 am.

They were very pleased with how Grace was progressing and planned to remove one of her chest tubes and catheter, while trying to wean her off of morphine, in order to begin weaning her off the ventilator, in preparation for extubation. When they began weaning her morphine, she got very agitated/restless and moved around more than they were comfortable with because her body was quickly eating through the sedatives that they were giving her (which is common in children with Up's). So, it's a fine balance of tryng to allow her to wake up enough so she will breath on her own, but not so awake that she gets agitated and puts herself at risk of pulling out tubes by accident, etc. Since her episode of getting agitated, the pressure of her Left Atrium has been on the high side. Will you please pray that her numbers get back into a normal range sooner than later and stay there? THANK YOU!!!
I spent most of the day traveling home (which was pure torture not being with David and Grace OR Abigail and Andrew for most of the day) and was beyond blessed to turn the corner on the way to baggage claim to see Abigail and Andrew running toward me screaming "Mommy!!!!" each with a boquet of flowers flopping around in their hands! All that they wanted to do when we got home was snuggle, which was fine by me! I LOVE SNUGGLES!!!


Julie Wigle said...

Glad you made it home safe and sound, and the kids are happy to see their mommy! Will pray for Grace's number as she begins to wake up and decrease those meds. Love to you all in Texas and Boston!

Elise said...

What a bittersweet homecoming! We are glad you are back and counting down the days until David and Gracie return home!!