Wednesday, February 22, 2017

Broken, but hopeful

All is still well with my soul, I'm just suffering from a broken heart at the moment.  God answered our prayers for wisdom for Andrew's doctors, in fact the pathologist that has been mulling over Andrew's liver biopsy slides, remained dissatisfied with the information she had.  She would lay awake at night trying to think of what else she could test for to get to the bottom of her nagging suspicion that something was there.  She consulted with pathologists at Methodist Hospital and MD Anderson and that's when she found the source of Andrew's illness.  A Neuroendocrine Tumor = cancer!  It is an extremely rare cancer in adults and even more rare in children (there is only a hand full of kids nationwide that have it).  It is a grade 2 (which is a blessing because it is a slow growing cancer) and stage 4 (meaning it's spread to other tissue/organs, etc).  We know that his liver contains too many lesions/tumors to be able to resect (meaning to remove those areas), so the best hope is treatment to shrink or prevent the cancer from spreading.  In the mean time, we need to identify the primary source of the cancer, which they are presuming is in his pancreas.  The good news is that the primary source didn't show up on the initial CT scan or MRI, so we are praying that means the tumor on his pancreas is small and that it hasn't spread anywhere else.  We are praying they are able to resect the tumor on his pancreas (assuming that's where it is, of course) and again that cancer isn't found anywhere else in his body.  At that point, we can focus on his liver (continue on treatment to hopefully shrink the tumors or possibly a liver transplant).  The hard part is that any of the available data on this type of cancer is in adults, so Andrew is literally writing the text book.  While we were taken out at the knees by this information today, we know God is not surprised and He has a plan.  At this point Andrew has another CT scan tomorrow (a more sophisticated version than the last) and then another scan next week.  We will meet with his oncologist on Wednesday of next week to come up with the treatment plan.

Will you please join us in storming the gates of heaven, praying for healing for our boy?  Will you please pray that the additional scans would show best case scenario and the treatment plan would be clear and effective?  Will you please pray for Abby too?  As you can imagine she's hurting in a big way as she is worried about Andrew.

While our hearts are broken our hope is strong!  This song is the song of my heart right now, will you please listen to it?  https://www.youtube.com/watch?v=qyUPz6_TciY

Thank you for rolling up your sleeves and getting in the trenches with us.  

11 comments:

The CEO said...

Your post brought me to tears. I was praying last night for a diagnosis for Andrew and for his team of doctors but also for your family to have the strength to face whatever it might be. I found your blog randomly and started reading around the time when y'all were up in Boston for Grace. I was struck then by how steadfast your faith in the Lord was. You and your family continue to be an inspiration to me. I pray that Andrew's doctors will have the wisdom and knowledge that they need to heal Andrew. All of you will be in my prayers as you battle this.

Adriana said...

Coming out of the bloggy woodwork to send prayers to your entire family. I've followed y'all for a while but tonight I wanted to say that your family is amazing, resilient and faithful. Through difficult moments, you've all stuck together in the most beautiful way. Through your posts, I've seen what a truly special child Andrew is, and tonight, I pray for the wonderful, sweet and loving child that he is. Please continue to post updates, there are so many people who care deeply for your family from afar.

Elise said...

KRISTI we are praying for all of you. Words cannot describe enough right now. Thankfully we serve a good God. He loves us He is sovereign. We can cling to His promise to never leave us or forsake us. He along with our family will be there for y'all every step of the way.

Kathy A. said...

Rosses,
You know that the Lord binds up the broken-hearted, and He will do that for you, and give you the strength you need. We never want to hear cancer, especially in a child. But the Holy Spirit has given Andrew a special relationship with the Lord, and you, as his loving parents, can be a strong tower for him, even when its hard. Because you have the Creator of the Universe, a sovereign God, to trust in.

And you have great medical facilities to walk you through this. And a loving and encouraging family, and great friends. God has put them in place for a reason.

"You will keep in perfect peace him whose mind is steadfast, because he trusts in you. Trust in the Lord forever, for the Lord, the Lord, is the Rock eternal" Isaiah 27:4

Love and prayers to you,
Aunt Kathy

Kari said...

There are so many of us praying for you and for His perfect healing!!! Climb into the Potter's Hands and let Him hold you. ❤����

Keith Askin said...

Papa is praying praying praying all day while I was pressure-washing the driveway, rocks, sidewalks, front porch .... I realized it felt good watching the dirt being washed away as I directed the spray and the clean surface left behind. I was noticing how this is such a rare diagnosis, and even more rare in children. Even more rare, Andrew's Mommy has a special relationship with our loving God and MD Anderson,one of the leading research and treatment facilities. Yes, I'm brokenhearted too. God must have a huge plan for his glory using Andrew and his amazing family. Papa loves you all and is praying for peace as the next chapters unfold.

Allie said...

We haven't officially met, but I am friends with Bonnie M and just heard about your sweet family. She is heartbroken for you and reached out to her friends for prayer. I am praying with her/ you for your son. May God grant you strength and peace as you maneuver through this journey with him. God is WITH YOU always.

-Allison LeGrand

Katie said...

I'm a friend of Julie's and have been following your blog for a while now. I will be praying for sweet Andrew and your family as God guides you and holds you. Your blog is a blessing to me and I am constantly in awe of your faith in our Lord Jesus Christ, trusting in His plan and walking in His light and truth. In prayer, Katie

Candace Bruce said...

Our family will be praying for Andrew and your family faithfully. May God comfort you during this difficult journey and heal Andrew completely.

-Candace Bruce (Bennett and Andrew's mom)

Danaly said...

Our family is praying for yours daily. - Danaly Payne (Rachel's Friend)

Constance said...

We will also join you in lifting Andrew up in prayer as well as your entire family. That song is a wonderful reminder to praise the Lord through it all, your faith and trust in Him is a beautiful example for all of us. Constance and Bobby