Down, but not out!

We had our appointment with Dr. Huh at MD Anderson today and I walked out of the appointment feeling sucker punched all over again because he initially said the tumor on Andrew's pancreas is not resectable (cue the tears); when I asked if a surgeon had made that call already, he said "no, that was his interpretation based on the images."  Then, he talked about about how, based on the available studies in adults (because there isn't any published data in kids and he has never had a patient with Andrew's diagnosis), treatment would be like kicking a can down the road (delaying the inevitable).  However, the more I questioned him and tried to put the pieces together, it was interesting that his demeanor changed some and he spoke in a little bit more of a hopeful manner.  I reminded him that we serve a big God and that we are prepared to fight.  He advised us to move forward with the scan that we already have scheduled at TCH on Wednesday, as that will give us more confirmatory information.  Then, he will have them discuss Andrew's case at a weekly meeting they have regarding tricky cases and we will see him again next Monday or Wednesday and hopefully have a plan for treatment outlined by them.  We plan to keep our appointment with our oncologist on Wednesday at TCH (after the scan) in order to get the results of the scan and see what his thoughts are in terms of treatment, trusting that by then the Lord will make it clear where we should receive treatment.

Perspective for today:
-While this cancer is rare and we haven't found anyone that has had a patient like Andrew, it is just a reminder that God gets to write Andrew's story, not the medical community.  After all, God knows every cell in Andrew's body, so we will cling to our Jehovah Rapha for answers and healing for our (His) boy!  He is able!

-I know that Andrew's Army has been in fervent prayer for us because I felt it and even got to see a picture of an amazing group of women who gathered together this morning to pray for Andrew and our family.  Please, please, please don't stop praying because I know God hears our prayers and He is using your prayers to fuel our efforts to put one foot in front of the other on this journey.

Prayer requests:
-Please pray the scan on Wednesday would reveal that the cancer has not spread to anywhere outside of the lymph nodes, pancreas, and liver.  Please pray, in the mighty name of Jesus, that the scan would reveal the cancer is not nearly as bad as they had originally thought and that God would get all the glory.

-Please pray for clear guidance for the Dr's as they come up with a treatment plan and peace for us as we wait for that plan to be revealed.

-Please pray that the surgeons will have confidence in removing the tumor on his pancreas (it's on the head of the pancreas, which is not ideal and can be tricky/complicated) and lymph nodes, despite what our Dr said today.

THANK YOU!!! WE LOVE AND APPRECIATE YOU MORE THAN YOU KNOW!!!