Since this isn't our first rodeo (hence our journey with Grace), we have been praying the Lord would lead us where He wants us to go for treatment/second, third, fourth opinions, etc and it seems as though He may be leading us to Iowa for a third opinion. University of Iowa is the only center that has been awarded the title "center of excellence" for the treatment of NET's (neuroendocrine tumors). There is a husband and wife team there that run their program. The husband is over the adult side and the wife over the pediatric. The wife's name is Dr. Sue O'Dorisio and she has been absolutely amazing in her willingness to communicate with us via phone and e-mail, sharing her opinion and inviting us to Iowa if we would like their assistance. Prior to getting the results (or lack there of) of this weeks scan, our plan was to head to Iowa after Andrew completes 2-3 months of chemo to do a Gallium PET scan (which is a scan performed there, and is not available at our local hospitals, and is more sensitive than the other tests available) and discuss the next best steps, but we are now wondering if we need to head to Iowa sooner than the original plan. Will you please join us in praying that God would lead us exactly where and when He wants us to go and that we would have the courage to say "yes, Lord" to whatever He calls us to? Will you also please just pray for Andrew like he is your own son?
Last night was a very rough night, as Andrew suffered for hours from excruciating pain to the point we contemplated many times in the middle of the night if we needed to take him to the ER for morphine. In addition to the tummy pain, he vomited as a side effect from chemotherapy. All that to say, will you please pray for pain relief and rest for our whole family? Thank you!!!!!!!!
After Andrew got a blood draw and the dye for the scan injected on Monday, we had to wait 4 hours until the scan, so we headed to the zoo for a couple hours.
Headed back for the scan after a long day. The chemotherapy has wiped this sweet boy out.
We love you, every member of Andrew's Army!!!