Wednesday, May 24, 2017

Surgeries, Surgeries and Travel Oh My!

For anyone not on Facebook, i'm so sorry I haven't updated the blog often enough.  It is so much easier to quickly update Facebook with prayer request and updates because I rarely get to sit down in front of my personal computer anymore.  Here are a couple updates I recently posted on facebook...

***First things first... TODAY is a special day because its ABBY ROSS' 10TH BIRTHDAY!!!

Happy 10th birthday to this girl!!! Abigail is an amazing balance of being one of the kindest, most tender hearted people I know, but at the same time being something fierce. She is fiercely competitive, striving for excellence in all she does, but also loves and protects fiercely (I don't worry about someone picking on Grace, Andrew, or anyone that is a target when she's around πŸ˜‰). Above all, Abigail tenderly and fiercely loves Jesus and that's what I admire most about her. She has been called to be the big sister of a brother (her best friend) with cancer and a little sister with a major heart disease and an extra chromosome, which often requires her to take a back seat, take on grown up responsibilities, cling to God's promises because what she's dealing with at her young age is unlike what others around her can fathom, etc. All the while, she does it with such joy and grace. I could go on and on about all the ways in which I look up to (or down to πŸ˜‰) Abigail Lynn Ross, but I will sum it up with HAPPY BIRTHDAY to the daughter, friend, and sister in Christ that is my hero! #davidandgoliathallday

Best big sister EVER!!!

I love her intensity!

...and her courage to go against girls twice her size!

...If you can't go around them, you have to go over them!

Story of her/our life, get fouled and keep on going!

***Now, an update on Days of Our Lives with Andrew and Grace!  

-Andrew is headed to a CT scan now to get a look at the tumors in Andrew's body, specifically the primary tumor on his pancreas to see how it has or has not responded to the past 3 cycles of chemo.  Tomorrow, Andrew has an ultrasound guided biopsy of the pancreatic tumor to get a tissue sample (compare it to the tumors in his liver) and to get a better look at its size and location in an effort to help the surgeons plan their attack in the operating room.  PRAYER REQUEST- Will you please pray these two studies confirm the tumor is small enough to take out with out the need of a whipple?  Please also pray they can get all cancerous lymph nodes.  Those are two crazy big prayer requests, but we serve a crazy big God, so lets go boldly to the throne and ask Him to unleash His healing power on our sweet boy!  We are waiting for an official surgery date, but it will likely be in about 3 weeks in Iowa.  

-3 weeks...  well, that happens to be about the same time our Gracie Doo will need her mitral valve replaced in Boston (that makes surgery #6).  On Monday we did not get the news we hoped to hear, but we are trusting God has a reason and plan for it. Grace now has severe mitral regurgitation (it went from moderate to severe in less than a months time) and the pressure in the right side of her heart is now elevated (a sign that he heart is in distress). The prospect of Grace having surgery in Boston and Andrew having surgery in Iowa at the same time or overlapping in some way is a very real possibility. Will you please pray for ALL the logistics, successful surgeries without complications, and renewed strength for our whole family? #butGod. (but God is above it all)

***I will be sure to let you know as soon as we have surgery dates for both Andrew and Grace.

***Last nights Andrew's Army night at the Sugar Land Skeeters game was a powerful reminder that we are not alone in this fight!  The Andrew's Army soldiers (you) are vast, strong, unwavering, and generous beyond belief.  You aren't scared off by a torrential pour, thunder, and a tornado warning!  

Andrew got his own Skeeters jersey! 
The players all had Andrew's Army shirts!!

Besties hangin in the dugout!

Some batting practice with the players!

More batting practice on the field...

These guys were so incredibly sweet to Andrew!

Classic Chevrolet brought out a SUPER COOL green (Andrew's favorite color) car for Andrew to ride out in!

How cool that Swatson had an Andrew's Army shirt too!

One heck of a coach!  Thanks Coach!

Some Skeeters staff and friends at the game asked Andrew to sign their shirt.  Be still my heart!

Balloon release...

Thew big kids school nurse that helps us take care of our sweet boy!

The big kids amazing principal, Mrs. Koerth!

Andrew loved hanging out in the broadcasting booth!
Abby and some of the sweetest girls on the planet...  seriously, they are the best!!!

THEN, the weather got crazy!!! Just when things looked bleak... THIS...
A rainbow!  The perfect reminder of God's promises (God used a rainbow in scripture as a reminder of such)!  The rain doesn't last forever and His beauty and light WILL emerge from the darkness!  

"When life gets too hard to stand... kneel!"  Will you please hit your knees with us and pray for the next steps of this Divinely designed journey?!?!  THANK YOU!!! WE LOVE YOU!!!

1 comment:

Becky said...

I have just found your blog and I pray for your strength in going through the trials. I have had a diagnosis of neuroendocrine tumors in my liver for fourteen years. I have had a liver resection, several radio-embolizations, but no chemo. I don't know exactly what your boy is going through, but I know the challenge of the condition, the endless doctor appointments, the hospitalizations, and trying to live a somewhat normal life. I pray that his doctors will find a treatment that will work for him.