Cardiology appointment update...

Village, if you prayed for Grace's cardiology appointment today, I want you to know that your prayers were heard and God said "yes!"  Grace had a miserable time going to sleep for her sedated echo.  They had to give her extra sedation medication and she fought it hard.  Once she was finally asleep, the echo tech got to work; however, it seemed like she spent a looooong time time looking at one part of Grace's heart and that is when worry began to creep in.  When a Dr or tech spends a long time looking at something specific, alarm bells go off in my head because it has always meant that bad news was soon to follow.  A blessed interruption to all of the chaos was the opportunity to meet a new friend at the cardiology clinic who has a precious 7 year old boy with Up's!  When we first walked into clinic and David saw her son looking at the fish in the fish tank, he gave me a look that said, "there's another Downsy Doo!!!," our hearts leapt and I secretly hoped for a chance to talk to him and even meet his mom.  I was fortunate enough to get to do both…  I love when God does that!  Back to the update, after Grace's echo, her Dr walked in and said that her echo looked "great!"  The gradient across her new valve was lower than last time (insert happy and super grateful dance) and she continues to be amazed that Grace is the same kid that was clinging to life in the ICU just 4 months ago.  Our next cardiology appointment is in two months (that's the longest that we have ever gone in between appointments).  PRAISE BE TO GOD and thank you Village for your faithful support!

The one change that came from our appointment today is that we are stopping Grace's lasiks (which means that she will not be on any heart meds any more).  I'm a little (or a lot) nervous about stopping her lasiks because there is always a chance that her lungs could get wet (fill with fluid) again, causing labored breathing, etc.  Her Dr does't anticipate that happening, but we are suppose to keep an eye on her to make sure that she tolerates the discontinuation of her lasiks.  Will you please pray that she seamlessly transitions off of the lasiks and that her little body isn't negatively impacted in the slightest?

Rough day on the job today for Grace...