tag:blogger.com,1999:blog-35157283190816424832024-03-26T02:44:11.450-05:00The Ross FamilyThe Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.comBlogger398125tag:blogger.com,1999:blog-3515728319081642483.post-35227169332925109812023-07-09T19:53:00.000-05:002023-07-09T19:53:15.168-05:00The Rosslings Update <p>Hi there, our most precious Andrew's Army! Again, I have to apologize for my lack of updates beyond quick posts on social media... I have intended to update the blog on so many occasions, but putting my thoughts and feelings into words and a lack of time alway seem to win out, but not today! </p><p><br /></p><p>Buckle your seatbelts, here is an overview on what the Rosslings have been up to and what we are gearing up for...</p><p>ANDREW:</p><p></p><ul style="text-align: left;"><li>T-minus 2.5 weeks until Andrew is scheduled to receive a kidney from David! The mere fact that transplant is an option is a miraculous gift from the Lord because dialysis for a year and 4 months has been practicaly unbearable. Here is what Andrew's life looks like on dialysis... Texas Children's Hospital (TCH) is about 35 minutes away from us, so three days a week (Tues, Thurs, and Sat) he spends a total of 5 hours per session/day getting dialysis and then he typically feels terrible afterwards and has to take a nap to try and shake it off. He has to be at dialysis at 7 am (especially rough on Saturday mornings) where he first gets weighed, so they know how much fluid they need to pull off of him. Next, he has to thread two big needles into his upper arm (every.single.time and he pokes himself with the needles), sit there for four hours (the machine pulls his blood out, cleans it and returns it back into his body... each cycle takes an hour and he goes through four cycles) tethered to a machine that doesn't allow him to move at all. At some point during the session he usually starts feeling crappy (nauseous, sweaty, cramping, headache, etc), if he's lucky it doesn't get too bad until it is time to leave, in which case he typically needs to take a nap in order to feel better. When not at dialysis, he battles the frustration of getting winded easy, a not fun diet, taking tons of meds, always having to watch and manage his blood pressure, and one of the worst parts is having to say "no" to a whole lot of fun things because he can't go without getting dialysis every other day (this makes traveling almost impossible). One of the biggest heartaches that Andrew has had to battle through is not being able to go on mission trips or retreats with his youth group, he's wanted to go on a mission trip SO bad and it seems like there is always something that keeps him from being able to go (cancer treatment, dialysis, etc). He is well aware that he has a mission field right under his nose (one he doesn't need to travel for) and he most certainly takes that call very seriously (although he has no idea the type of impact he has on those around him; I try to tell him about it, but he often struggles to see it), he will often say he doesn't want to miss an opportunity to encourage or minister to someone. Well, that is the dialysis journey in a nutshell and then you layer on top of allllll that the fact that he still has cancer, so he still has his normal cancer scans, Dr appts, etc. I share all of those details to highlight just how big of a deal transplant is to Andrew and our family! Can't stop, won't stop praising the Lord for making a way where there was no way (remember, they have never transplanted anyone like Andrew before)!!!</li><li>Many have asked what post transplant looks like- transplant is scheduled for July 26th. David will spend 3 days in a separate hospital from Andrew (they are connected by a crosswalk). Andrew will spend the first 5ish days in ICU and another 5-10 days on a regular floor. Once he goes home, he will have to isolate for roughly 6 weeks (can't start high school in person, but instead will have to do school on line) because he won't have an immune system and he can't travel for 6 months post transplant. He will be on immunosuppressive meds for the rest of his life, so we will always have to be careful about germs (ex. avoid standing water and dirty beaches). </li><li>Andrew won't be allowed to play contact sports, but he has continued to enjoy golfing and has picked up skateboarding!</li></ul><div class="separator" style="clear: both; text-align: center;"><br /></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0_PG_-3fv8U-VFJt1X6DXm-FbUCxgdrXBHfAW0iTRiICb6qN0GiPQjYE1w9xwfXYF2-9qMcViZaxfTH7KvS_R8Rw4l8F0N3UdnE3BHMa55k8io7MpZg55ubulSJoZqEbyaQu56HpOAJ4hlIrFVGe-gyOLFj3HPB7rD1I-rkGis8p_BZPKnfNAfw08DWOn/s4032/16F4BDD6-DA43-42EF-9931-21FE78B474C4.heic" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3024" data-original-width="4032" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0_PG_-3fv8U-VFJt1X6DXm-FbUCxgdrXBHfAW0iTRiICb6qN0GiPQjYE1w9xwfXYF2-9qMcViZaxfTH7KvS_R8Rw4l8F0N3UdnE3BHMa55k8io7MpZg55ubulSJoZqEbyaQu56HpOAJ4hlIrFVGe-gyOLFj3HPB7rD1I-rkGis8p_BZPKnfNAfw08DWOn/s320/16F4BDD6-DA43-42EF-9931-21FE78B474C4.heic" width="320" /></a></div><br /><div><br /></div><p>GRACE:</p><p></p><ul style="text-align: left;"><li>Grace is going into 5th grade and continues to LOVE school (learning, her friends, all the things)! During the summer she lives for Abby to tutor her!</li><li>She loves cheerleading, rides horses, swims, plays baseball, and runs track... she would tell you that track is her favorite! She crushed her first track season with Special Olympics!!!</li><li>Grace basically makes everything in the world better... she is everyones favorite Ross for sure! If Andrew is having a rough day, Grace snuggles is the answer. When Abby has a soccer game, all she really cares about after the game is if Grace is there. You get the idea! Again, we praise the Lord for the gift of Grace Ross that only He could have known we needed!</li></ul><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiItNP_jkz_PmH-9jJ8mTnpsHQCXMuEs6lqP2i6kx5qKuvruNCLgcOi2_oSVegEuxqMHT4UT8I2gGL4OC54mVEajKkgrAEWyhacVVtgSpyyjHN5L1JPbExh3gTQvrquQ-ieIjjp7vrpbx_X___Y7ljwvDHliAW1svegv4oolRFBfvCoWpUUtD77J_yv8e6o/s4032/IMG_5310.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiItNP_jkz_PmH-9jJ8mTnpsHQCXMuEs6lqP2i6kx5qKuvruNCLgcOi2_oSVegEuxqMHT4UT8I2gGL4OC54mVEajKkgrAEWyhacVVtgSpyyjHN5L1JPbExh3gTQvrquQ-ieIjjp7vrpbx_X___Y7ljwvDHliAW1svegv4oolRFBfvCoWpUUtD77J_yv8e6o/s320/IMG_5310.jpeg" width="240" /></a></div><p></p>ABBY:<p></p><p>There is usually so much to update on Andrew and Grace's crazy health journey, I don't often get to share about the unsung hero of the Ross family... Abby Ross! This kid is a better human than I will ever be; everything she does, she does with excellence, perseverance, and grit. I don't know anyone that works harder at ALL things in life and yet somehow always prioritizes serving others above all! </p><p></p><ul style="text-align: left;"><li>Abby is officially a driver and my heart is still adjusting to having her drive into Houston two times A DAY most days (for various soccer/strength training, coaching, volunteering, etc). Grace has loved her special dates with Abby to get lunch, ice cream, or run errands. </li><li>For Abby's 16th birthday, we took a girls trip (just her and I) to NY and it couldn't have been a more amazing trip getting to pour into my girl! </li><li>As of June 15th, Abby has been able to officially talk to college coaches, so we have been busy praying about God's will for her future... soooo much to consider, but at the end of the day the center of God's will is where she wants to be! </li></ul><div><br /></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjVFig_UmbdD7u79IwRehZMz81ALZI5M2FhveN8eiDhhDAQTVfz8Hszu01rEvuhcgGyjd9XMhSDrkKaK8xhwGzxu-Kq3f0w-TJ1sw6wqmSrNYOgTQuuagvvyYhqMBoMBWaYJhqTCC_GM2CsCL2Zj8bny4quR39bTqCmQJGYlXzPuCB_qi921RfCluXQXq8/s4032/IMG_1806.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjVFig_UmbdD7u79IwRehZMz81ALZI5M2FhveN8eiDhhDAQTVfz8Hszu01rEvuhcgGyjd9XMhSDrkKaK8xhwGzxu-Kq3f0w-TJ1sw6wqmSrNYOgTQuuagvvyYhqMBoMBWaYJhqTCC_GM2CsCL2Zj8bny4quR39bTqCmQJGYlXzPuCB_qi921RfCluXQXq8/s320/IMG_1806.jpeg" width="240" /></a></div><div><br /></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjp8tVk2FVDTZY6bCEsxCMz2Zz1KGgCWvjwIOTS0lg64BRfa3nOWrp_vHjCDZDgS8lOltNRkV8j3ri6mlkRWZhCfSEH507Ne6DjtPogwCbU2qsCSoatHhD20JOiKq44-FHfx4eGJ8KXM3Dj5lzVr_8mkYkarpR9aLIBRPLKmMqUwqqo765pcKdVc4ltebWg/s1633/IMG_3524.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1633" data-original-width="1225" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjp8tVk2FVDTZY6bCEsxCMz2Zz1KGgCWvjwIOTS0lg64BRfa3nOWrp_vHjCDZDgS8lOltNRkV8j3ri6mlkRWZhCfSEH507Ne6DjtPogwCbU2qsCSoatHhD20JOiKq44-FHfx4eGJ8KXM3Dj5lzVr_8mkYkarpR9aLIBRPLKmMqUwqqo765pcKdVc4ltebWg/s320/IMG_3524.jpeg" width="240" /></a></div><div><br /></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAdXwA6dTbXAmTxfMem3og6RJ7-mlqTzKiw9Vlr7EchjgWDJ7niYniuEraY2MKPXluKbu6ZmzSIwhA66akmIYI9SfFOmlL5uX7hkSXzpISEVrHPTaKTn-4CJs0c7Brml9DIm7H8c3edxegFk-JoAaxU9IXYKDnzLSHsTPKBIWMhYdGUvB8Y44cYC4_s4sD/s4032/FullSizeRender.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAdXwA6dTbXAmTxfMem3og6RJ7-mlqTzKiw9Vlr7EchjgWDJ7niYniuEraY2MKPXluKbu6ZmzSIwhA66akmIYI9SfFOmlL5uX7hkSXzpISEVrHPTaKTn-4CJs0c7Brml9DIm7H8c3edxegFk-JoAaxU9IXYKDnzLSHsTPKBIWMhYdGUvB8Y44cYC4_s4sD/s320/FullSizeRender.jpeg" width="240" /></a></div><div><br /></div><div>We just returned from a blessed 10 day trip to California for soccer, seeing old friends, and making great memories!!!</div><div><br /></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNx5GJF-xNjG3p95w4a1GtiAL-TgMLpS91cldR_wuyNWtllSY-pKJ0TAEIq8e0cmCi8lP-lYkpOl0XV7GWTKWUnC5_SW3v7-4ul5V4ly5Xt2gnmzQfv0KFxs-yhlY1R_-BaqHrpvz8MowCATzQCVbep5ocYAo-xtoXjOaSzWCBwKzLtbpPuqCy3d13-mCO/s4032/IMG_3555.jpeg" imageanchor="1" style="margin-left: 1em; 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margin-right: 1em; text-align: center;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPVzs-eWs0XQyOHTrc2PjHQmrN2JoxOEVw2guu3m0EATB7LOtS2DPG0WHRlkphuQbtJsvIPNShX5_ouAJzubiyzdarouPKWnmM8R0A1Bc42YtEL2-djGJ4zmRMCeag9DhvmDxSQB3nUEw_TgxeonVM5_heyxueSzXodUuHNyQ6pR0d6kjo-spK0b2y9g1P/s320/IMG_5599.jpeg" width="240" /></a></div><div><br /></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6shcmUuHu_z8Fbhr5uSjM4RWkNDg0Qi9qV4mYbyeJdudKBd6xREGyVP_ObJ6i1Y_g4eWlk-do6J6M3xo6Pv-YLUwNMFNWZJy5zPscCWFDgtj3hUbI51i3cmF3-VwIYV1GHgIiKdqSHu2rig1saU80d484_93zv6LcBv9nxtS-VsQkVEgd-jcV448rs7m7/s4032/IMG_3648.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6shcmUuHu_z8Fbhr5uSjM4RWkNDg0Qi9qV4mYbyeJdudKBd6xREGyVP_ObJ6i1Y_g4eWlk-do6J6M3xo6Pv-YLUwNMFNWZJy5zPscCWFDgtj3hUbI51i3cmF3-VwIYV1GHgIiKdqSHu2rig1saU80d484_93zv6LcBv9nxtS-VsQkVEgd-jcV448rs7m7/s320/IMG_3648.jpeg" width="240" /></a></div><div><br /></div><div></div><div>Will you please cover all the things in prayer: transplant, where God wants Abs to go to college, Grace's heart continues to stay healthy, and allllll the things in between? </div><div><br /></div><div>THANK YOU for continuing to be such faithful prayer warriors! We pray that you too would be reminded that when life feels relentless, the road ahead looks impossible, and you are fighting to just put one foot of faith in front of the other.... but God!!! We love and appreciate each of you!!!</div>The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com0tag:blogger.com,1999:blog-3515728319081642483.post-57076953604768564762022-08-14T19:21:00.007-05:002022-08-14T19:21:57.909-05:00Andrew's Adventures...<p>So many have kindly asked for an update on the the boys trip, Andrew's health status, etc, so here is a quick recap:</p><p>***Please forgive any grammatical errors, I'm too tired to proof read this post... thanks for extending us grace đ.</p><p><br /></p><p>By David:</p><p><span style="background-color: white; color: #161a1e; font-family: Times;">Andrew and I flew I to Denver late on a Wednesday and were able to stay the night at one of Kristiâs friends from high school who lives in Denver now. Andrew had dialysis at Denver Childrens Hospital on Thursday morning and then we drove up to Breckenridge after dialysis. On our way, we stopped at Beaver Ranch Disc Golf course and enjoyed playing and hiking all in one. Breckenridge was amazing and the weather was between 50-70 degrees the entire time. We took a chair lift up to the base of Peak 8 and enjoyed a day of alpine slides, mountain coasters, mini golf, rock climbing, and crepes. On Saturday, we had to leave Breckenridge at 5:00 am and drive down the mountain to go back to the hospital for Andrew to get dialysis. Then, we stayed in Golden, CO for two more nights. Andrew rested a little after dialysis and then we went on amazing 5 mile hike with some views that were outstanding. I was really proud of Andrew for being able to push through a hike like that, after he had just received dialysis that morning; he is usually pretty worn out on dialysis days, but he powered through. The next day, we went zip lining and whitewater rafting and although the snow had already finished melting, thus causing the rapids to be a little smaller, it was still a ton of fun and perfect for Andrew, since he needed to avoid getting wet anyways. The next day we flew back home. It was a great trip for Andrew and I and allowed him to feel like he was at least able to do something this Summer. </span></p><p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhY4gatvFXjo9E-kT2nARWYIpKdUkodYhJ0Uue0JZsHeWWriudVEX7L-YJm8WhNVN7TwEcXcqlM8HDLZCKGRkfQldBElMZLGn_n1ax2IysWLKx5sOUcdEiStillFWRfdylfjG1SGKiw1XC33PvFUKAoyOSINwUTz6SD9OmzpDYR5IKytCtaPnk9TN4xYA/s4032/43FF9C17-F06F-4F8D-A78A-365FA4DA9DC8.heic" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3024" data-original-width="4032" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhY4gatvFXjo9E-kT2nARWYIpKdUkodYhJ0Uue0JZsHeWWriudVEX7L-YJm8WhNVN7TwEcXcqlM8HDLZCKGRkfQldBElMZLGn_n1ax2IysWLKx5sOUcdEiStillFWRfdylfjG1SGKiw1XC33PvFUKAoyOSINwUTz6SD9OmzpDYR5IKytCtaPnk9TN4xYA/s320/43FF9C17-F06F-4F8D-A78A-365FA4DA9DC8.heic" width="320" /></a></div><br /><div class="separator" style="clear: both; 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margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDCzPgfsjWjz_tdJXKyd5KmNL1EkrUyzjSfSuFdobKRTh5hTDMKOWQRUOyiC2yzVMcyUhrqEi-aNBlL06roZKJZ1QIYOy7KchUYpYrBAldewyfKWoRU6iKfFNkouv2vSGOUtOigmzyBhxix6LyL7cSGpIqo3n5b4LFznAVxO3kroxf8j2sJt1Os8SCBQ/s320/948DCB57-A7DE-4BD3-987C-DF05FF1F39C5.heic" width="240" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgixj58vqTQZxTXE_Ap6oe2-MJBjlx4hS7nXJtUlWbeXcrY25hvI8FQjne_3b6pXaK8V3fJQwuZir8_3Oo42_8r7GDFCPJqvIkB61Zpzqk0_oPeDXmXk2h6W7ZEzBvvlxjmntRGXti3fL0vadgGVx6vMEsQPFU4Q_vEGYkmRFjXC5E7KJBiJdkHATo4mQ/s4032/BCEB35E4-664E-4459-8919-AB60D1DE9C2C.heic" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgixj58vqTQZxTXE_Ap6oe2-MJBjlx4hS7nXJtUlWbeXcrY25hvI8FQjne_3b6pXaK8V3fJQwuZir8_3Oo42_8r7GDFCPJqvIkB61Zpzqk0_oPeDXmXk2h6W7ZEzBvvlxjmntRGXti3fL0vadgGVx6vMEsQPFU4Q_vEGYkmRFjXC5E7KJBiJdkHATo4mQ/s320/BCEB35E4-664E-4459-8919-AB60D1DE9C2C.heic" width="240" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0Fcbri1rLqbitLxKUvS50a_sW5V_n_qZafdZ0mOpaK08ivsNZunaw3v0ltyebQPHprHxs2PqQsn2Z4JK3H3v-9augEAGZaTvrbjVnWDz5DR8V3seUdyzhRJ6yNXadpAx-pwSxWzGrjMv2S7MObVCjnmMN4bX9UzBmZspNMvHt-Ba_hOJSZDrGXCLEhQ/s4032/C0B7B777-28F2-4CBE-B89A-D201493DAAFD.heic" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0Fcbri1rLqbitLxKUvS50a_sW5V_n_qZafdZ0mOpaK08ivsNZunaw3v0ltyebQPHprHxs2PqQsn2Z4JK3H3v-9augEAGZaTvrbjVnWDz5DR8V3seUdyzhRJ6yNXadpAx-pwSxWzGrjMv2S7MObVCjnmMN4bX9UzBmZspNMvHt-Ba_hOJSZDrGXCLEhQ/s320/C0B7B777-28F2-4CBE-B89A-D201493DAAFD.heic" width="240" /></a></div><br /><p></p><p><span style="color: #161a1e; font-family: Times;"><span style="background-color: white; caret-color: rgb(22, 26, 30);">By Kristi (with a little help from David :-):</span></span></p>
<p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;">One of the toughest decisions we have had to make in a long time deals with realizing we just donât have the time and bandwidth to properly care for a horse any longer (thanks to the brutal dialysis schedule). Otto has become like a part of the family and we all love getting to be out at the barn and have time with him; however, the amount of time we have available is just non-existent and we realized that it isnât fair to Otto and financially isnât smart for us to continue investing in the costs to board Otto. We ran this by Andrew and committed to praying about it for many months and Andrew came back to us himself and realized that it is probably the right thing to do. Therefore, we began looking into options for how we could best get Otto to the right place for the next phase of his life, while also wanting to see if there is anyway that we could still possibly see Otto. </p><p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJRwUheTmy6LL08dS84RIa1899jcq2mZvF2oVQYyu20esc8uPezMgm8zJjgjXo5-w3pZKKuH7mvrIkAhBk1LsMoQb62LHPMevOt4sqX3mbjiesp7lBplbA46Z7ia-dQ1_NVnnAkz-4OJcWdlhe13oCp0sbARV3R5IoP_nRQo6uBRqwi_Mu4OqwuJjxUA/s4032/IMG_0668.HEIC" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJRwUheTmy6LL08dS84RIa1899jcq2mZvF2oVQYyu20esc8uPezMgm8zJjgjXo5-w3pZKKuH7mvrIkAhBk1LsMoQb62LHPMevOt4sqX3mbjiesp7lBplbA46Z7ia-dQ1_NVnnAkz-4OJcWdlhe13oCp0sbARV3R5IoP_nRQo6uBRqwi_Mu4OqwuJjxUA/s320/IMG_0668.HEIC" width="240" /></a></div><p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p>
<p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;">In a way that only God couldâve played a hand in, we reached out to Reigning Strength Therapeutic Horsemanship (this is where Grace first started doing therapeutic horse back riding lessons) to see if they were in need of a horse. Not sure they had a true need, but what we do know is that the owners of the barn have a heart bigger than a horse⌠their barn was full, but they were willing to give Otto a two week trial and see if he would work out as a therapy horse. Otto did great in his trial (we arenât surprised, seeing the way he took care of Grace when she would boss him around the arena over the past 3 years, gave us all the confidence in the world in him), so they agreed to take ownership of Otto (he now has a super cool job as a therapy horse in one of the cleanest, coolest, and kindest barns youâve ever seen) AND Grace even gets to ride him for her weekly one hour lesson. We still get to see Otto each week and Grace gets to ride him, but we also get to know that Otto is getting loved on and worked regularly and we no longer have the financial responsibility of owning him and feeling guilty for how infrequently we are able to make it out to the barn. It seems to be the best possible scenario to a very difficult situation. Praise the Lord!!! Thank you Reigning Strength!!!</p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbYhb0CHvI2_mPibWLG3GrSEwnvIXWb8U-knKPDbcKhKMKNyiAC5x9J6oK3w-WvIySQJRdyfst3vFEolochwjOhX-VdlhAUE7zZO2KrGCGD1uKM2j4XeneiE_31DivRGQKH0-74D23x8vpmvTOwkiSYW65R_8yU-yV-ZdNyr34MMTdGeLJzja6ohEeuA/s4032/IMG_1057.HEIC" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbYhb0CHvI2_mPibWLG3GrSEwnvIXWb8U-knKPDbcKhKMKNyiAC5x9J6oK3w-WvIySQJRdyfst3vFEolochwjOhX-VdlhAUE7zZO2KrGCGD1uKM2j4XeneiE_31DivRGQKH0-74D23x8vpmvTOwkiSYW65R_8yU-yV-ZdNyr34MMTdGeLJzja6ohEeuA/s320/IMG_1057.HEIC" width="240" /></a></div><p></p>
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<p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;">Andrew just started 8th grade on Monday the 8th. He is happy to be going back to Logos and joining his friends again for another year, but less excited about doing homework. Initially, he was rather frustrated that he is unable to play football at school this year (because of his catheter and fistula); however, the football coach asked if Andrew would be willing to be the manager. Andrew was hesitant at first, but after thinking and praying about it over the Summer, he came back and said that he would like to still be a part of the team in some manner and was actually looking at it as an opportunity to serve the team, like itâs his ministry. After going to practice for a few days this week, Andrew said that he has enjoyed getting to be on the team and actually feels like he gets to still participate a lot (just without all the contact). When picturing the manager role, we envisioned him just getting water for the players and lugging equipment around, but itâs been so much more (in the best way). We are beyond grateful for those coaches. </p><p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQvyEUqrbfvTi2_TdM7f2JJV8eDFSL6ENY4uvO8ejQEEM_hLuoyHrhCkSaPxbQEf7Hwe4-diRi4U7ibkwBkIi5BwiWisX_VQO67sxdAOM7KqLBoDtgxO7FJKq4kCEHWCVnk6zFfKaMalz-kVMvRtsVf2iDLyK5L5LTTTZqRa4PmZrXodjzLzL_Psa5qw/s3171/FullSizeRender%202.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3171" data-original-width="2231" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQvyEUqrbfvTi2_TdM7f2JJV8eDFSL6ENY4uvO8ejQEEM_hLuoyHrhCkSaPxbQEf7Hwe4-diRi4U7ibkwBkIi5BwiWisX_VQO67sxdAOM7KqLBoDtgxO7FJKq4kCEHWCVnk6zFfKaMalz-kVMvRtsVf2iDLyK5L5LTTTZqRa4PmZrXodjzLzL_Psa5qw/s320/FullSizeRender%202.JPG" width="225" /></a></div><br /><p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px; text-align: center;">In case you can't read my writing... Andrew "wants to be a pilot when he grows up" (this passion developed as a result of an amazing opportunity he had thanks to some amazing Triumph Over Kid Cancer donors đ§Ą)</p>
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<p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;">In regards to dialysis, this has definitely been a tough⌠really tough season for the family and feels like someone is out of the house all the time. Andrew had his fistula surgery in July and it is almost ready for them to begin accessing; however, there is one small area that is a little too narrow, so they scheduled an appointment with Interventional Radiology for Monday, August 22, in order to go in and dilate that one section. Then, hopefully they will be able to start accessing the fistula shortly after that is completed. </p>
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<p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;">Once the fistula begins to be accessed, Andrew will have to wait about 3-5 weeks for the nurses to figure out the right locations to gain access and ensure there are no issues whatsoever before they will decide to remove his catheter. Andrew will be elated when he finally gets his catheter out. Then, the training is supposed to begin for both parents to learn how to do dialysis for Andrew at home. Here is where it gets very tricky though and we could use a lot of wisdom on what we should do. The doctors stated that the training process for parents is typically a four week process and we would have to go up to TCH everyday (except Sunday) for four to five hours each day. With two other kids and jobs, we have no idea how we could possibly work this out. Plus, that means Andrew has to be up here everyday as well. Therefore, it might just be one of us doing the training, or there is another option as well, but this will require a lot of prayer and God making things happen. </p>
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<p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;">In April, the plan is to begin the conversation about the possibility of Andrew being a candidate for a kidney transplant. The reason we have to wait until April is because that will be two years from Andrewâs last radiation treatment and they want to see how Andrewâs tumors are functioning at that point. There will still be a lot of doctors that need to be convinced that a transplant is an ethical option for Andrew, but it helps that Andrewâs oncologists are on board, specifically his adult oncologist in Denver. Once that discussion begins, Andrewâs doctor stated that it is still a five to six month process until transplant would actually happen, but that still doesnât sound too bad. In just over a year from now, Andrew could possibly be getting a transplant⌠which is crazy to consider (crazy as in evidence of a big and good God) since transplants are typically not an option for someone with âactive cancerâ (remember Andrew still has two small spots that light up). This is fantastic news, but it is far from a done deal, so please be praying for this. Lastly, we are trying to decide if it makes sense to go through all the training to do home dialysis if it will only be for a year or less. Pray we can make the right decision for that as well. </p>
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<p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;">David went back to work as a college counselor at a private school in Houston on Friday. Canât wait to see how God uses him in his studentâs lives this year. </p><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiIQb3jzCSARDTW6seWGyIgNJpRiRzIedGJUB5eB2JnyeOuggaEx6wctQ6EZHtc_fGjnfhf0N6IN1CqrXmzwe3xLsV-niE2MhHwmZ07GyTKGj4tCw24H1qssPVEJO96wazns5fxHog6E-WRyruvc58SCvIBJYUmT0SGNFuPKODx0quRa9nx1gRujxnSGA/s4032/EBADC1EF-FA68-4E4B-89F9-83046D9BC89C.heic" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiIQb3jzCSARDTW6seWGyIgNJpRiRzIedGJUB5eB2JnyeOuggaEx6wctQ6EZHtc_fGjnfhf0N6IN1CqrXmzwe3xLsV-niE2MhHwmZ07GyTKGj4tCw24H1qssPVEJO96wazns5fxHog6E-WRyruvc58SCvIBJYUmT0SGNFuPKODx0quRa9nx1gRujxnSGA/s320/EBADC1EF-FA68-4E4B-89F9-83046D9BC89C.heic" width="240" /></a></div><br /><p style="background-color: white; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px; min-height: 16px; text-align: center;">Grace made him take a pic with the white board toođ¤Ł! This is David's second year as a college counselor at the Tenney School in Houston. He "wants to be an awesome Dad and Husband" when he grows up.... good news is that he's already achieved that goal! </p><p style="background-color: white; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px; min-height: 16px;"><br /></p>
<p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;">Your prayers and support are what continue to sustain us, so thank you for not giving up on us! We are so very grateful for each of you!!! Please keep the prayers and praises coming!!!</p>
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<p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;">The Rosses </p><p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p><p style="background-color: white; color: #161a1e; font-family: Times; font-stretch: normal; line-height: normal; margin: 0px;">In His strength and for His glory</p>The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com0tag:blogger.com,1999:blog-3515728319081642483.post-19496235917575422612022-07-04T16:23:00.000-05:002022-07-04T16:23:28.940-05:00Hurting and Hoping<p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">We (once again) would like to apologize for our lack of presence on the blog or social media, life has been more busy than ever (more on that in a moment) and when I think about posting I don't even know where to start in the way of an update. In a nutshell, we find ourselves in a strange place... kinda like we are trying to balance a wonky teeter-totter that on one end keeps us on our knees begging God to show us how to walk our precious children through so much heartache and frustration and on the other end... also on our knees, we are praising the Lord for His goodness, faithfulness, and the deep love and loyalty our family has for one another/how much we love to be together. It's that very love and loyalty that breaks our heart when one of our own takes one hit after another and all you want to do is make them smile, make things suck less, and rescue them from all the disappointment. </p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 13.8px;"><br /></p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">In the way of updates- praise the Lord, Andrew's cancer is stable (just a few tiny spots lighting up). On the other hand, dialysis is kicking our butt (3 days a week, 4 hour sessions and that doesnât include the commute both ways, and after each dialysis session Andrew is wiped out and typically needs a nap)âŚ. itâs stolen Andrewâs summer and any level of spontaneity we use to enjoy (just picking up and going somewhere, sleeping in, going to eat anywhere we want, jumping in a pool or lake to cool off, and so much more)⌠but God⌠we trust that He is working things out, He is near, and He is good, so we will fight to keep our eyes on Him, praying diligently for His hope and perspective on our circumstances. Despite how it can feel at times, I know God isn't picking on us, but instead He has chosen us to a level of intimacy with Him that will refine us and reveal more about His character. It's an honor, but not the kind of honor that feels luxurious.</p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 13.8px;"><br /></p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">Next steps- Andrew still has a good 4-6 weeks until his fistula is ready to be used for dialysis (please pray it works perfectly as quickly as possible) and another 6-8 weeks for David and I to get trained on accessing his fistula to be able to do dialysis at home. Once his fistula is functioning well, he can get the catheter in his chest out, unfortunately, that wonât be in time to enjoy summer activities before school starts. Even with a fistula, Andrew still canât play football and he will probably always struggle with getting tired easily because dialysis dries him out so much (they pull off so much fluid off, it leaves him borderline dehydrated all the time). </p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 13.8px;"><br /></p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">Also, dialysis patients struggle with growth, this is something Andrew is very concerned about and it doesnât help that heâs a Ross (we donât make big people as it is). Heâs only 4â10 and just keeping weight on him is very hard. Will you please pray Andrew grows (a lot). </p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 13.8px;"><br /></p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">Andrew hates having to wake up at 5:30 am three days a week, especially on Saturdays; he also has to see all sorts of other specialists to monitor for risks associated with severe kidney failure. All this to say, he has very little free time these days, which has meant he canât golf as much as he would like and he only makes it out to the barn to see his horse once or twice a month (we use to go three to four times a week). </p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 13.8px;"><br /></p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">The intent of this post is to be as transparent as possible about what our lives look like right now, in hopes that you will know how to best cover us in prayer (your prayers are what sustain us!). This is a super hard season in life, but God is still on His throne⌠only in Godâs awesome economy can your circumstances suck, but true joy and expectant hope, co-exist. We have so much to be grateful for, especially when we reflect on allll that God has done in the lives of His people since the beginning of time and even more specifically, in our lives. An attitude of gratitude gets us through each day. </p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 13.8px;"><br /></p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">Abby and I just returned from a week in Seattle, where she got to play up an age group in a showcase tournament, with some precious teammates and families. Her team went all the way to the finals, but lost in over time. Great soccer was played, lots of college coaches on the sidelines, great memories made with great friends, and one on one time with my girl was absolutely priceless. </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihaFkDihGOfWs5f648yiJxdJRv2I6S7h-icYUQAOgE0h3tede3c71kUYdES67ePmMhmECJK2RwlEdVdN8xkYJu3yLE_8cccLi7dOrJTGNrhvmzlO6mM7mF7ZZiWRCZIoJIZmPnQ4qduGRBSGVOVklt5PMgjI8JRGo8sja24IC_2yMZlCUKinuXpGYtZA/s960/IMG_5537.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="719" data-original-width="960" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihaFkDihGOfWs5f648yiJxdJRv2I6S7h-icYUQAOgE0h3tede3c71kUYdES67ePmMhmECJK2RwlEdVdN8xkYJu3yLE_8cccLi7dOrJTGNrhvmzlO6mM7mF7ZZiWRCZIoJIZmPnQ4qduGRBSGVOVklt5PMgjI8JRGo8sja24IC_2yMZlCUKinuXpGYtZA/s320/IMG_5537.JPG" width="320" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVcbk2BTejq8rw1CRoQiRR2cDn2ON2oX-_T1gOW5hsDHFqo8-XV-n5hOuM3goN90AmPDCrx817z5j4pdM7t93k2DIwBn0g-6QKoM_Ku7dQjKmF30u7teWE5fEen07z2ywowhCTzlMz3YN2ipoMEAe-zMj5cDSHPTUmR3z5mt18fBh0ucyOXFX1RdHdWQ/s4032/IMG_3048.HEIC" imageanchor="1" style="margin-left: 1em; 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text-align: center;"><span style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; text-align: left;">Abbyâs team went to pkâs in the semi final game (the winner moving on to finals) and Abby was up to take a pk in the âsudden deathâ round (if you miss it or itâs blocked, we lose) and Abby was SUPER nervous because she naturally didnât want to be the reason the team didnât move on. Praise the Lord, she made it, but after the game she said âthat might be the most nervous Iâve ever been in my life⌠I was even more nervous than how I feel waiting to hear Andrewâs scan results.â I know she will text us constantly asking for updates when we are at Drâs appointments with Andrew, but I guess I didnât realize just how much she worries about him. Between that, and Abby wanting to FaceTime Grace every minute possible, it was a time to rejoice in the love of siblings and the way suffering unites hearts in a powerful way. </span><span style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; text-align: left;">At this point you have probably seen or witnessed (in some way) Abbyâs resilience, selflessness, grit, selflessness, deep faith, selflessness, and love for her family, but this story was a peek into her heart and mind. </span></div><div><span style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; text-align: left;"><br /></span></div><div><span style="color: #1d2228; font-family: Helvetica;"><span style="caret-color: rgb(29, 34, 40); font-size: 12px;"><br /></span></span><div><span style="color: #1d2228; font-family: Helvetica;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixbIcTQ0l4fnHtZv8xZCZ3bC_rIeD9_eaKW7nLbyzCgx14KRdN3EGZfDf7SG-8u253TCDXnuOlQWj-w9F9SR5FCeUl3N7kX_26MSHjPpLifzsi1AGtFgxE1QXh-2-nxz2_viZQ2Sa0jTSiIMcnUOtMXTPFWkfYnOmFFC5e4ved7MrKe7LqX89hY_b4hw/s960/IMG_5558.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="720" data-original-width="960" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixbIcTQ0l4fnHtZv8xZCZ3bC_rIeD9_eaKW7nLbyzCgx14KRdN3EGZfDf7SG-8u253TCDXnuOlQWj-w9F9SR5FCeUl3N7kX_26MSHjPpLifzsi1AGtFgxE1QXh-2-nxz2_viZQ2Sa0jTSiIMcnUOtMXTPFWkfYnOmFFC5e4ved7MrKe7LqX89hY_b4hw/s320/IMG_5558.JPG" width="320" /></a></div></span><div><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;"></p><div class="separator" style="clear: both; text-align: center;"><br /></div><p></p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">Grace went to Pine Cove Camp in the City (day camp) this week and it was awesome⌠awesome that she is such a big girl, can make friends/connect with others so easily, and have an absolute blast doing pretty much anything (especially learning about Jesus in the most fun environment ever). </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7AbixfwprWrLx8j5fXLj8RfleHLJJB6nNMFvYXTQCG6eedXJIecqEBA8ssh4qMhRHbmJl44q1gn0u-WQSZ6chiRBPb9PIMXjjN9uTgf9YeT25P4CBjANNznVN-5qyI9wPepaorJBNth2s0yEijUS93IslqFzlpcvjKMofwN4no1ijja7pynxI-H93rA/s4032/IMG_5586.HEIC" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7AbixfwprWrLx8j5fXLj8RfleHLJJB6nNMFvYXTQCG6eedXJIecqEBA8ssh4qMhRHbmJl44q1gn0u-WQSZ6chiRBPb9PIMXjjN9uTgf9YeT25P4CBjANNznVN-5qyI9wPepaorJBNth2s0yEijUS93IslqFzlpcvjKMofwN4no1ijja7pynxI-H93rA/s320/IMG_5586.HEIC" width="240" /></a></div><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 13.8px;"><br /></p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">Another super sweet moment was when we went to pick up Grace's yearbook at school for a yearbook pick up/signing party and I thought we would run in and grab it and head out (since we had big plans waiting for us when we got home... Frozen Monopoly đ¤Ł), but it took waaaay longer than expected because so many precious kiddos wanted Grace to sign their yearbook... further evidence that Grace is the coolest Ross by far and that little experience sure warmed this mama's heart!</p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvH52V7Who6hm5yRvgypRJTaZAlHEE_opa7XxSopG77SFc0se-gMIpkvzwNlOMT2Ps8Ta4Owk-vHuY8HUGlfVng7MbShu1cIiYVmM1cogL9sg6LWtGC_r8YUXR3AyyDO4bKxqlva9jNKmYNkCnS7Jp4nc8J70JuyTs8gCZR4hJiCDj0qdy0cEoBb_bnA/s4032/IMG_5563.HEIC" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvH52V7Who6hm5yRvgypRJTaZAlHEE_opa7XxSopG77SFc0se-gMIpkvzwNlOMT2Ps8Ta4Owk-vHuY8HUGlfVng7MbShu1cIiYVmM1cogL9sg6LWtGC_r8YUXR3AyyDO4bKxqlva9jNKmYNkCnS7Jp4nc8J70JuyTs8gCZR4hJiCDj0qdy0cEoBb_bnA/s320/IMG_5563.HEIC" width="240" /></a></div><br /><div class="separator" style="clear: both; text-align: justify;"><span style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; text-align: left;">I hope this post isnât a downer in anyway, but instead that you would see into our hearts (the super painful parts and the super grateful parts) and know that we are hurting, but full of hope. Hoping doesnât mean we ignore reality. I think Lisa Terkeurst said it best, hoping means âwe acknowledge reality in the very same breath that we acknowledge Godâs sovereignty â His absolute ability and power to work as He sees best.â</span></div><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 13.8px;"><br /></p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">We are honored that you continue to fight right along side of us. THANK YOU for never giving up hope and for always leaning in!!! We love and appreciate you so very much!!!</p><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgy6NJst6bBuUR23HK2b1Hqt-won0vXGn5ri_zbmxrZATM6p1dO-Do2FVWLcQaA8Oxq1ZOEmY2Nb1H1_oilMIcta6uaVPfviAZoXhYDwNyfmKx_C3n0Cpe-WuHivCvQlxEIYlGZjwR7KH-W38Ken1SNPtUy6lO7cuSfRLH_jNBC9T1UBp1QpSJPqCPc_Q/s4032/IMG_0913.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgy6NJst6bBuUR23HK2b1Hqt-won0vXGn5ri_zbmxrZATM6p1dO-Do2FVWLcQaA8Oxq1ZOEmY2Nb1H1_oilMIcta6uaVPfviAZoXhYDwNyfmKx_C3n0Cpe-WuHivCvQlxEIYlGZjwR7KH-W38Ken1SNPtUy6lO7cuSfRLH_jNBC9T1UBp1QpSJPqCPc_Q/s320/IMG_0913.JPG" width="240" /></a></div><br /><p style="caret-color: rgb(29, 34, 40); color: #1d2228; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p></div></div></div>The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com0tag:blogger.com,1999:blog-3515728319081642483.post-6763277834851030842022-06-01T15:35:00.003-05:002022-06-01T18:18:01.806-05:00Update on Andrew<p>Overview and update from David:</p><p>What a crazy week! Andrew was admitted to hospital real early on Sunday morning, after spending the entire night in the ER. Abby had her final soccer game in New Jersey at 11:30, where they won 2-1 against a strong team from Georgia. Abby and I were able to get on an earlier flight out of La Guardia. We landed at 8:00pm and drove straight to TCH before visiting hours were over at 9pm. Abby got to see Andrew and I was able to relieve Kristi so she could go home and actually get some rest. </p><p>Andrewâs blood pressures continued to stay high through Tuesday afternoon, but since then, they have started to stabilize and have remained at the right levels for the last 24 hours. </p><p>The doctors ordered an ultrasound yesterday and the results on that did not reveal anything that was of concern to them (praise the Lord). Andrew also had his regular dialysis on Monday, then he was taken down to dialysis yesterday as well, but only for a two hour session to see if they could pull extra fluid off his body, in the event that was causing his blood pressure to rise. </p><p>Thankfully, Andrew didnât have any negative response from having extra fluid pulled off. The doctorâs plan for today is to have another dialysis treatment and in the progress, try and pull more fluid without making him feel sick in the process. Theyâre wondering if they initially had his dry weight too high and that his body had been holding on to too much fluid this whole time and that is what has caused his blood pressure to spike (we are learning that dialysis is a crazy balancing act). </p><p>The plan is to keep him through the night tonight and see how his body and blood pressures respond to the extra fluid being pulled off and, Lord willing, the plan is to let Andrew go home tomorrow. </p><p>Thank you for continuing to pray for him!!!</p><p><br /></p><p>Kristiâs specific prayer request and praises:</p><p>PRAYER REQUEST- all the things, but especially for Andrewâs heart, heâs literally had one thing after another ripped out from underneath him⌠he canât swim (because of the catheter), no contact sports, he has to miss a lot of golf and visiting his horse because of an inflexible dialysis schedule. Most recently, he was super bummed that he couldnât go on a mission trip with our church (canât get dialysis in a rural area), but he was looking forward to going to a camp in Tennessee with the dialysis unit at TCH instead (he would be there with kids from all over the country that are also on dialysis). He was suppose to leave this Saturday, but the Drâs arenât comfortable with him going anymore because they will be in the middle of nowhere and he needs to be close to a hospital in case he gets into trouble with his bp again. </p><p>We are trying to find something, anything, we can do this Summer to give Andrew something to look forward to. Please pray for wisdom as to what we can do to make my boy smile and for life to suck a little less. </p><p>PRAISE- God is still on His throne and we continue to see His hand in the details⌠David and Abby getting on an earlier flight and Abby having a great weekend of soccer despite her concern for Andrew. Andrew and I had some rich time together (hard conversations and quality time) this weekend, his bp has been more stable over the past 12 hours, Abbyâs beyond generous heart that is always willing to serve her family, and the joy Grace infuses into the hardest days. </p><p>THANK YOU!!! We are exhausted, but not without hope! #butGod #hopeon #AndrewsArmy #FIGHTLIKEAROSS</p><p style="text-align: center;">Grace doing Grace... worshiping with her whole heart!</p><p style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhL6cYmf-m4lJlIU7g_-oB8QMiYLInToaAZ9xqjUhHGCeEJXNcUfXt3BK1qY8l8EL2USK2jAdvEDmpWniHP6vUIzVp5KdUfNr5dYGM2XfzmxdEwWZRPBT472UGbBhOOanAy1oYtJGJmNMw7no_zpGb-p_eShHmxVeOsBaYmzRIDiERh1Q_vtKlE_WCW2Q/s1968/FullSizeRender.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1968" data-original-width="1761" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhL6cYmf-m4lJlIU7g_-oB8QMiYLInToaAZ9xqjUhHGCeEJXNcUfXt3BK1qY8l8EL2USK2jAdvEDmpWniHP6vUIzVp5KdUfNr5dYGM2XfzmxdEwWZRPBT472UGbBhOOanAy1oYtJGJmNMw7no_zpGb-p_eShHmxVeOsBaYmzRIDiERh1Q_vtKlE_WCW2Q/s320/FullSizeRender.JPG" width="286" /></a></p><div><br /></div><div style="text-align: center;">Sibling snuggles in the hospital!</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhU6Nxr8Qq-xaDDnb2mk8XYTEZKVFF039zjoatd0HU0OkpmNT_lec8mpkTMXs_HT2lLFN8zRF0IA-Xojqa3XQnB19DpfiiGByGQSHwpQAgcBOnjMA8xKkl5L1GNSGOrHx89wBfGrLG_yQsOjc5ET-UWpmuLtE0d7XYn8e9lkViDdZA9yqcEa_w0_068pw/s4032/IMG_5275.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhU6Nxr8Qq-xaDDnb2mk8XYTEZKVFF039zjoatd0HU0OkpmNT_lec8mpkTMXs_HT2lLFN8zRF0IA-Xojqa3XQnB19DpfiiGByGQSHwpQAgcBOnjMA8xKkl5L1GNSGOrHx89wBfGrLG_yQsOjc5ET-UWpmuLtE0d7XYn8e9lkViDdZA9yqcEa_w0_068pw/s320/IMG_5275.JPG" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;">We have received a lot of questions about how to order a new Andrewâs Army shirt (I know a lot of kiddos have out grown theirs), here is a link and thank you for always representing Andrew đ</div><div class="separator" style="clear: both; text-align: center;"><p style="font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;"><a href="https://itsafortbendthing.com/collections/andrews-army">https://itsafortbendthing.com/collections/andrews-army</a></p><p style="font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p></div>The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com0tag:blogger.com,1999:blog-3515728319081642483.post-79017477241238080762022-03-26T21:32:00.000-05:002022-03-26T21:32:08.128-05:00Andrew's Kidney Update<p> David's words- We haven't been on here in quite some time, but don't worry, we do have a couple unfinished blog posts sitting in drafts from months worth of information. Needless to say, those will probably never get posted and we will just fast forward to what is going on right now. </p><p>As of late, Andrew's kidneys are pretty ruined from all of his radiation treatments. We were hoping his biopsy would reveal that there was something else going on and it would be something that was able to be treated. Unfortunately, Andrew's doctor informed us this week that it was definitely from radiation damage and that we need to decide what type of dialysis we would like to have Andrew begin. </p><p>Andrew's nephrologist informed us of the three different options that are available: peritoneal (which is a bag that is placed in your stomach and does the work to filter the kidneys, but it would mean Andrew has to manage a tube sticking out of his stomach [honestly, and this is David by the way, I don't fully understand exactly how this bag operates in the stomach, but it does the filtering somehow]) and the other two options are both hemodialysis, which works through the veins/arteries (one being through a catheter that is placed around the collarbone area and the other is through a fistula, which connects a vein and an artery together on his none dominant arm for treatment).</p><p>As some of you have asked us different questions about our options, we can share what we know (which is far from being very knowledgeable). The benefits to the peritoneal bag, it provides Andrew the ability to have his treatment at home while he is sleeping at night, so in that aspect, it is a huge benefit. In addition, it does provide a better opportunity for Andrew to be a little more lenient on this new crazy diet that has been very discouraging for him. However, the downsides will impact Andrew's life in such a way that he is not ready to go that direction. Andrew would have this bag surgically implanted in his stomach and he would have a tube hanging out of his body and connected to something at all times. In addition, Andrew wouldn't be able to go into the water anymore (which is a rather normal occurrence in Texas Summers). Andrew just isn't ready for that at this time.</p><p>For the two hemodialysis options, Andrew can receive treatment either in a facility or at home. When we originally heard about Andrew needing dialysis, we just assumed he could to one of the dialysis centers that we see all over the place; there is even a Davita Dialysis location just outside of our neighborhood. However, we just found out on Wednesday that you have to be 16 or older to receive treatment at one of those facilities. There are only two pediatric dialysis locations in Houston, one at TCH and one at Memorial Hermann (both in the Houston Med Center). Andrew would have to go there three times a week for four hours at a time. The downside to this option is the distance and time away to get this done. In addition, this option provides the least amount of benefit for his kidneys, since it is only three times a week. </p><p>The other hemodialysis option can be conducted at home for four hours at a time, six days a week. With this option, Andrew would need to have a surgical procedure to create a fistula in his wrist or forearm area (and then it takes six to eight weeks for that vein/artery to grow and expand in preparation to be accessed routinely for dialysis). At this point, Andrew would start off having treatment up at TCH still for the first few months and during this time, Kristi and I would receive training on how to access his vein ourselves, so that we could conduct his treatments at home ourselves. The benefit to this option is that Andrew wouldn't have something external connected to his body and he could still swim and live a relatively regular life (or at least as normal as possible with this new development). </p><p>*****Well, I started writing this post late Thursday night and decided to go to bed and planned to finish it the next day. Then, late Friday afternoon Andrew's Nephrologist called to tell us that Andrew's lab results from Wednesday were back and that we don't have 6 to 8 weeks to have the fistula procedure done in preparation for home dialysis. Instead, Andrew will need to go in to TCH this Wednesday and have a catheter (near his collarbone) surgically placed and then he will have dialysis on three days in a row to try and get his BUN (which was at 92, the doctor stated that 100 is his threshold as to when Andrew needs to be on dialysis; just for reference, before we went to Disney, Andrew's BUN was at 64) and his creatinine (which was at 7.0) stabilized. Then, every week after that he will go to TCH to have treatment three times a week (likely on Tuesday, Thursday, and Saturday). Fortunately, the dialysis treatment protocol is very straightforward and there shouldn't be a lot of waiting around for treatment. The options are to either arrive at 7:00am and treatment is from 7:30-11:30 or to arrive at 2:00pm and treatment is from 2:30-6:30. </p><p>This is Kristi... we have been praying for wisdom as to which dialysis option we should choose and we are taking the most recent turn of events as God's way of making His will clear. It isn't what we had planned on doing, but we trust that He didn't fall off His throne when Andrew's most recent labs showed that we don't have time and must act fast to keep Andrew healthy. </p><p>Many of you have asked about transplant... under normal circumstances, that would absolutely be the next step, but the conversation about transplant in the presence of cancer, is very messy, scary, and not clear cut... well, it is clear cut, but must be approached with a very healthy discussion about the risk-benefit ratio. We have been beyond humbled and blessed by people reaching out and saying they wanted to donate a kidney to Andrew... can we just pause there... I don't know that there is anything more humbling, transparent, and sacrificial (outside of Jesus dying for our sins) than someone willing to sacrifice their own comfort/well-being for the sake of our boy's life. I wish it was that easy, that a transplant would solve Andrew's problem of failing kidney's, but the fact that he has underlying cancer makes it a super risky and controversial proposition. The criteria for eligibility for transplant is 2 years cancer free... for him to be "cancer free" would be a miracle in and of itself. At this moment, he has two tiny spots (smaller than the tip of an eraser on a pencil) still lighting up (that's a 90-95% reduction in tumor burden..... that is amazing.... to God be the glory), so he still "has cancer"... although Andrew's Dr in Denver looked at his images and said that he can't really see anything and that he would say there was no evidence of disease (that classification means that nothing is visible on imaging, but leaves the interpretation open because we all know full well that there can always be tiny metastases hiding somewhere that isn't big enough to visualize at this point). The risk of giving someone who has active cancer a kidney is that the immunosuppressive drugs needed to prevent the body from rejecting the new kidney, can create a breeding ground for cancer (you are turning the immune system off). If the cancer starts to grow, you have to stop the immunosuppressive drugs and that puts you at risk for rejection of the new kidney. Worst case scenario, you are left with progressing cancer and a rejected kidney.... that's a bad deal! Our team of Dr's plan to meet to discuss the risk/benefit ratio of the transplant conversation, so will you please, please, please pray for wisdom for Andrew's team of Dr's and for our family?!?! </p><p>I'm not going to lie... a lot of tears have been shed this week because of the uncertain future for Andrew and our family... I literally can't even fathom how this next leg of the journey even works out, it's like I'm standing in front of an insurmountable mountain... I'm intimidated, scared (mortified really), and weak in the knees looking at this mountain, but that's what a sherpa is for right? I know we have a good and perfect Sherpa leading the way, I just feel exposed and vulnerable as we prepare for this climb. As I was crying out to the Lord yesterday, He reminded me so clearly "remember, we have been here before..." He reminded me that we stood in front of a similar insurmountable mountain with Grace. Those of you that have been on this journey with us over the past almost 10 years, probably remember when Grace had a surgical complication after her third open heart surgery and found herself in the CVICU at Texas Children's on deaths door step and almost every medical professional around her giving up on the hope of her surviving. We questioned if we had heard God correctly (about taking a riskier road with the hope of a better long term prognosis by going to Boston Childrens) and feared that we may have literally killed our daughter. While the situation looked grim, God reminded us that He was still on His throne and He made a way where there was literally no way. We walked through a curling 3.5 months where Grace was life lighted back to Boston, our family was separated for too many months, Grace endured 2 more open heart surgeries, and required a crash cart more than once, but look at where she is today... God didn't remove the Red Sea, He parted it... He didn't remove our problem, but He made a way through it, carrying us all along the way. God's reminder spoke to this weary heart and served as a powerful reminder that He did it once and He can do it again. </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihBxfSRecsQ5UX7W-lbFEXTh0I2s9I2ICgCKbuYxqLze4etmVhE7ZI1xfvOqi8fbaLPU_VmD8PsAxiLypwZfmwZPiHIeeke-3Zws7UbJXa1SeC2gR7EIFBGSXFDUg8VnIbyp-lyjFErrQs0My3A5H-eiIaYPF-yTQxMVdozf04XmhyKDf2FvDRCwTJBQ/s1393/IMG_4332.JPEG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1393" data-original-width="1125" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihBxfSRecsQ5UX7W-lbFEXTh0I2s9I2ICgCKbuYxqLze4etmVhE7ZI1xfvOqi8fbaLPU_VmD8PsAxiLypwZfmwZPiHIeeke-3Zws7UbJXa1SeC2gR7EIFBGSXFDUg8VnIbyp-lyjFErrQs0My3A5H-eiIaYPF-yTQxMVdozf04XmhyKDf2FvDRCwTJBQ/s320/IMG_4332.JPEG" width="258" /></a></div><p>Prayer warriors- we need you in the biggest way... I thought cancer was our Goliath, but now it's like we have two Goliaths determined to crush us. One thing I know about Goliath is that God used David, a small, shifty, nimble, expert slinger, brave as all get out, selfless boy to defeat a giant because what others saw as a disadvantage, God used as an advantage that ultimately took down a giant. We serve a miracle working God, so we are begging you to please join us in hitting the floor in prayer for wisdom and deliverance from cancer and end stage renal disease on this side of heaven. </p><p>Please pray for Andrew's (and the rest of our family) peace, resolve, and hope (in the One that doesn't disappoint) through this new battle and that God would do what only He can do (heal and restore Andrew fully and completely on this side of heaven). Please pray that we continue to do ALL things in His strength and for His glory! </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUU8nsbA_pboN5etUN1sKP7bGXOeAXV9cDM3r9ZuvhluLZelUnt6aW-li12l1dWsEJBsWDWqe7Xsfj06Ic-HvceA_vV9XM3plV_rg4sZmW0WXLaakMqukTBDcwZmoNozHskpw-01tE7sUlhSGsXvVO9P_Iix87149JfnkvoITfgSX2Q3uES0o9Pd2rsg/s1125/IMG_4381.JPEG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1015" data-original-width="1125" height="289" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUU8nsbA_pboN5etUN1sKP7bGXOeAXV9cDM3r9ZuvhluLZelUnt6aW-li12l1dWsEJBsWDWqe7Xsfj06Ic-HvceA_vV9XM3plV_rg4sZmW0WXLaakMqukTBDcwZmoNozHskpw-01tE7sUlhSGsXvVO9P_Iix87149JfnkvoITfgSX2Q3uES0o9Pd2rsg/s320/IMG_4381.JPEG" width="320" /></a></div><br /><p><br /></p><p>Thank you for standing with us, for loving us well, and for serving us in ways that only God knows we need! You are the hands and feet of Jesus in our lives and we literally thank God for you all day, every day! But God!!! We love and appreciate you!!!</p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhksqxrm8v6yBIry2cyxZycCE3hyAeUC8zqHIYYbT1YuSV7BVEKuhVOcbd4Btu3iRMBxwURf9TfnQGVXW_Iqghn7VBtu_no0GHRhm3N4Z7Ak_V_orSSruRb1wzCZjkK0rd1eaoli3zzbJXKYJ6Tho0KEGturXM5jhFV4Zdn1lWdUMOtJFGYEpevC_Eyew/s1279/social++1260047678.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1279" data-original-width="782" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhksqxrm8v6yBIry2cyxZycCE3hyAeUC8zqHIYYbT1YuSV7BVEKuhVOcbd4Btu3iRMBxwURf9TfnQGVXW_Iqghn7VBtu_no0GHRhm3N4Z7Ak_V_orSSruRb1wzCZjkK0rd1eaoli3zzbJXKYJ6Tho0KEGturXM5jhFV4Zdn1lWdUMOtJFGYEpevC_Eyew/s320/social++1260047678.jpeg" width="196" /></a></div><br /><p><br /></p>The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com1tag:blogger.com,1999:blog-3515728319081642483.post-1996206258513035672021-10-17T23:08:00.003-05:002021-10-18T06:16:47.978-05:00Looooong Over Due Updates!<p>Wow... I almost forgot how to access the blog, it's been so long since I've posted an update. My lack of posts isn't a result of a lack of excitement in our lives or a lack of thought for y'all, our faithful prayer warriors, but instead an answer to prayer that, as it often does, came in a way that I didn't expect. I have been praying about having God honoring balance in my life as I strive to juggle being a wife, mom, work, ministry, etc at this stage of our life. I'm keenly aware that each day is a precious treasure, an opportunity to see God's hand in the details of our day, and to be used by Him to positively impact the lives of those around us. I've been especially prayerful about being purposeful with every minute, so as not to miss the joy of every stage that we are in with the kids... you see, so much of our lives has been spent in survival mode, where life feels like it's moving a mile a minute and it's absolutely God's grace that allows us to survive and thrive while in survival mode, but I don't think we are meant to live in that place forever. I think the reality of Abby starting high school and Andrew starting junior high (which I purposefully never allowed myself to think that far in advance because of the timeline the Dr's gave us and all the unknowns that surround his future) has caused me to pause at the realization that time is flying by faster than I had appreciated while in survival mode. As we come up for air (while Andrew's cancer is stable and everyone is doing well), I want to relearn how to prioritize my life in a way that honors the Lord. All that to say, God's answer to that prayer was taking away the desire to engage with social media. It's not like I made a commitment to push pause on the use of social media or something like that, I just literally lacked the desire to post on the blog, look at Facebook or Instagram, etc. I realized that the pivot in my heart was God freeing up time and attention that could be better allocated. The result has been such a sweet time of recalibrating how I pour into my first ministry... my family. Look, this wasn't some radical transformation, especially since I didn't spend much time on social media to begin with, but it's been pretty amazing to see how the Lord changes our heart, He changes our focus, and our "wanter" to align with His when we ask and fully submit it all to Him. That was a long explanation as to why it might appear that I've been less present here, but please know that we continue to covet your faithful prayers and support. </p><p><br /></p><p>Here is a rapid fire update on the Rosslings:</p><p><br /></p><p><b><u>Abigail </u></b> </p><p>-She has finally made it over 5 feet tall... she was projected to be 4' 8"-4'10" and has been hopeful that she would make at least 5 feet and she made it! To be clear, Abby knows full well that God doesn't make mistakes, so no matter how tall she turns out to be, she is prepared to rock it and she actually likes being small and mighty.... for soccer purposes, she has always hoped to be at least 5 feet tall. </p><p>-Grace's favorite time of the day over the Summer was when Abby would tutor her. Abby would spend between 30 minutes to an hour and a half every day tutoring Grace in math, reading, and writing. We love that she takes her role seriously, desires to help Grace grow, it's sweet bonding time for them, and it's a great way to make money. Abby always saves her money and ends up spending it randomly on other people, which is a quality I admire about her.</p><p>-After much prayer, Abigail decided to apply and was accepted to Episcopal High School, in Houston. There are a million different reasons why we didn't think Episcopal made sense for Abby (and our family), but God sure did change our hearts and make a way where there didn't seem to be a way. So far, Abby loves it and we continue to be blown away by how amazing and purposeful the teachers, coaches, and administrators are. </p><p>-Abby's note to Grace during baseball- Grace played baseball with the Dream League and it was quite possibly the best sporting event to watch of all times. Kids with special needs are paired with a "Buddy" (Andrew was Grace's buddy) and they play games on Saturdays. Everyone cheers for everyone and the kids have an absolute blast! Grace took her baseball games super serious and talked about them allllll week. For her final game, Abby couldn't make it because she had soccer that conflicted, so when Abby told her she wouldn't be there the night before, Grace lost it. She was SO sad that her Sister Buddy wouldn't be there to cheer for her on her last game and Abby was absolutely crushed seeing Grace so hurt. She would explain the situation as Grace was being unconsolable and Abby felt absolutely awful about it. She did what only Abby would do.... after putting Grace to bed (David and I were out that night at an event), she made her her favorite pancakes to eat before her game in the morning, she posted little post it notes all over the house encouraging Grace, and she typed her up the sweetest note. </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvQpjupvaJeDcJEO8QQq3cT74ZxJK2gBTPs5y4PZyTfc2zykarX-DlY4w1PEMgqaADiDI2duBlO8lCdhAaXy1bthClohTRvBP8x9JNC59_e3WWsxfsGXxV58St7OLmRJ6tA76rBvDE3W8P/s3260/FullSizeRender-preview.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3260" data-original-width="2127" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvQpjupvaJeDcJEO8QQq3cT74ZxJK2gBTPs5y4PZyTfc2zykarX-DlY4w1PEMgqaADiDI2duBlO8lCdhAaXy1bthClohTRvBP8x9JNC59_e3WWsxfsGXxV58St7OLmRJ6tA76rBvDE3W8P/s320/FullSizeRender-preview.JPG" width="209" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtAaEaIXuMoEXU7XCSoPoQaYR4zYkYhRvLdQbvyNykXTnERw4fy1AOqfB9zamd0GODC6IWuArT5OAPubTCUKbL2YuByNGLeW-9ugOWHt5QS0pv7bjtfW7_8ln627-85y2LECYR_guFegk0/s2048/IMG_1079-preview.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtAaEaIXuMoEXU7XCSoPoQaYR4zYkYhRvLdQbvyNykXTnERw4fy1AOqfB9zamd0GODC6IWuArT5OAPubTCUKbL2YuByNGLeW-9ugOWHt5QS0pv7bjtfW7_8ln627-85y2LECYR_guFegk0/s320/IMG_1079-preview.JPG" width="240" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQ12U1lBchyZpIrdw29VH0JIUeQQ6vBhGh8XiRKi5si_uGpJq2GHZzAXtX7sSm4gvUtiA47Dp4x2ckEYPYS9Ol51LoN1z7WvJfHkPECkdpfIhF5lsbZLjW6yGwwIZ1mIP_CvibjvKVwsKN/s4032/IMG_1081.jpeg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQ12U1lBchyZpIrdw29VH0JIUeQQ6vBhGh8XiRKi5si_uGpJq2GHZzAXtX7sSm4gvUtiA47Dp4x2ckEYPYS9Ol51LoN1z7WvJfHkPECkdpfIhF5lsbZLjW6yGwwIZ1mIP_CvibjvKVwsKN/s320/IMG_1081.jpeg" width="240" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicCYxxo04bHV1GtfBXrKtEpBAQToqFl4cU5Lkigi-kvgh6MGJaNwNvugUJuhSd3-M87r6XbqfVnxnAnUfqOCn_gj2b8_stnj65xR7xlT5TU8ZeAR67C5N2RuA3vJzOGrlvSnRED7awgujr/s4032/IMG_1082.jpeg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicCYxxo04bHV1GtfBXrKtEpBAQToqFl4cU5Lkigi-kvgh6MGJaNwNvugUJuhSd3-M87r6XbqfVnxnAnUfqOCn_gj2b8_stnj65xR7xlT5TU8ZeAR67C5N2RuA3vJzOGrlvSnRED7awgujr/s320/IMG_1082.jpeg" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><p>-Soccer continues to be Abigail's happy place and we have had to begin really talking about colleges, which seems so crazy. She went to a couple soccer ID camps this summer at Vanderbilt University and Texas Christian University; had the opportunity to play in a showcase tournament in Florida where more than 800 college coaches were present; went to a regional ODP training/games in Tennessee (consisting of 11 different states); attend a team camp at the ranch home and property of one her teammates in Jonesboro, TX; began training with Albion (her club team) at the beginning of August; and lastly, last month Abigail had the opportunity to head to Dallas for the day to attend a Youth National Team Identification center training that she was invited to be a part of with 28 other girls from Oklahoma and Texas who were also born in 2007. Next up, we are super excited for school soccer to start next month! </p><p><b><u></u></b></p><div class="separator" style="clear: both; text-align: center;"><b><u><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7qnoZp45U_JzBWIW5-CMVuIOd8JMBAdR4A8ywzSNp92uv1KkQBGvbMEh-zTzI30FYCuqULuYdP_Rq6cazxw5t0mtambCkSLlWVUAUrqQDyM61ApdmM7rs_EAr4dSX3T-RhET6c0Aji94E/s1309/IMG_0651.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1257" data-original-width="1309" height="307" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7qnoZp45U_JzBWIW5-CMVuIOd8JMBAdR4A8ywzSNp92uv1KkQBGvbMEh-zTzI30FYCuqULuYdP_Rq6cazxw5t0mtambCkSLlWVUAUrqQDyM61ApdmM7rs_EAr4dSX3T-RhET6c0Aji94E/s320/IMG_0651.jpg" width="320" /></a></u></b></div><b><u><br />Andrew</u></b><p></p><p>-Andrew's recent scans revealed a 90-95% reduction in tumor burden! It seriously feels like a miracle and we can't stop praising the Lord for, again, making a way where there was no way! There are four spots that still light up on imaging (active tumors), so we have an appointment with Dr. Liu, oncology surgeon in Denver, CO that specializes in Neuroendocrine Cancer, to see if it's a possibility to go in and remove those four tumors. He is an adult Dr, so that could be a stumbling block, in addition to the fact that we don't know how accessible the tumors are, but we are trusting God to align our steps with His will. <b>Will you please be praying for our virtual appointment on Tuesday? We would covet your prayers for wisdom and open doors to eradicating every cancer cell in our sweet boys body! </b>THANK YOU for always standing with us in prayer!!!</p><p>-Another HUGE praise and honestly, a blessing that feels of miracle proportion... Since Andrew's most recent (investigational) treatment, he is off of all pain medications! Many of you remember that Andrew used to be on 11 different pain meds around the clock, and yet, he would still have break through pain. We were talking about inserting a pain pump at one point... today, he is playing football for his junior high! This is his first time playing tackle football and he is loving it. Honestly, we are just thrilled that he is healthy enough to be able to play a sport that is so physical and requires a lot of work. A couple years ago, this would've been unimaginable, but he is doing great, wants to practice all the time at home, has such a teachable heart, and looks forward to it everyday. Proud and grateful is an understatement! </p><p>-Much of the confidence Andrew has right now, comes from F45, the gym where he worked out at the entire Summer. The owner of the gym and trainers who work there did a fantastic job pouring into these kids and really cared about their growth, physically, mentally, and in their character.</p><p>-Andrew continued to compete in obstacle challenges with his horse, Otto. He continues to grow in his ability to lead Otto through new obstacles that are terrifying for horses, especially Otto, since he used to work at Family Camp, where his job was to stay far away from anything that looked like an obstacle because he had precious cargo (unexperienced riders) on his back. </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7zjDEiqPa_NhtnuCApfk1Ym4cBmGGB2BbZThZkq6bu5dN-xP7DdFU78J5VN_oM_9g9zeyMzY4iTJ-cMaFZSux3Gn_N3aZkUsK-PQE37SYzmFaBwqkDh2rAWF8n8ip2t9ob2ASZQoLRZ_W/s4032/IMG_0501-preview.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7zjDEiqPa_NhtnuCApfk1Ym4cBmGGB2BbZThZkq6bu5dN-xP7DdFU78J5VN_oM_9g9zeyMzY4iTJ-cMaFZSux3Gn_N3aZkUsK-PQE37SYzmFaBwqkDh2rAWF8n8ip2t9ob2ASZQoLRZ_W/s320/IMG_0501-preview.JPG" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div>Andrew was sitting in a little compartment of the trailer eating his sandwich and Otto was very intrigued with Andrew's food.<br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikJ6hyEEbFNfZyFC9sxE2yBQ6nHsFohYVzthOGkX5R7hkZ6NnYI656ZJC0IegiNGi_n-17QhwtSjkzCxcGdWNgQhJSObSJFfzKfmXvcpP-9pCcCqWU1T-GaUmrf34qt6FtkWMFTHxJ52nL/s2048/FullSizeRender-preview+4.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikJ6hyEEbFNfZyFC9sxE2yBQ6nHsFohYVzthOGkX5R7hkZ6NnYI656ZJC0IegiNGi_n-17QhwtSjkzCxcGdWNgQhJSObSJFfzKfmXvcpP-9pCcCqWU1T-GaUmrf34qt6FtkWMFTHxJ52nL/s320/FullSizeRender-preview+4.JPG" width="240" /></a></div><p><br /></p><p>-Over the Summer Andrew earned money by tutoring Grace on the Bible. He was absolutely, positively, amazing at breaking down scripture for Grace (drawing pictures, acting it out, whatever it takes to get her to understand), and preparing her to come and tell us what she learned. </p><p>-This Summer was a great opportunity for Andrew to attend a youth camp with some friends at their church. Andrew had a great time, met some new friends, and was able to grow in his understanding and relationship with God. Since this Summer camp, we have been praying as a family about which junior high school is the best fit for Andrew (public or the private school that Abby went to for junior high). Andrew really felt called to go to public school and we totally supported that (nothing like seeing your kid seek God's will and watching them listen to His leading). The first 9 weeks have been fine and football has certainly been a highlight, but God continues to stir in him (and us) the possibility of pivoting to private school. <b>Will you please join us in praying for wisdom as to where God is calling Andrew, as it relates to school, and that whatever He calls us to, that He will fling the door wide open and work out all of the logistics? </b>We just all want to be in the center of His will!</p><p><b><u><br /></u></b></p><p><b><u>Grace</u></b></p><p>-Grace turned 9 at the end of August!!!</p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcCMvlDtEwOKVf2wGeNdOBqG1ZT7bDT5lYNxass7J65gB-GL-1nvZUtpEFTX0vRkneezXDOdpFgekSwa-JEzzXO8co6CfShUyFRra_3Yx00k4JCZjypEliG1o4-2Dsuw0BoafmIo1j0Qsn/s2048/IMG_4674.HEIC" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcCMvlDtEwOKVf2wGeNdOBqG1ZT7bDT5lYNxass7J65gB-GL-1nvZUtpEFTX0vRkneezXDOdpFgekSwa-JEzzXO8co6CfShUyFRra_3Yx00k4JCZjypEliG1o4-2Dsuw0BoafmIo1j0Qsn/s320/IMG_4674.HEIC" width="240" /></a></div><br /><p>-Grace is LOVING school and is especially excited about her school play in December! She even has a speaking line!</p><p>-One of the many ways Grace ministers to us (and so many others) is the way she sings loud and proud during worship at church. It is truly amazing to watch her! </p><p>-Grace is looking forward to staring cheerleading again. She will start back up in a few weeks, once Andrew's football games are over because she takes her role as Bubba's #1 cheerleader SUPER serious and wouldn't miss his games for the world. She is also super excited to start basketball and baseball (again) in the winter. </p><p>-Some of my favorite Graceism's... on our way to school in the morning, we pray together and talk about what God is up to in our lives. Grace will often times look at the sky in "awe" and say "God paints such a beautiful sky!" or "God is fantastic!" When we arrive at school for drop off, the precious kids that open the car doors to let the kids out of the car rider line all hope they get our car because they so badly want to be the one that get's to let Grace out of the car. When we pull up to the open spot, the child often times cheers and jumps up and down with joy, simply because they "got Grace!" I feel like a celebrity just getting to be Grace's chauffeur (LOL). Then, she always turns around and we say our little ritual and then she does our "I love you" sign with her fingers and yells "I LOVE YOU" until I drive off. Every. single. morning, I drive away feeling blessed waaaay beyond what I deserve. </p><p>-Tomorrow, October 18th, Grace has her semi-annual cardiology appointment and echocardiogram. <b>Will you please pray her heart continues to look healthy and amazing (that little heart is so far from "</b><b>normal, but beyond amazing) and that there are no complications at all? </b>We know that she will outgrow her mechanical heart valve at some point and need it replaced, what we don't know is when. Thank you for your prayers, these appointments come with echoxiety instead of scanxiety, so we appreciate you presenting our Gracie girl before the throne of grace. </p><p><br /></p><p><u><b>David</b></u></p><p>-Went back to work as the College Counselor/Student Advisor at the Tenney School which allows him the opportunity to car pool to and from school everyday with Abby. What a sweet blessing for these two to have uninterrupted time together. </p><p>-David had arthroscopic surgery on his knee back in May in order to fix another meniscus issue; however, somehow he now has some a spot of fractured cartilage in the same area on his knee. Doctor said definitely no more soccer or running, so David has a second opinion on Wednesday and is hoping for something miraculous. <b>Will you please pray for options, wisdom, and healing? </b>As most of you know, David is a very active guy (loves running the Snowdrop race, playing soccer, and all the things), so the thought that he won't be able to do the things he loves is pretty devastating. His biggest hope is that he can at least get to a point where he can kick the ball with Abby again (planting his foot to shoot is not an option at this point). Thank you for covering him in prayer!</p><p>-David and I began helping to lead Refuge, the college/young adult ministry at our church. It has been a tremendous blessing for us to have this opportunity. We get to learn from them and grow in our faith alongside of them. It has been so awe inspiring to watch God move in the next generation!</p><p><br /></p><p><b><u>Kristi</u></b></p><p>-Work is busy, but great! </p><p>-Helping lead refuge. LOVE those young adults!!!</p><p>-LOVING my job of being a cheerleader for the kids at soccer, horse, football, baseball, cheerleading... ALL THE THINGS!!!</p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdcH8HVKruj4rmuFW2WWFv74WpcgbaarYksoL5TzGMT0MxnKfI3AP_b_VS64rzeQnPfmvf4gBd6Dvf_6LbB35SIK0XkIJgshtI4QsEZzmcZfu7Ty0lUTXnFkvUaOGoc5SupH7zsKI4N9lt/s1125/IMG_1666.jpeg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="723" data-original-width="1125" height="206" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdcH8HVKruj4rmuFW2WWFv74WpcgbaarYksoL5TzGMT0MxnKfI3AP_b_VS64rzeQnPfmvf4gBd6Dvf_6LbB35SIK0XkIJgshtI4QsEZzmcZfu7Ty0lUTXnFkvUaOGoc5SupH7zsKI4N9lt/s320/IMG_1666.jpeg" width="320" /></a></div><br /><p><br /></p>The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com0tag:blogger.com,1999:blog-3515728319081642483.post-45685313806479826062021-01-18T12:06:00.000-06:002021-01-18T12:06:45.893-06:00God's Fingerprints...<p>As I'm typing, Abby is at soccer (where she spends much of her time) and Andrew and Grace are dressed up (Andrew is the Sherif and I'm not certain what Grace is.... she has on googles, gloves, a nerf gun, and is carrying around a stuffed horseđ¤) and playing make believe. It's like a real life Toy Story episode and my mama heart loves it on so many levels. The fact that the kids love playing together, everyone is healthy enough to play together like "normal" kids, and that in my feeble efforts to practice "resting" (more on that in a minute) I'm able to quiet my heart and mind enough to see God's hand at work right in front of my eyes. </p><p style="text-align: center;">I didn't get a pic of those two playing dress up, but here they are while on vacation... Grace smothering her Bubba with kisses. Abby always wants to hug him too and while he acts too cool much of the time, I know he loves being deeply loved by his sisters. </p><p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEik_EMuRP91rP9LVqUn0jIDJ35umq_SnjT3lEmQUnIiCdcifNFryw9xEIAvE8C-d1nV9TciPwJEi6-osCnR3iEDwcRNxA-Ib8Q4gG2w5Vj09jM1h3FxV8kt09U5wqipEi-c417Y7j4U07_w/s2048/0EBDE881-5BDF-42C4-B20D-6CA879159570.jpeg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1781" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEik_EMuRP91rP9LVqUn0jIDJ35umq_SnjT3lEmQUnIiCdcifNFryw9xEIAvE8C-d1nV9TciPwJEi6-osCnR3iEDwcRNxA-Ib8Q4gG2w5Vj09jM1h3FxV8kt09U5wqipEi-c417Y7j4U07_w/s320/0EBDE881-5BDF-42C4-B20D-6CA879159570.jpeg" width="320" /></a></div><br />Since my last post, Andrew had his 3rd treatment, we ran the Snowdrop 55 Hour Relay Race, had an amazing Christmas (thanks in large part to our Candlelighter's family), went on our first family ski trip to Park City, Utah, and now we are gearing up for Andrew's 4th, and Lord willing, final round of the investigational radiation treatment. I would hope to share a couple quick updates and prayer requests, that I pray will be an encouragement to you as we all continue to navigate these CrAzY and uncertain times. Let me start by saying that one benefit of knowing suffering very intimately is that you know, that you know, that you know, no matter how uncertain times are, we serve a God that is certainly (and consistently) good... He only knows how to be good... He can do all things, but fail (I love that song by CeCe Winans called Never Lost), so we can trust that our pain is not in vain. Here are a couple ways we have seen God's hand in the details of this holiday season:<p></p><p><br /></p><p>1) The Snowdrop 55 Hour Relay race was virtual this year, but somehow it was just as amazing as the actual/live race... different, but equally as amazing. We so missed the power of the Snowdrop community as you slug it out on that course with hundreds of others that are also pushing their bodies to its breaking point, with the visual and mental pictures of all the kiddos that are battling or have fought the good fight with cancer and when you want to give up or slow down, you remember all that these kiddos have to endure and they don't have the choice not to, they don't have the promise that after 55 hours their pain will be relieved, there is no medal... they are literally in the fight for their life and cancer will change their lives in every way (and their family's lives) forever. We obviously know this reality first hand because we live the battle, but it is not lost on us that it is an incredible gift that so many precious friends choose to spend their New Years running this race in Andrew's honor While we were only 40 runners total for our virtual race this year, our Andrew's Army teams and Team Gabi brought the heat and the fun. Our fast team (which David and Abby ran on) had a goal of 350 miles total and they crushed that goal, totaling 380 miles! Our other two teams also logged some impressive mileage (about 250 miles each) and it was awesome to have so many friends on the course at all times (since it was right in our neighborhood) and we had a super fun New Year's Eve celebration as we cheered on the runners that closed out the race at midnight. Here is another way God showed up and showed off... this is the first year that Andrew was well enough to actually run on a team. Last year he joined us for a couple runs and crushed 5 miles total, that was such a huge accomplishment. This year, I ran the first hour shift with him and he was going hard and quickly realizing that his body was already hurting, getting sore... I explained to him how that's part of the power of the race, we all know that our bodies are going to break down along the way and the sleep deprivation will mess with you, but we count it as an honor to demonstrate grit, enduring the pain as a way to honor him and other kiddos battling cancer. In essence I told him... this is just the beginning of the pain, so you have to make a decision if you are going to lean into it or let it control you. That was the last time he even mentioned pain or fatigue... he ended up running 21 MILES total!!! He would have run more if he had the opportunity. That is all God! Abby and David both ran 38 miles, and I ran 31 miles. The 2020 race is one that I will never soon forget. </p><p><br /></p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-Qmlb0aWspttVrGHdLrHLqtsL0YVQ5EDo8npUQ6ywPVt5BBHlXRqBjrl53d_2lSm0NOOdBMo6dkVfajELIEknQr_qbTTyhUpUwOvnCg8yWqUs0TJou0GR-afPtB6g5HRxYAPjkS12Jy-9/s1280/48D7E4AB-8A98-4F38-AF3A-DC08AF324588.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="960" data-original-width="1280" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-Qmlb0aWspttVrGHdLrHLqtsL0YVQ5EDo8npUQ6ywPVt5BBHlXRqBjrl53d_2lSm0NOOdBMo6dkVfajELIEknQr_qbTTyhUpUwOvnCg8yWqUs0TJou0GR-afPtB6g5HRxYAPjkS12Jy-9/s320/48D7E4AB-8A98-4F38-AF3A-DC08AF324588.jpeg" width="320" /></a></p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj924c-A4JWswHYvNPt9m-lmSQS2bhNT9-BUIy3Hb5EinB1eNYtu-fXhN99NIbfQxdZJCPg4C_3i0cdeJeAx-ba8iBFz1oVTPPyekMAhUpPdYt2Kc96UGaVGyyPBkM3zGK8PGpEnxaNdWdN/s2048/0FA7C38F-9BE4-4345-AB3D-8C6A9A0444C2.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1536" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj924c-A4JWswHYvNPt9m-lmSQS2bhNT9-BUIy3Hb5EinB1eNYtu-fXhN99NIbfQxdZJCPg4C_3i0cdeJeAx-ba8iBFz1oVTPPyekMAhUpPdYt2Kc96UGaVGyyPBkM3zGK8PGpEnxaNdWdN/s320/0FA7C38F-9BE4-4345-AB3D-8C6A9A0444C2.jpeg" width="320" /></a></p><p style="text-align: center;">All three of us kicked off the race by taking the first hour shift. This is where Andrew realized that this was going to be much harder than he had anticipated, but decided to lean into the pain and embrace the challenge wholeheartedly. Andrew and I ran 5 miles this first shift, that's the total number of miles he ran in last years race. Abby would just pass us over and over again (she would crush 7+ miles each shift), we cheered her on every time we would see her and Andrew started to realize just how hard his sister pushes herself in his honor. It was a very special moment to see Andrew's eyes be open in so many cool ways. </p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjw1BY34Hu-h6YD_x-0gZ8-6i1rVU2_xcWs9w9nZheuLFxlPDHHGBZlo6-e_5tXcKU6HgskhDYCYpjQt0mj717NXpW2HYUKXoiLE2JSHQwI9NkVa1Q2URy4Z_bhTRQaHQ8n9vU0bFSxgrJA/s2048/00282828-8FF9-486B-AF1A-66E787C5616C.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjw1BY34Hu-h6YD_x-0gZ8-6i1rVU2_xcWs9w9nZheuLFxlPDHHGBZlo6-e_5tXcKU6HgskhDYCYpjQt0mj717NXpW2HYUKXoiLE2JSHQwI9NkVa1Q2URy4Z_bhTRQaHQ8n9vU0bFSxgrJA/s320/00282828-8FF9-486B-AF1A-66E787C5616C.jpeg" /></a></p><p style="text-align: center;">One of our favorite traditions... our 2 am run in the middle of the night!</p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgC6uj9QDejVl0Z_YQfliFDlKiViggextnYtLBYzJxWRaWssKYRJQ1q0FvcA8hGPI26SaL1gOMN7q-VMfJDIL5WIdmGHyuPj05K5yeWfnrnKx8HtAPQ0D73GQWF_h8B3OTYIqoc4SnewYK1/s2048/A39A303E-F76F-4A48-880C-E0A78C9896BA.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1762" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgC6uj9QDejVl0Z_YQfliFDlKiViggextnYtLBYzJxWRaWssKYRJQ1q0FvcA8hGPI26SaL1gOMN7q-VMfJDIL5WIdmGHyuPj05K5yeWfnrnKx8HtAPQ0D73GQWF_h8B3OTYIqoc4SnewYK1/s320/A39A303E-F76F-4A48-880C-E0A78C9896BA.jpeg" width="320" /></a></p><p style="text-align: center;">Couldn't have been more proud of this guy... he pushed himself HARD for all five of his one hour shifts. He ran with David in the middle of the night and brought one of our dogs, Emme, with him because the meds he's on can make his already very vivid imagination even more vivid, so the dark is not his friend to say the least (Emme gave him a sense of security). Since David was running on the fast team, they didn't run together, but they would run by each other often. </p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhf7N2CetY8sxXnGZIlG9kX0Czpm05TZ0U1Cwb0KvTTozBm8K7d6vOanMP-kmLHSFcZxBPquoDkObvfKSuQmPAF5m21wdUMvcZgjV6n9oJiIHwnW8gj0UwHsANQqQODvXCf-c3KylXt3nR4/s2048/E47E8A83-83D4-4407-AA89-DBBBAB161F50.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="2048" data-original-width="1396" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhf7N2CetY8sxXnGZIlG9kX0Czpm05TZ0U1Cwb0KvTTozBm8K7d6vOanMP-kmLHSFcZxBPquoDkObvfKSuQmPAF5m21wdUMvcZgjV6n9oJiIHwnW8gj0UwHsANQqQODvXCf-c3KylXt3nR4/s320/E47E8A83-83D4-4407-AA89-DBBBAB161F50.jpeg" /></a></p><p style="text-align: center;">Grace was the best cheerleader EVER! She has endless high fives and encouraging words to give! </p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaljubszrqhyphenhyphenSA4HTVfUUXcZtqpPYuL3v3xRHqsN-IvBeR5tQtaD-PzOpCJU3vq0sbhPC72xOmFuzYUo2KjSXqdqvmZqvLiDG4T9qik13arOc24XP_7AbFyo-dfIxE45yA13dmsFJStMgu/s2048/0937F861-EE79-463D-B391-B967A2FCB195.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1623" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaljubszrqhyphenhyphenSA4HTVfUUXcZtqpPYuL3v3xRHqsN-IvBeR5tQtaD-PzOpCJU3vq0sbhPC72xOmFuzYUo2KjSXqdqvmZqvLiDG4T9qik13arOc24XP_7AbFyo-dfIxE45yA13dmsFJStMgu/s320/0937F861-EE79-463D-B391-B967A2FCB195.jpeg" width="320" /></a></p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjh0l4tMTiK2iYHwW4Q_fp-kvWMODnrpOs4Ws70V6Al0wFFCQWhTphP0yTaPxA2W5LuTurwe4r8aFdYxlW3Rj9M3YejqS4dd4dsV39t3tJvt5Os3xty2B0wfv-E1Wn6yiFCWVJtV4Uoz6rp/s1009/C4EFD53A-8DC1-4D09-B638-39A9D4B831B9.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1009" data-original-width="972" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjh0l4tMTiK2iYHwW4Q_fp-kvWMODnrpOs4Ws70V6Al0wFFCQWhTphP0yTaPxA2W5LuTurwe4r8aFdYxlW3Rj9M3YejqS4dd4dsV39t3tJvt5Os3xty2B0wfv-E1Wn6yiFCWVJtV4Uoz6rp/s320/C4EFD53A-8DC1-4D09-B638-39A9D4B831B9.jpeg" /></a></p><p style="text-align: center;">We are missing a bunch of teammates in this pic, but we adore and appreciate every last one of them. We are also incredibly grateful for the always SO generous shirt sponsors... GURU, JUPITER, and JAPANEIRO'S!!! These are three of our favorite restaurants because it is great food owned and operated by great people, but now more than ever.... let's support small businesses as they try to keep their doors open and serve their customers with excellence despite an impossible situation with this crazy pandemic. </p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPTqb2gVe3fqr6h7O8hh4_KWbyz8W-JrvP0uTbqkF-E5ruz6F0wR90a4pr_UKbkeBWwG-f0db4L8jY5UiecoeknNi-syY-etVG9S3_TvtGtcLXWjrPQoEDpBqtIiblZ6Dc15_VSc102NKI/s1440/10F08E42-E54D-4E70-957C-D23281CB9020.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1440" data-original-width="1440" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPTqb2gVe3fqr6h7O8hh4_KWbyz8W-JrvP0uTbqkF-E5ruz6F0wR90a4pr_UKbkeBWwG-f0db4L8jY5UiecoeknNi-syY-etVG9S3_TvtGtcLXWjrPQoEDpBqtIiblZ6Dc15_VSc102NKI/s320/10F08E42-E54D-4E70-957C-D23281CB9020.jpeg" /></a></p><p>2) The kids Christmas gift was a ski trip to Park City, Utah. They have always wanted to go skiing and we have just put it off for multiple reasons... number one, we wanted everyone to be healthy enough to go and we always worry about Grace's heart at an elevation. We would never live at a high elevation because it just requires Grace's heart to work harder and that could be risky, since that wonky heart of hers doesn't work like a "normal" heart. Her Cardiologist gave us the green light to travel to an elevation and just encouraged us to keep an eye on Grace to make sure she acclimates ok, which is no problem because we always travel with our pulse ox (to measure her oxygen saturations) and check to make sure her gums are pink, cap refills are good, she's not retracting when breathing, etc. We were originally suppose to go to Breckenridge, CO, but changed locations because of all of their covid restrictions. We ended up going to Park City, UT and it wasn't until we were home that we learned that UT has a significantly lower elevation than Breckenridge, making the change in our plans a great one (but God). All that to say, Grace's heart didn't have any problems and everyone was safe and healthy (praise the Lord). Grace had her own one on one ski lesson everyday through the National Adaptive Sports organization; it was not cheap, but money well spent. Grace fell in love with skiing and fell in love with Little John, her instructor. Little John took Grace on the big ski lift and down mountains that felt like Mt Everest to me (in terms of Grace going down them) and she killed it. They took breaks for snow balls fights, to sit and chat, and to build snow castles. The big kids wanted to be the first and the last on the lift everyday (we skied for 4 days) and I was reminded that while David's waaaaay to daring antics stress me out, we are a good balance because he was able to take the kids on runs that they were totally ready for, but outside of my comfort zone for them. David would take them to do things that would scare me, while Grace and I had play dates in the afternoons on the bunny slopes and then the kids would be so excited to show me all they learned and the blues they were skiing with David the day before. What a treat to have had a morning to ski with just David and a lot of time for David and I to ski with just the big kids (while Grace was in ski school). Our evenings were relaxing as we played family games by the fire (and Grace was Grace... cracking us all up) and mornings were spent doing a family devotional with the most glorious view. While we went hard during the day while the lifts were open, the purposeful time of relaxation was a gift I didn't even know I needed. </p><p style="text-align: center;">Our view (pic does not do it justice... at all) during our morning family devotions...</p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjjltqsBDN0wEoYWJwtX5pUAEfXBypnRunYmnXMpltmSGEGQc0pPooHPW7UBysdgCcwqCoYbeZMZALVAdpyczWd8AniY9j8XpvMMD3BrTEMmltTZ8Wrt34m_N-NX53T3YPOXOQbiGdhcLh/s2048/71EA908A-8BF5-4410-AB19-37B9E515BEBC.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjjltqsBDN0wEoYWJwtX5pUAEfXBypnRunYmnXMpltmSGEGQc0pPooHPW7UBysdgCcwqCoYbeZMZALVAdpyczWd8AniY9j8XpvMMD3BrTEMmltTZ8Wrt34m_N-NX53T3YPOXOQbiGdhcLh/s320/71EA908A-8BF5-4410-AB19-37B9E515BEBC.jpeg" /></a></p><p style="text-align: center;">We rode this gondola a bunch and it never got old... every time Grace thought it was like a ride at Disneyland.</p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirpW1mkivC-rWe2pwXR0GjHsdkQPh4ssLX7quOnTcvTekX2GCiL3gUhE3jEdeVIrgux17AdnhAHHWAO9W_X1Gt9U19Codar1PqnIrKlXyC4P6EyT_wlfSNq-RXCJLYfJsUbZNZdtoOo9KU/s2048/7EE8EB79-246D-48CA-B694-C92CC7582A48.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1536" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirpW1mkivC-rWe2pwXR0GjHsdkQPh4ssLX7quOnTcvTekX2GCiL3gUhE3jEdeVIrgux17AdnhAHHWAO9W_X1Gt9U19Codar1PqnIrKlXyC4P6EyT_wlfSNq-RXCJLYfJsUbZNZdtoOo9KU/s320/7EE8EB79-246D-48CA-B694-C92CC7582A48.jpeg" width="320" /></a></p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge7skq1LPrIEDbymIfCRnQZ6HleHr5PVokBiYV-AoPRzEdBuFNwbGUVSDV57_-PHXyAt-NsNPPkXDKNYD6_k-7NtfS-W-dmbhMyo7qObuDg4x4ccCOPmR3IwAyPvBXOLB6TXIatwGhtri_/s2048/9070C104-A275-4715-9C9A-1239104EF74C.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1536" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge7skq1LPrIEDbymIfCRnQZ6HleHr5PVokBiYV-AoPRzEdBuFNwbGUVSDV57_-PHXyAt-NsNPPkXDKNYD6_k-7NtfS-W-dmbhMyo7qObuDg4x4ccCOPmR3IwAyPvBXOLB6TXIatwGhtri_/s320/9070C104-A275-4715-9C9A-1239104EF74C.jpeg" width="320" /></a></p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZCLO8NyhyphenhyphennTgfVl6YEeRGl1e4I1EVRPUsRdmtX7fLzpcy5OshzOBRwpStAQztRn8-i02x_MB2jb-jzjqX5G6iPC1X1rMIECjYdBelaYQl7vtF7GwYG5ZqZDRQZYh6hsQhaTzRobAzqDRr/s2048/3A9840E9-FC27-4647-8E92-0E6A347522D6.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZCLO8NyhyphenhyphennTgfVl6YEeRGl1e4I1EVRPUsRdmtX7fLzpcy5OshzOBRwpStAQztRn8-i02x_MB2jb-jzjqX5G6iPC1X1rMIECjYdBelaYQl7vtF7GwYG5ZqZDRQZYh6hsQhaTzRobAzqDRr/s320/3A9840E9-FC27-4647-8E92-0E6A347522D6.jpeg" /></a></p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwgIyS5l7zWFLYySIvmW90teVs1P2yy3JvtElGIw5BgMsE24DKlJmgs8DRYhLJQLdP-yauhrbG5r_NiuHCdUxGUH-FZEjC8DaOTJByAgw2GfGQ7s8YOOz7-rd0MnriJxXcxF5RXjDcIzFd/s2048/CE867DBA-A828-445F-A94B-4C27D51B1E39.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="2009" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwgIyS5l7zWFLYySIvmW90teVs1P2yy3JvtElGIw5BgMsE24DKlJmgs8DRYhLJQLdP-yauhrbG5r_NiuHCdUxGUH-FZEjC8DaOTJByAgw2GfGQ7s8YOOz7-rd0MnriJxXcxF5RXjDcIzFd/s320/CE867DBA-A828-445F-A94B-4C27D51B1E39.jpeg" width="320" /></a></p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiayQGjBF8CeenSlZkImOH2hyU9THsv8ZWUTQ_T0JPNk5VgnQI1ykvQIaNkpr_zwABaz2GfjfB8U5HlNIm050RYB0DQWy80BGrfyXVkeq2p1QeZB9sCz-sOzPhYdksN-mTxuB0ABOALVj6n/s2048/23176C31-9FA0-4858-A3FA-622A159C93B6.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiayQGjBF8CeenSlZkImOH2hyU9THsv8ZWUTQ_T0JPNk5VgnQI1ykvQIaNkpr_zwABaz2GfjfB8U5HlNIm050RYB0DQWy80BGrfyXVkeq2p1QeZB9sCz-sOzPhYdksN-mTxuB0ABOALVj6n/s320/23176C31-9FA0-4858-A3FA-622A159C93B6.jpeg" /></a></p><p style="text-align: center;">Grace's snow alligator!</p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipMnWXn5mUFCyu6nW_GlGt_z1GTAKbrlgYWC53sM5iJpPnQ9QL-GhXfQLK_tle41aoKRaZ_Sr_zPefQS4fvsLUoRfjVM8VqzJFGmrO22izLYsOor0uG6OesLtg5q9d62uXmUG9H0SS6fn4/s2048/77E3A722-951C-4CF9-8BD6-2F868CF52DA6.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1536" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipMnWXn5mUFCyu6nW_GlGt_z1GTAKbrlgYWC53sM5iJpPnQ9QL-GhXfQLK_tle41aoKRaZ_Sr_zPefQS4fvsLUoRfjVM8VqzJFGmrO22izLYsOor0uG6OesLtg5q9d62uXmUG9H0SS6fn4/s320/77E3A722-951C-4CF9-8BD6-2F868CF52DA6.jpeg" width="320" /></a></p><div class="separator" style="clear: both; text-align: center;">Best vacation ever!!!</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwhvaFGGyfdV1RjdxJ9KSXqpZaiMtPqYYOgXmzQ02KO3nFhhg1debBOemE7W1aBexuicf3oERGhs7311GMaLAp__K4Kh-gMDdu8073Jor2fcLy_63GU5YcwJOEO-LB_FIK-qnP5grrTKF-/s2048/62476B5C-5A2C-4E93-976D-80E424BE63E8.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwhvaFGGyfdV1RjdxJ9KSXqpZaiMtPqYYOgXmzQ02KO3nFhhg1debBOemE7W1aBexuicf3oERGhs7311GMaLAp__K4Kh-gMDdu8073Jor2fcLy_63GU5YcwJOEO-LB_FIK-qnP5grrTKF-/s320/62476B5C-5A2C-4E93-976D-80E424BE63E8.jpeg" /></a></div><p>God has been talking to me about "resting" for a while now. I've realized that I don't "rest" well... at all... I don't watch tv shows (outside of soccer and football), movies, or read (outside of the bible, devotionals, or books on how to be a better wife, mom). While this might sound really righteous, it is absolutely not and I'm learning it isn't sustainable either. I've learned that this trait has grown out of a life spent in survival mode for the past 8.5 years. It has gotten to a point that I can't sit and relax because I feel like there is always something more "productive" that I could be doing. I want to be purposeful about every minute of my day, and while that is good, when it comes to pouring into my relationship with the Lord, David, the kids, and work.... it is equally as important that I'm purposeful about "resting" and allowing the Lord to renew my heart, mind, and body and not feel guilty about it. It's such a simple concept, after all GOD RESTED... He GAVE us a day of rest! If God did it and clearly provided it for us (He obviously knows our needs since He created us), why would I be so ignorant to think that I don't need it. Well, I've always known I need it, I guess I just forgot how to do it.... the enemy gets so loud and makes me feel like I am being lazy and am forsaking someone or something if I'm not always being purposeful and productive (my definition of purposeful and productive) with every minute of the day. I hear friends talk about binge watching TV shows/movies or reading all these books and it sounds like a foreign language to me, I can't even wrap my brain around how to build that into my life without being mentally tortured that I'm wasting precious time. God used our time in Utah to help me see how to purposefully "rest" and I'm trying to continue to apply those precious lessons. This is why I started this blog post, to acknowledge the beauty of listening to the kids play and soaking it in, instead of making a mental note of it, praising God for it quickly, and then moving on. </p><p>That last paragraph might sound crazy and hard to relate to, but it's what God is teaching me in this season of life and I'm trying to be a good student. Like all the lessons taught in God's classroom, it isn't easy because it confronts my self made principles and calls me to die to what I feel is right and noble and embrace what God says, even though it feels contrary to what I find rational... don't do what will help me to check items off my endless "to do list" and ease my fear of dropping a ball and instead, just sit and relax, letting my mind sit idle?!?! I'm discovering that prayerfully allowing myself to be idle (I like that word because it's not totally off/disconnected, but it's not moving one direction or the other either) allows me to see and appreciate His character on display all around us (we miss it if we aren't purposeful about seeing it) so much more. An image of His character that will forever have new meaning to me, is the awe of a snowflake. One afternoon in Utah, Grace and I were catching snowflakes on our gloves. As the snow fell, we were determined to catch the biggest snow "chunk" we could find, but it didn't take long before we started to notice these tiny, but awesome little snowflakes that fell right along with what looked like just chunks of snow. These snowflakes would fall on our gloves and sit there long enough for us to analyze them and marvel at the God who created them... not just a God that is creative and powerful enough to create something so fragile and yet with such intricate detail, but a God that cares so much for His people that He would want to create something beautiful just to bless us. It's not like we need beautiful snowflakes for survival (yes, we need snow that melts into water that ultimately serves as a major resource for our survival, but it doesn't have to involve beautiful snowflakes), I think He created them (and all the other beautiful aspects of His creation that we get to lay our eyes on) because it reveals something to us about Him... He is a powerful, creative, beautiful, gracious, and thoughtful God that cares about the details because it's in those details that He speaks to our hearts in a way that feels like a personalized love note. A note that reminds us He sees and He cares. I pray you are reminded today (and everyday) that you are seen and known by our amazing Heavenly Daddy! </p><p style="text-align: center;">While I didn't get a pic of the snowflakes, Grace did get a lot of random selfies of our play dates in the afternoon đ</p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyhNCipJyBAqfx9Y-euPs5o-1BYTO3YbkJx4NmAwTWevzEueE7EfpRDsZRWpw8s2ZRBrRC0eE5_OVVK9cIjg0baZST9v5NKH_GCtG7umkmF6QQ5uJtJV1eqnuOv5aplDpb56In3__QGNuy/s2048/0F719811-6719-44E5-9996-5158EC93F8C8.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyhNCipJyBAqfx9Y-euPs5o-1BYTO3YbkJx4NmAwTWevzEueE7EfpRDsZRWpw8s2ZRBrRC0eE5_OVVK9cIjg0baZST9v5NKH_GCtG7umkmF6QQ5uJtJV1eqnuOv5aplDpb56In3__QGNuy/s320/0F719811-6719-44E5-9996-5158EC93F8C8.jpeg" /></a></p><p>3) We spent a little time with Abby during Christmas break researching colleges, since she is working towards coming up with a list of the top 15-20 schools she would like to attend/play soccer at (some being stretch goals, some reasonable goals, and some that may not be her top choice, but she would still be willing to consider). How did we get here... the realization that my little bestie only has (Lord willing) 4.5 years under our roof is sobering and has sure recalibrated my heart and priories in a hurry. We are tempted to believe that we always have more time, but time is a funny thing... </p><p>Time is free, but it's priceless</p><p>You can't own it, but you can use it</p><p>You can't keep it, but you can spend it</p><p>Once you've lost it, you can never get it back</p><p>-Harvey Mackay </p><p>As I have prayed about having God honoring balance in my life (this, in conjunction with practicing "rest," are my priorities for 2021), God used this real world reminder of how quickly time flies, coupled with the reality that we are all too familiar with... tomorrow isn't promised, to drive me to my knees and seek His guidance as to how to best allocate my time and attention this year (and every year really) in lieu of continuing to allow ourselves to live in survival mode. It is such a gift to watch Abby fiercely pursue her dreams with such grit and determination, so we will continue to join her in praying for God's will for her present and future and praise Him all along the way. Proverbs 3:5-6</p><p><br /></p><p>4) Andrew's next treatment is scheduled for February 5th. We are anxious for scan results because they will be a clear indicator as to how much impact we can expect from this treatment. We are badly praying for complete healing and we ask that you approach the throne with the same hope and confidence. Andrew's hair has started shedding and he's been a bit self conscious about it, however, I don't think the average person would even notice. He has a lot of hair come out when he is in the shower and David and I can certainly tell when we help him style his hair. Will you please pray that he doesn't lose any more hair for the 4th round of treatment? Andrew's leg is healing.... slowly. They will need to surgically cut out the area that was infected because it's the only way to truly eradicate this extremely difficult-to-treat infection, however, it's location makes that hard. It's on a part of his leg where the skin is very tight, so they are worried that if they cut it out now at the current size, it will leave a wound that will never fully heal. We are treating with oral and topical antibiotics, in an effort to get it as small as possible and make it easier for the surgeon to get out and heal adequately. Will you please pray that the wound would heal amazingly well and the surgeon is able to easily (that it hasn't gone into the bone) take out the necrotic tissue without any issue?</p><p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZwNrhkSWdcRqWgLG-d_nkmroFgylAgWCtC9wJkWmuClNNtOfl3rLzz3D8w8Hu-XzJYM-XPT0VXP2xVFVkRTGIgPzBuysCGOjiTkr4vfN_nqqqYnhirR_fJsW8FGwJB2D2nNvou8ls9PLv/s2048/9E1B2D2E-586F-45CB-BAE0-C1726BF76F5B.jpeg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZwNrhkSWdcRqWgLG-d_nkmroFgylAgWCtC9wJkWmuClNNtOfl3rLzz3D8w8Hu-XzJYM-XPT0VXP2xVFVkRTGIgPzBuysCGOjiTkr4vfN_nqqqYnhirR_fJsW8FGwJB2D2nNvou8ls9PLv/s320/9E1B2D2E-586F-45CB-BAE0-C1726BF76F5B.jpeg" /></a></p><p>On a side note- One of David and I's favorite marriage conferences/series is Love and Respect (if you haven't read it... run fast and do it, it's a game changer)... Well, I learned that the same author of Love and Respect has a book called Sons and Mothers, The Respect Effect. I just began listening to it and while I have always tried to extrapolate the things I've learned about how men are wired from the Love and Respect series and apply it with Andrew, the practical application of this book for mothers and sons has been awesome! I've been practicing "respect talk" when communicating with Andrew and my mind is blown how such simple changes in the choice of words we use can minister to our boys' hearts in such profound ways. I'm only half way through the book, but wanted to share this resource with you in case you have a son of any age :-). </p><p><br /></p><p>Thank you for being our faithful Army!!! You continue to bless and sustain us with your prayers!!!</p><p> </p><p></p><div style="text-align: center;">#butGod #hopeon #Heisbigger #fightlikeaRoss</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4y1CQfFhAhCiBg1AVKgg6ARGTjnU2NGnE21J5JwHmY7ldEGFD-MZuuGSi1ScWqy4O8hoDhNQ-p0WzCeJguqfTvuEDcnEhMdVqbsk8uDReEiJ24imtRh8pZwIu6amc7R2LAL80D84fah9H/s1125/IMG_7111.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="926" data-original-width="1125" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4y1CQfFhAhCiBg1AVKgg6ARGTjnU2NGnE21J5JwHmY7ldEGFD-MZuuGSi1ScWqy4O8hoDhNQ-p0WzCeJguqfTvuEDcnEhMdVqbsk8uDReEiJ24imtRh8pZwIu6amc7R2LAL80D84fah9H/s320/IMG_7111.jpg" width="320" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><br /></div><br /><div class="separator" style="clear: both; text-align: center;"><br /></div><br /><p></p>The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com0tag:blogger.com,1999:blog-3515728319081642483.post-13322599511662153782020-09-27T13:41:00.002-05:002020-09-27T14:28:47.455-05:00Treatment #2 coming up...Well, it seems, knock on wood (even though we don't believe in that), that the hot, humid, sticky, sweaty, Texas summer has finally come to an end. For anyone who lives in the Houston area, this is very exciting. It is almost as exciting as waking up this past Monday morning and realizing that all three kids would be out of the house and attending school in person (side note, this is David writing, Kristi would state this in a manner that sounded much sweeter). While Andrew and Abby have been attending school in person since this school year began, Grace has been going virtual for the first four weeks of the school year. On the first day of school, I quickly realized that not only was Grace in 2nd grade, but I was as well. While I joke about that, I actually am grateful for the time we spent together and getting to see how Grace works and performs in school. It gave us a whole new appreciation for how hard teachers work and the amount of patience it requires; as well as, how grateful we are that Grace has resource teachers available to help her in the mainstream classroom (as she would have a difficult time keeping up without some guided assistance). For example, when doing math equations and typical kids are taught a number of different strategies they can use to get to the correct answer, Grace really only needs to master one strategy as to not get confused by all the different ways to analyze the problem. Last year, Kristi and I would often talk about how we wish we could secretly observe Grace in the classroom and see how she is doing. We would often be dumbfounded with the high scoring assignments she would come with and proudly show off. The blessing of working alongside of Grace for the past month is that it provided a fascinating opportunity to see how Grace's mind works and how much she truly understands and comprehends in her learning environment. I was thoroughly impressed with how well Grace did and how much more she could do than what I had envisioned. Huge thank you to all of Grace's teachers and resource teachers who are there to help her be so successful!<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiVbM1QBtSbj8ZWAtHdrVvszf8igaBTPLbrZLP5TAmR5pw7L8nZs7OTHDEELIVH7nvgZ8w8efuwTkqvDIbd3D5pwWwOv0mLnugxHHBIV8R5GuLXkdSjWKAOUS9BahbpLbJIcQxevKo2oe4K/s2048/IMG_1561.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1309" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiVbM1QBtSbj8ZWAtHdrVvszf8igaBTPLbrZLP5TAmR5pw7L8nZs7OTHDEELIVH7nvgZ8w8efuwTkqvDIbd3D5pwWwOv0mLnugxHHBIV8R5GuLXkdSjWKAOUS9BahbpLbJIcQxevKo2oe4K/s320/IMG_1561.JPG" /></a></div><div><br /></div><div>Another blessing to this school year is getting to see how well Andrew is doing. In second and third grade, Andrew definitely missed a lot of the material covered in class because of the drugs he was on, pain he was in, or just from falling asleep in class. Halfway through his fourth grade year, which is also when Andrew was finally able to come off of all the heavy narcotics he had been on for pain, I feel like Andrew was able to pull his head out of the clouds and begin paying attention in class a lot more. However, I think he also realized how far behind he was in some areas, particularly in math. So many of the concepts they learn in Elementary are building blocks for the next concept. Andrew missed a lot of those concepts, so he had to work really hard to get some simple concepts that he should've known already. Thankfully, Andrew has had some great teachers who understood the uphill battle he was facing, as well as some teachers who took extra time tutoring Andrew after school or during the summer, and really invested in him getting caught up and prepared for 6th grade. Now, Andrew has been crushing it in all of his classes at Poly Ryon. If this were Kristi writing, she would write something really sappy about how outstanding the Poly Ryon teachers and administrators are, so know that they really are fantastic in the way they invest in these kids. He has really caught Kristi and I off guard and has shown a lot of initiative and starts his homework right when he gets home from school. We no longer have to go through his backpack and search for what assignments he might have crumpled up on the bottom. We are grateful to see him working hard and enjoying school this year. </div><div><br /></div><div>While Andrew is doing great in school, he is a little worried about missing six days of school in the next two weeks, as he goes back for scans next Wednesday (9/30) and his second round of treatment on Thursday (10/1), at which point he will be radioactive again and not be able to return to school until Wednesday (10/7). In addition to Andrew feeling worried about falling behind in school, he is also really dreading feeling nauseous again. Last time, Andrew felt nauseous around the clock for five days. He has had tears a few nights this past week and stated he really doesn't want to have to feel that way again. We have been able to talk to his doctors a lot and they have come up with a couple ideas to try and help the nausea to not be as bad this time. Will you please pray the scans show some positive results from the first treatment Andrew received; for his nausea to not be an issue at all this time around; and for Andrew to feel well enough to stay on top of his school work and not get behind.</div><div><br /></div><div>In regards to Andrew's arm, he continues to amaze his orthopedic doctor, but not necessarily in a good way. While his arm is continuing to show new growth on his bones and that it is progressing from where it had been four weeks prior, Andrew is still no where close to being healed. It has been nearly four months since Andrew broke his arm, but when you look at his X-rays there is still a big giant break right in the middle of one his bones. The doctor stated that Andrew's X-rays look the same as someone who is only two months into the healing process, not four. For some reason, we just like to do things a little unorthodox in the Ross family.</div><div><br /></div><div class="separator" style="clear: both; text-align: center;">Andrew and Otto had an Obstacle Course challenge this weekend and they rocked it, especially considering they've hardly been able to practice obstacles because of Andrew's arm, Andrew has to manage Otto on the course with just one arm, and this is only the second time they have done anything like this together. Andrew even one money on one of his rides, but the best part as seeing how much he just loved being out there with his horse for over 12 hours.</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQqf6bapLNpS89RdxnbwVRilIF1nW071xXIDi508uSAE-5VD6Y2AGBbHD0NIPrKHg8LhB3pNH90zpChUyWXs-Bbe3I8sa8nC4UB5miJzKFl8qgD1cAPDd5z7Mc3E1Kh-Mk74xdBKAeHand/s2048/IMG_2974.HEIC" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQqf6bapLNpS89RdxnbwVRilIF1nW071xXIDi508uSAE-5VD6Y2AGBbHD0NIPrKHg8LhB3pNH90zpChUyWXs-Bbe3I8sa8nC4UB5miJzKFl8qgD1cAPDd5z7Mc3E1Kh-Mk74xdBKAeHand/s320/IMG_2974.HEIC" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrhvOu4yvplDvWONiqBGgUbkRy647ya8kDzTDbdwRaNRyIsAW98kdDzM66VYuWjE79PHtzLEpr5_V0EwS-LIqch54BKMwKEgPVkULQ3XxmUPhiMtmYyWFaGtiwS9OjqYuuykcPZFiUz0Zr/s2048/IMG_2976.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrhvOu4yvplDvWONiqBGgUbkRy647ya8kDzTDbdwRaNRyIsAW98kdDzM66VYuWjE79PHtzLEpr5_V0EwS-LIqch54BKMwKEgPVkULQ3XxmUPhiMtmYyWFaGtiwS9OjqYuuykcPZFiUz0Zr/s320/IMG_2976.jpg" /></a></div><div style="text-align: center;"><br /></div><div style="text-align: center;">The one obstacle Otto was not having was the pond. As soon as the competition was over, they allowed the participants to take their horses to play on the course. Andrew headed straight for the pond and they conquered it. Andrew was one happy kid after that and it looked like Otto enjoyed it too... he was splashing in the pond at one point. </div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglQ5-XrDxsbIvaX7_cG88geXrq7IhHJFE_1D4Xm5pFquUoczdCEpxX5x5EM3Nqzwuk5nGxRc6rw9MX2NnO4ghiKq3linbabPg_3IVod2tA8IBFVtfcszE0V8JbkcNbVvyZ137r8aITLXv0/s2048/IMG_2979.HEIC" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglQ5-XrDxsbIvaX7_cG88geXrq7IhHJFE_1D4Xm5pFquUoczdCEpxX5x5EM3Nqzwuk5nGxRc6rw9MX2NnO4ghiKq3linbabPg_3IVod2tA8IBFVtfcszE0V8JbkcNbVvyZ137r8aITLXv0/s320/IMG_2979.HEIC" /></a></div><div style="text-align: center;"><br /></div><div>Lastly, we can't forget our sweet Abigail! She continues to work hard at all that she does and continues to grow into an amazing young woman. We are proud of her attitude, effort, dedication, care and concern for others, and grit that she displays everyday. Abigail's grit is such a defining characteristic for her. Just recently, in Abigail's first league game with her new soccer team, it was a HOT day and Abigail had made a lot of sprints down the sidelines while dribbling the ball. After about 30 minutes into the first half, Abigail was subbed off, which we didn't think anything of because she had beenworking so incredibly hard and in such extreme heat. After the game, Abigail's coach sent me a text and told me that Abigail was working so hard that she had caused the other team to have to sub off two different defenders who were covering her because she wore them down. So, by the time Abby had subbed off, the other team was already on their third different defender for that position. This is a small example of Abigail's grit in all aspects of life. She is such a blessing and Kristi and I are so grateful for how God has gifted her and wired her. </div><div><br /></div><div style="text-align: center;">Abby and her biggest cheerleader. Second to watching Abby play soccer, we love hearing Grace cheer for Abby and her teammates from the sideline. She cheers "GO SISTER BUDDY!!!" or "shut em</div><div style="text-align: center;">down" or "you got this... you got this..." or "just kick it"... just to name a few đ. </div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNHiorbc_hVSO5b8G-NtACZn8abCB8b_FuPugY0R_ObrX-BL5OjSN1RiXI4xdsmnYyiry4BH6pLv7h83S5fR32FzjCDLI4WQPstBn7vjKkVym91mk4xM2iam4ZD0E5NkYmin99fkZu8LCC/s2048/IMG_5735.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNHiorbc_hVSO5b8G-NtACZn8abCB8b_FuPugY0R_ObrX-BL5OjSN1RiXI4xdsmnYyiry4BH6pLv7h83S5fR32FzjCDLI4WQPstBn7vjKkVym91mk4xM2iam4ZD0E5NkYmin99fkZu8LCC/s320/IMG_5735.JPG" /></a></div><div><br /></div><div><br /></div><div>PRAISE- Andrew's hair is still miraculously hanging on! Please pray it continues to do so because this has been a huge encouragement to Andrew.</div><div><br /></div><div>PRAYER REQUEST- with treatment week ahead of us, we could really use your prayers... will you please pray for all the details above and for our time of being separated as a family for 6 days while Andrew is on isolation? Thank you so much for never wavering in your commitment to cover us in prayer!</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4DFwrXwZmJYvDDCQhoyyFOMR8oShn9_W0VmTcsqt4JYKPRTTWqeyH06MKvIhvpxyZTms3ECrfwjz5t6abLBt6FeE10DsGB0tq6YtYDK4Mv3awlTq5umd1Rvrlhe003DuDDgb_7JA5SMpt/s1125/IMG_7111.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="926" data-original-width="1125" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4DFwrXwZmJYvDDCQhoyyFOMR8oShn9_W0VmTcsqt4JYKPRTTWqeyH06MKvIhvpxyZTms3ECrfwjz5t6abLBt6FeE10DsGB0tq6YtYDK4Mv3awlTq5umd1Rvrlhe003DuDDgb_7JA5SMpt/s320/IMG_7111.jpg" width="320" /></a></div><br /><div style="text-align: center;">We choose hope, hope in the only hope that doesn't disappoint because the love of God has been poured out within our hearts through the Holy Spirit, who has been given to us. Romans 5:3-5</div><div><br /></div><div><br /></div><br />The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com1tag:blogger.com,1999:blog-3515728319081642483.post-60656512141688123622020-09-04T09:54:00.003-05:002020-09-04T10:03:10.943-05:00Prayers and Praises...<p> <span style="font-family: Helvetica; font-size: 12px;">Quick updates and prayer requests: so many have asked how Andrew is doing... thank you for your prayers and concern!</span></p>
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<p style="font-family: helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">Prayer request- Grace has a cardiologist appointment TODAY. Long before we experienced scanxiety with Andrew, we knew echoxiety all too intimately. you see, Grace has had 6 open heart surgeries to date (4 out of the 6 were at Boston Childrens Hospital). We have walked into an appointment thinking things were ok and walked out either scheduling surgery or being admitted directly to the hospital which led to an emergency surgery, so we never feel like Cardiology appointments are just âroutineâ visits. Although, itâs a great opportunity to reflect back on ALL that the Lord has so graciously brought us through.... especially the fact that we were blessed to celebrate Graceâs 8th birthday last week!!! Will you please pray that Graceâs heart looks healthy and there are no surprises at her appointment today? </p>
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<p style="font-family: helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">Grace started virtual school and David gets the award for the best 2nd grade teacher EVER! We continue to watch the covid trends and pray that Grace can go to face to face school in a couple weeks (assuming trends stay reasonable). Sheâs SO eager to get back to face to face school and I think the best 2nd grade teacher ever could use a break toođ¤Ł!</p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPEdDYgn0df_y-vhiIbvt9Jg71CsrfiuFcNXBO52UHFRq4ExijLQD8XWn2uTvD5uMutwJoFuG2hGPkoAM2OTTPZTfxSfQRf50qG_VAuIqsyxAy9_ABwER7CywoteqPzN7DYf4SjaAq6KGf/s2048/142C178E-2238-40C7-8CFA-6CAE67DF3449.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1612" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPEdDYgn0df_y-vhiIbvt9Jg71CsrfiuFcNXBO52UHFRq4ExijLQD8XWn2uTvD5uMutwJoFuG2hGPkoAM2OTTPZTfxSfQRf50qG_VAuIqsyxAy9_ABwER7CywoteqPzN7DYf4SjaAq6KGf/s320/142C178E-2238-40C7-8CFA-6CAE67DF3449.jpeg" /></a></div><p style="font-family: helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p><p style="font-family: helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">Praise the Lord, Andrew has felt great since day 6 or 7 after treatment and hereâs the miraculous part... his hair is still hanging on. Yâall, Iâm in absolute disbelief! I can tell his hair is breaking off some, but he hasnât really noticed and unless you look closely you wouldnât even be able to tell that itâs âdifferent.â Iâm certain this is absolutely an answer to prayer! Now, it could still certainly fall out in the days and weeks to come and on subsequent treatments, but for today... we rejoice! Andrew is loving school and heâs been more motivated than Iâve ever seen him to get his homework done everyday, study, etc. Another huge praise. Will you please pray he can stay up to speed with school since he will miss a week + of school every couple months for scans and treatments? His next scan is on Sept 30th and treatment is scheduled for Oct 1st. Please pray the scans reveal awesome results, that we can better manage his nausea this time around, and that we all weather the separation well. </p><p style="font-family: helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p><p style="font-family: helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px; text-align: center;">1st color out day at Poly Ryon Middle School!</p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvZk1EeFM5aKfKt-9CtwO1IiXcu1b8OliRkVr9kTvVAJMrnGP67vKwoCOFSrm7H1gM_GfTP4-12xdsSVJR14Gxa5LaLwLp8yJ81bfpNdF7ytU6cxpDDPVWptNjYsWwG_zFLfg2qhJd6Otb/s2048/9FF90084-A939-4B1B-818C-F35C683B4064.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvZk1EeFM5aKfKt-9CtwO1IiXcu1b8OliRkVr9kTvVAJMrnGP67vKwoCOFSrm7H1gM_GfTP4-12xdsSVJR14Gxa5LaLwLp8yJ81bfpNdF7ytU6cxpDDPVWptNjYsWwG_zFLfg2qhJd6Otb/s320/9FF90084-A939-4B1B-818C-F35C683B4064.jpeg" /></a></div><br /><p style="font-family: helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p><p style="font-family: helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">Abby is loving Logoâs (the private school she goes to) and we love that sheâs still home with us two days a week. Sheâs a happy camper and so are we that soccer games are back in full swing. Itâs a sense of ânormalâ that our whole family enjoys. </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifEnF2PlFTWk6QPqcc0HZgDkhiEfdUe1pWm9EEkf-usLWpU7eaSteIeSKycV4auwJnKfSbkczYiYHC8yeMtn0dScGWN3V5BTKHY0hb4unFwXjkHraf17hgvzdd9dpu5yv5etgPh5bCkyT-/s2048/6A4CAE28-4CCA-42EC-9190-A2FDA5233720.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifEnF2PlFTWk6QPqcc0HZgDkhiEfdUe1pWm9EEkf-usLWpU7eaSteIeSKycV4auwJnKfSbkczYiYHC8yeMtn0dScGWN3V5BTKHY0hb4unFwXjkHraf17hgvzdd9dpu5yv5etgPh5bCkyT-/s320/6A4CAE28-4CCA-42EC-9190-A2FDA5233720.jpeg" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKcNGe6kz2GhHi1ndO5gksYVkCfkND7kQeJqJH3gXiF3FucZObRRidJD7w9bu_e-xSNCPXZcbpROeRfWpFwaTPxYf33fkbtW6lg-PIqjsXgrScmJ0r4E912_EPFo-vUQVmPW-FQP5stRrw/s2048/D1392C07-5F19-4160-B674-1BE3747D11F0.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1415" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKcNGe6kz2GhHi1ndO5gksYVkCfkND7kQeJqJH3gXiF3FucZObRRidJD7w9bu_e-xSNCPXZcbpROeRfWpFwaTPxYf33fkbtW6lg-PIqjsXgrScmJ0r4E912_EPFo-vUQVmPW-FQP5stRrw/s320/D1392C07-5F19-4160-B674-1BE3747D11F0.jpeg" width="320" /></a></div><p style="font-family: helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;"><br /></p><p style="font-family: helvetica; font-size: 12px; font-stretch: normal; line-height: normal; margin: 0px;">Thanks so much for your prayers!!! Please keep me coming!!! #butGod #fightlikeaRoss #hopeon đ</p>The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com0tag:blogger.com,1999:blog-3515728319081642483.post-74734606712101028942020-08-23T21:42:00.002-05:002020-08-23T21:54:19.914-05:002020-2021 School Year 1.0<p> Itâs hard to believe that school starts tomorrow... I seriously canât wrap my mind around it and I hardly feel prepared, but we have full confidence that Godâs got great things in store for the Rosslings and the rest of your kiddos this year. Itâs certainly going to be different, maybe even uncomfortable and probably super frustrating at times, but we are praying we can see Godâs hand in the details (a prayer Heâs always faithful to answer). Here is an update on the Ross Family shenanigans....</p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihwAa2LXY6mrhE6-gP-ywWaaIV-T0Fe4PLGayUmkcalbW6Di49g7ue7XqvKJLIWC1_1zUnMpoVvtT1MwO7pz8pqNiVisbaAwvU03H6Um9Qg4cIV_mKdUSKZbuSdXDU2YFzcO7OB_HRaDxP/s2048/IMG_6917.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1536" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihwAa2LXY6mrhE6-gP-ywWaaIV-T0Fe4PLGayUmkcalbW6Di49g7ue7XqvKJLIWC1_1zUnMpoVvtT1MwO7pz8pqNiVisbaAwvU03H6Um9Qg4cIV_mKdUSKZbuSdXDU2YFzcO7OB_HRaDxP/s640/IMG_6917.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><p>*<u><b>Andrew Update</b></u>- He had 5-6 pretty rough days after his first round of treatment. He was SUPER nauseous around the clock, but I couldnât be more proud of his attitude and character through it all. Heâs dreading treatments 2-4 because of the nausea, but we are praying that with some additional nausea meds (one is an antipsychotic and the other is a steroid... who would have thought those would help with extreme nauseađ¤ˇââď¸?!?!), it will be more to tolerable. Based on what the handful of adults have experienced with this treatment, Andrew should start losing his hair this week... just in time for school. Will you please pray for that situation? Please continue to pray that this new treatment is busy obliterating every single cancer cell in his body and that it stays gone... FOREVER (we continue to hang on to hope that God can and He will... until He says otherwise)!</p><p><br /></p><p>*<u><b>School</b></u>- Many have asked what we are doing with our kiddos for school during the pandemic. Itâs easy to judge the decisions others make, but I pray people will consider the fact that God calls each of us to seek His will (which could be, and likely is, different for different families) and be willing to say âyes, Lordâ to what ever He calls us to... even if itâs scary, inconvenient, or even unpopular. We have prayed long and hard about whatâs best for the Rosslings and consulted Graceâs cardiologist, Andrewâs Oncologist, and many other experts that we highly respect. We have come up with what we feel is a great plan A and plan B and we are beyond grateful that the kids' schools/administrators are beyond supportive in ensuring our kids are safe physically, yes, but mentally and emotionally too. </p><p>Andrew REALLY wants to experience Poly Ryon, the 6th grade campus that is literally famous because itâs the most AMAZING public school ever! Andrew yearns to feel ânormalâ and going to school in person (especially at Poly Ryon) is a great way to accomplish that. He will miss two weeks of school ever two months anyway for treatment, so in person school will hopefully be a blessing in between his treatments and time of isolation (when he's radioactive). </p><p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEia0vgS0S0CC4ShKTeEe2JcAQl9rfjHZOka-FGa2b4ZSARJewSI-Dr2nC9QXrkibXGYHRgsIrmS2f6kzByovaBGMRQ3gkADFKomlodPJTPl51Ktc5_QPsWRmPuCHZVvg-gOEMurkW4Ox6bW/s2031/IMG_8258.JPG" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1513" data-original-width="2031" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEia0vgS0S0CC4ShKTeEe2JcAQl9rfjHZOka-FGa2b4ZSARJewSI-Dr2nC9QXrkibXGYHRgsIrmS2f6kzByovaBGMRQ3gkADFKomlodPJTPl51Ktc5_QPsWRmPuCHZVvg-gOEMurkW4Ox6bW/s640/IMG_8258.JPG" width="640" /></a></p><p>Grace will start virtual school initially and we will monitor the Covid rates. If the rates are reasonable in 3-4 weeks, we would LOVE for her to transition to in person school because GRACE LOVES, LOVES, LOVES SCHOOL and she thrives there in so many ways!!!! From her typical peers/precious friends to the incredibly kind, creative, and brilliant teachers who know the balance between setting the bar high for this kid because she's so smart and such a hard worker, but yet making sure to modify where necessary to help her learn concepts in a way that makes most sense for her style of learning... Grace really thrives at school, so we pray she can get back on campus sooner than later. Trusting God will make each step clear, just as He always has.</p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJy0M4o0OAvIFmZRY_-nR9bdV23LLqEjyG8RtDZ4qD2sEncBx7f9YrxwCv1acXDICE8MebP02VWI6qaELpv5XWUJOMG83vzZflXbhnfVcsJUTD9HQ0u1kJKPYTb7m7noYmCrdnUBAo4jlu/s2048/IMG_0052.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJy0M4o0OAvIFmZRY_-nR9bdV23LLqEjyG8RtDZ4qD2sEncBx7f9YrxwCv1acXDICE8MebP02VWI6qaELpv5XWUJOMG83vzZflXbhnfVcsJUTD9HQ0u1kJKPYTb7m7noYmCrdnUBAo4jlu/s640/IMG_0052.JPG" /></a></div><p>Since Grace will be learning virtually and Andrew will have treatment (Lord willing) every two months until February, David will not be going back to work at The Tenney School at this point (they have been SO supportive over the years... taking what ever time David can commit to based on our family's needs and circumstances). </p><p>Abby will be going to Logoâs again this year. Itâs a Christian University model school, where she goes in person 3 days a week and works from home 2 days a week. This school has been a perfect fit for her in so many ways. They already had very small class sizes and this year they will be even smaller class sizes, due to covid, so we feel good about the precautions that have been put in place by both Abby's school and our public schools. </p><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><p style="text-align: center;">Mom and daughter, back to school mani and pedi. Both Abby and I's looked GREAT for a couple hours.... this is why we don't routinely get our toes and nails done, they can't handle soccer and the barn life đ.</p></blockquote><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhO4G0JYjKLgFrR-WqUEhBFXMxHwUIiQZ1IKir3Mjq4jIfX-G90rZ4aRfpBYzE8jnzFYWsKojfMnnJ4dK0Geh4joimaun7Quhqrk9srdpYi19yKyVkN3KQnRRbhcE9hdcBj27kAB1orwRIj/s2048/IMG_1004.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1536" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhO4G0JYjKLgFrR-WqUEhBFXMxHwUIiQZ1IKir3Mjq4jIfX-G90rZ4aRfpBYzE8jnzFYWsKojfMnnJ4dK0Geh4joimaun7Quhqrk9srdpYi19yKyVkN3KQnRRbhcE9hdcBj27kAB1orwRIj/s640/IMG_1004.JPG" width="640" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTT5fZ6i_1m8-yPM4awnqnZA5RGjJ1891mfN7XnETGhEGtOcSf6z6iqtVDJqTqekVxylbe2TYaWTI3ix_lxCMF85T2dV8F87VMJzpndBt_1HFXYQRQSlgPfMv32MCyB20nKHpgWuuytctJ/s2048/IMG_4836.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1536" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTT5fZ6i_1m8-yPM4awnqnZA5RGjJ1891mfN7XnETGhEGtOcSf6z6iqtVDJqTqekVxylbe2TYaWTI3ix_lxCMF85T2dV8F87VMJzpndBt_1HFXYQRQSlgPfMv32MCyB20nKHpgWuuytctJ/s640/IMG_4836.JPG" width="640" /></a></div><p><br /></p><p>*<u><b>Activities that are a little glimpse of normal...</b></u></p><p>Soccer scrimmages have started back up and league play is suppose to start Labor Day weekend for Abby! Man, it is SO nice to have a sense of normalcy... I knew we loved watching our girl on the pitch, but this rona thing has reminded us how precious some of the things are that we may have taken for granted. While Abby never really took a break from soccer, that kid is always at extra trainings, the fields with David, etc... we have missed real games! </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiuwgVfxzDYG98eZRhKP4NxvF1l4Pt2AZOSduzXhLkzeNZj5SPXauv4KEV1gPau1SChooRdv3KrpR5EZDUBw0zsrmWly5deI8cA8C8agGng1QMT2HsA2lQ__da9Zkloyy2GxQLadZZX8GDR/s2048/IMG_1293.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiuwgVfxzDYG98eZRhKP4NxvF1l4Pt2AZOSduzXhLkzeNZj5SPXauv4KEV1gPau1SChooRdv3KrpR5EZDUBw0zsrmWly5deI8cA8C8agGng1QMT2HsA2lQ__da9Zkloyy2GxQLadZZX8GDR/s640/IMG_1293.JPG" /></a></div><p>Anyway, the second we are uncomfortable with in person school (for and any and all of the kids), our plan B is to have all the kids move to virtual learning. </p><p>*Andrewâs arm is healing SO SUPER slow (likely because of all the radiation his little body has seen), so heâs still in a removable cast. Therefore, he hasnât been able to practice obstacles with Otto in preparation for the Obstacle Course challenge he competed in this past weekend. He really wanted to participate in the competition, even though he hasnât been able to practice until this past week and he only has one arm to work with. I kept praying that God would help him feel successful (you know how a mommaâs heart works... heâs experienced so much hardship and disappointment lately, I just didnât want him to be let down AGAIN). I was so nervous for him, but by Godâs grace... he and Otto went out there and crushed it. We couldnât be more proud of him for his courage, willingness to take (calculated đŹ) risks, and for reading his horse so well to help them be successful. </p><div class="separator" style="clear: both; text-align: center;">David took Andrew to the Obstacle Course Challenge, where they spent 10.5 hours at the barn. I requested a video of Andrew competing, so that's exactly what I got and not one more pic or videođ. I took this pic before they left. He doesn't wear his barn boots in the house or even the car, so he doesn't have those on yet. </div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwk-hGRVgB1Mq-nDoeLFznXrrmeiVcaYj0ys2RRRwBxpu1YNEQylzpz4ctmAa0XbsxiwItNVwYb026jRkUBHRp1HBFyVY8MVaYWixFGEpdpbBYAIZZhOxheCy4gQ4pEHH3cYZ_on6KbLh5/s1925/IMG_5179.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1925" data-original-width="1739" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwk-hGRVgB1Mq-nDoeLFznXrrmeiVcaYj0ys2RRRwBxpu1YNEQylzpz4ctmAa0XbsxiwItNVwYb026jRkUBHRp1HBFyVY8MVaYWixFGEpdpbBYAIZZhOxheCy4gQ4pEHH3cYZ_on6KbLh5/s640/IMG_5179.JPG" /></a></div><div class="separator" style="clear: both; text-align: center;"><span style="text-align: left;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><span style="text-align: left;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><span style="text-align: left;">*<b>Grace turns 8 years old on Thursday!!! </b>I seriously can't believe it! Weâve had a blast celebrating her birthday with family the past two weekends (and really everyday đ¤Ł)!!!</span></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWE4Hcog_sXwuop64WwY3E0fzuZSK2r6cAhCt7st4tL4JWJffnf-QTVgrDLpt8M7r8SIY-jgbkK3SaJHgcHtY3eAuqgws5ZekPp5e6F6Ekx8ozqTbxZ9mEBRUY33tI16BKNrPis1ibM2GT/s2048/IMG_6057.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWE4Hcog_sXwuop64WwY3E0fzuZSK2r6cAhCt7st4tL4JWJffnf-QTVgrDLpt8M7r8SIY-jgbkK3SaJHgcHtY3eAuqgws5ZekPp5e6F6Ekx8ozqTbxZ9mEBRUY33tI16BKNrPis1ibM2GT/s640/IMG_6057.JPG" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px; text-align: center;">We celebrated with the cousins last weekend by playing Grace's favorite game EVER... America Ninja Warrior! In fact, if you ask Grace what she wants to be when she grows up, she would say "an American Ninja Warrior girl!"</blockquote><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><p style="text-align: left;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiK5YPjjSg4XMD0z99lgTapXjFvNWjgKRy25nU2bRLbP7hL5g_ze_oX2n2hW1KpLfF8uUnd7Oq8QSC1nHeYS8VeIwLXuoCK9HxnbmUkRLPH1sDqmWEjk0RBvQuzlbyOo58zKJVzzgI5J2W-/s2048/IMG_8316.JPG" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="2048" data-original-width="1293" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiK5YPjjSg4XMD0z99lgTapXjFvNWjgKRy25nU2bRLbP7hL5g_ze_oX2n2hW1KpLfF8uUnd7Oq8QSC1nHeYS8VeIwLXuoCK9HxnbmUkRLPH1sDqmWEjk0RBvQuzlbyOo58zKJVzzgI5J2W-/s640/IMG_8316.JPG" /></a></p></blockquote></blockquote></blockquote><p style="text-align: center;"> </p><p style="text-align: center;">If you haven't seen this book, please check it out... its precious!</p><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><p style="text-align: left;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwbtZfuCSgXgY0NycKaxhyphenhyphencFcoulndTpbjRRwui4Aj6dl9YV3Q80VzW7bkR4pVUX_Y9_pYORYAPmEcyb7OEqeqEjjRU2OeRaHrYJ_KDq1N7pdPDJPbphJGX51uI0xCp8mbT1JpmKgcsERW/s2048/IMG_2668.JPG" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="2048" data-original-width="1504" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwbtZfuCSgXgY0NycKaxhyphenhyphencFcoulndTpbjRRwui4Aj6dl9YV3Q80VzW7bkR4pVUX_Y9_pYORYAPmEcyb7OEqeqEjjRU2OeRaHrYJ_KDq1N7pdPDJPbphJGX51uI0xCp8mbT1JpmKgcsERW/s640/IMG_2668.JPG" /></a></p></blockquote></blockquote><p style="text-align: center;"><br /></p><p style="text-align: center;">This was her interview on how she prepared for the race! </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEtVogJRXnb32oCAOfCLvS3jnk6QgYM9VOzah0J1WVzO8_XwcOVFWBZ4fDdGw2n9-MKTcJk4naeXJ54eJ5HrpDZ_AoHnISvwqftO-5E4F_ML7iWH3Te2uP85pycotdzxt2M82B0grV8CmC/s338/IMG_6858+2.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="338" data-original-width="305" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEtVogJRXnb32oCAOfCLvS3jnk6QgYM9VOzah0J1WVzO8_XwcOVFWBZ4fDdGw2n9-MKTcJk4naeXJ54eJ5HrpDZ_AoHnISvwqftO-5E4F_ML7iWH3Te2uP85pycotdzxt2M82B0grV8CmC/s0/IMG_6858+2.JPG" /></a></div><p style="text-align: center;">Being announced... "in the turquoise bathing suit, we have GRAAACE ROSSS!" </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLrI7OzV0qUebzHNxkwiR3CYo5B1wp-FKYznEryi0MVsuIzheUoUfOO5ZQ3CBRMXb0tvx0MIcQdLZFbzd2NmsFdXz-wJ64Ep_UqolN_S81eQUwBxICYnXK4eNGQGaeP6OuPYPDyg7hzMnv/s2048/IMG_3580.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLrI7OzV0qUebzHNxkwiR3CYo5B1wp-FKYznEryi0MVsuIzheUoUfOO5ZQ3CBRMXb0tvx0MIcQdLZFbzd2NmsFdXz-wJ64Ep_UqolN_S81eQUwBxICYnXK4eNGQGaeP6OuPYPDyg7hzMnv/s640/IMG_3580.JPG" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;">Grace running the course!</div><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><div style="text-align: left;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirXeafQCnUCNqXFD2qPXcVQ3ddU_McInNsEdLOPpi-7-b1rHAybtN9Z0fIGVfPAIkXOdSzxSAQQysT2fQ3-peJKWvGXzfjEubUdDVdsJ_uHzlCOsySIff82gIZiYKYIVv7sI38w5zElEc3/s2048/IMG_2080.JPG" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="2048" data-original-width="1536" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirXeafQCnUCNqXFD2qPXcVQ3ddU_McInNsEdLOPpi-7-b1rHAybtN9Z0fIGVfPAIkXOdSzxSAQQysT2fQ3-peJKWvGXzfjEubUdDVdsJ_uHzlCOsySIff82gIZiYKYIVv7sI38w5zElEc3/s640/IMG_2080.JPG" /></a></div></blockquote></blockquote><div><br /></div><div style="text-align: center;">Papa Toot didn't want to be left out!</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjz5Gv_qhc9R2eWh53OPeKRSRmnzT-bBaoU1euGJA0_l1nFccVpnmQJBKWWCdMDVDGxkAb9voMu7Gwb14pUa4Enj4OubGuY3ql4mRdHqyxustisjkv4OfsoVdtKGGXSIc-dq3J1SKCKxWEJ/s640/IMG_6862.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="640" data-original-width="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjz5Gv_qhc9R2eWh53OPeKRSRmnzT-bBaoU1euGJA0_l1nFccVpnmQJBKWWCdMDVDGxkAb9voMu7Gwb14pUa4Enj4OubGuY3ql4mRdHqyxustisjkv4OfsoVdtKGGXSIc-dq3J1SKCKxWEJ/s0/IMG_6862.JPG" /></a></div><p style="text-align: center;">We celebrated these Birthday Buddies with my parents today! Just because David was born on August 30th... 3 days away from Grace, he has the title of her "Birthday Buddy" and that trumps all other "Buddies" in the house! She is obsessed with her "Birthday Buddy" đ. </p><p style="text-align: center;">"Scar Buddy" (Andrew- they both have scars from major surgery... Grace from 6 open heart surgeries and Andrew on his belly from surgery to try to remove some tumors), "Sissy Buddy" (Abby- that's an obvious one), and "Earhole Buddy" (me- we both have what looks like a tiny hole in this random part of our ear) are always trying to knock David off the podium and be Grace's favorite "Buddy," but he's virtually impossible to dethrone, but we won't quit trying because "Rosses never give up!"... that's what Grace says anytime she does something scary or hard.đ </p><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgSYqd3Db5SWFUobhqo26crSL__j8hvZKtrOU2HtVnNk2y0tneqkeaM1ilgQS4JrmUHxQuIPoarhY51rXXjf5T4n1bzDUWbD1-UoKq4VMCFeHWtfFxrYi7e-BQ3yxEW9LsaIOW40fF38TpK/s2048/IMG_2510.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1527" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgSYqd3Db5SWFUobhqo26crSL__j8hvZKtrOU2HtVnNk2y0tneqkeaM1ilgQS4JrmUHxQuIPoarhY51rXXjf5T4n1bzDUWbD1-UoKq4VMCFeHWtfFxrYi7e-BQ3yxEW9LsaIOW40fF38TpK/s640/IMG_2510.JPG" /></a></div></blockquote><p> </p><p style="text-align: center;">We appreciate every single one of you! Praying that you will see God's hand in the details of your week and that you would experience His perfect peace, hope that doesn't disappoint, and that you would know that you are deeply loved. #butGod #hopeon #fightlikeaRoss đ</p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinAvfBBex0xvlY6-c_AF7KlgUkSmhDo0eKIoWGpl5Gy9SKLZ-k0PZI9HBuZRHfUUFxlk4IA8-pCzOIlSrbd4yBAvkDquHjHIrD1iDavpDSCOYE899bhQa8FpeDAXFEzMOMG6-1nOFpgC_D/s1125/IMG_6763.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1109" data-original-width="1125" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinAvfBBex0xvlY6-c_AF7KlgUkSmhDo0eKIoWGpl5Gy9SKLZ-k0PZI9HBuZRHfUUFxlk4IA8-pCzOIlSrbd4yBAvkDquHjHIrD1iDavpDSCOYE899bhQa8FpeDAXFEzMOMG6-1nOFpgC_D/s640/IMG_6763.jpg" width="640" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><br /></div><p><br /></p>The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com1tag:blogger.com,1999:blog-3515728319081642483.post-4880273691791200292020-07-02T18:04:00.002-05:002020-07-02T18:04:34.504-05:00You Can't Make This Stuff UpNEVER A DULL MOMENT- Thanks for tuning in to the next episode of The Ross Family Shenanigans, You Can't Make This Stuff Up!<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvtEiuf79qPRJuLvHC4EjOcRSze4KWmYoqTpbcOiU_r8s_u2TUASQwjyPHkUUq9trRk-yYEsUP57wL1XT7AUxXO4qjUNuJp8uTu8iGkiIBqDNaDXDUOXoFbJvPydXqZKeSjGUNo8jm7eEq/s1600/IMG_6482.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1153" data-original-width="1120" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvtEiuf79qPRJuLvHC4EjOcRSze4KWmYoqTpbcOiU_r8s_u2TUASQwjyPHkUUq9trRk-yYEsUP57wL1XT7AUxXO4qjUNuJp8uTu8iGkiIBqDNaDXDUOXoFbJvPydXqZKeSjGUNo8jm7eEq/s320/IMG_6482.jpg" width="310" /></a></div>
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These three prayers tend to be my daily plead with the Lord because let's face it, without God's divine intervention it would be all too easy to be overcome with the uncertainty and depravity of this world we live in.<br />
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*"Lord, please help me to see myself, others, and my circumstances through your eyes." It's far too easy to view life through our own fleshly eyes that can be full of doubt, fear, envy, selfishness, confusion, disappointment, discontentment, entitlement, and misplaced affections (making people or things little gods in our lives. <br />
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*"Lord, will you please align my heart and mind with your will?" I feel like over the past 17 years, but really intensely over the past 8 years, we have had to make decisions that could literally mean life or death for two out of three of our babies (Grace or Andrew). From the lack of peace we had about how our local children's hospital wanted to handle Grace's very broken heart and the way the Lord lead us across the country to Boston for Grace to have what was a very risky set of surgeries with the hope of a better long term prognosis to Andrew being diagnosed with an exceptionally rare form of cancer that doesn't come with any sort of protocol or pathway, especially not in children. I'm passionate about shared decision making between patients and their care team (you should always feel like an integral part of your child's/your care), but if I'm honest, there are times when I feel an overwhelming sense of responsibility, power, or influence that is waaaay above my pay grade. Since there isn't any evidence available in children with stage 4 pancreatic neuroendocrine tumor (because there are less than a handful of kids that have this type of cancer and I don't know any that are Andrew's age and with his burden of disease... meaning as much disease as he has), it's on us to make BIG decisions around Andrew's care (it was a similar situation with Grace... there had only been one child like her to have the same type of surgeries we were considering), so the last thing we want is to make any decision in our own strength, we need to make sure we hear from the Lord SO clearly! Again, He has been so faithful to answer this prayer in big and small decisions, so we will continue to pray for His perfect wisdom and provision, trusting in His faithfulness because that's the only way we know how to do it. He hasn't left or forsaken us yet, so we trust He won't start now.<br />
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*"Lord, help me to see your hand in the details..." I feel like Moses when he told God, if you're not going, I won't go. Seeing God's hand all along the way gives us the peace and comfort we need to put one foot of faith in front of the other. Often times the way God shows us His hand is through y'all! We can't stop thanking you for ALL the ways you stand in the gap for us! There is never a comment, text, email (even if I'm not timely in responding), words spoken, or act of kindness that goes unnoticed or unappreciated. <br />
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<b>Update on what we've been up, unexpected twists and turns, and what lies ahead (at least from today's vantage point):</b><br />
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-Andrew has had a great attitude about his broken arm, but it's been super hard not being able to ride Otto, go swimming, ride his bike, etc. He has his next orthopedic appointment on Tuesday next week, so we are praying his bone is healing perfectly aligned and he can get a shorter, waterproof cast on. Will you please join us in praying for that?<br />
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We weren't able to go to Pine Cove Family Camp this year because of Covid 19 and the risk it poses to Grace and Andrew, so we were planning to go to Oregon with precious friends in a few weeks. We were hoping it would serve as a giant blessing for Andrew (and the rest of the family) before Andrew embarks on his next round of treatments. <br />
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WELL, that was the plan until we learned that David and I had been exposed to someone with COVID 19. We both went to get tested out of an abundance of caution and......................................... I tested negative and David tested positive :-(. We then had all 3 kids tested and PRAISE THE LORD, they were negative. The timing of this COVID 19 exposure means that we can no longer go to Oregon. The kids were obviously devastated that we won't be going to Oregon (they were SO looking forward to it), we can't go to the barn for a bit, and Abby certainly had a lot of tears about about having to miss two weeks of soccer training (she's obviously still finding ways to train at home, but I'm sure it's not the same as her 3 hour training sessions at TTi). Will you please pray that the kids and I will stay safe from getting COVID 19 (David is wearing a mask and trying to stay away from everyone as much as possible)? Will you please pray for an extra measure of strength and endurance for me (trying to work and be the primary caregiver is no easy task) and the kids (the big kids have been so helpful with Grace and taking care of each other, and Grace has had such a great attitude about it too)? Will you please pray that we can find another way to take a family adventure before Andrew's treatment (more on that in a minute)?<br />
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All that to say, it's been a rough 5 days so far, but we have seen God's hand in the details. We talk a lot in Ross household about having an attitude of gratitude, so here are the blessings we are grateful for in the midst of disappointment and exhaustion-<br />
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-Abby to the rescue... I was feeling so weary and broken on Monday night because I feel like our poor kids just take one hit after another in life (I know that's where their grit and resilience comes from, but it's gut wrenching as a parent to have to watch your kids constantly take a beating and know there's nothing you can do to take away their pain). I gave the kids the best game time pep talk I could muster up, trying to help them fix their eyes back on Jesus (see this through His eyes) and we prayed together before I went to my room to have a quick cry. I walked out after having gotten myself together and Abby handed me my phone and said "I think someone texted you." I looked at my phone and here is the text I found... I'm sharing this with you in case it ministers to you too.<br />
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Abby's words ministered to my heart in a way that seemed to make all things right in the world for that moment. Then, a sweet friend and Godly mentor reminded me that it's not about vacations, a horse, soccer, or anything else, but instead it's about pointing our children to Christ, the One who truly satisfies. I'm reminded that they (we) already have the greatest treasure and that treasure can't be taken away by this stupid virus, cancer, a broken arm, or any other disappointment in this world.</div>
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more reasons to be grateful...<br />
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-The kids have been SO helpful and selfless through it all (so far), especially Abby. <br />
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-I've loved getting to lift weights with Abby at home.<br />
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-Grace continues to love playing make believe with Andrew, watching/practicing American Ninja Warrior, reading, playing card games, frozen monopoly, and going for a run with me (or Abby) around the block.<br />
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My office buddies!</div>
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-Andrew's pain has been well controlled (praise the Lord) despite the fact that we know his disease is progressing.<br />
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-We have always wanted to rent an RV and we are going to try to make that happen instead of Oregon. The kids are beyond excited about this possibility, so please pray that if it's the Lord's will, it will all work out to be able to squeeze a fun filled trip in before Andrew's treatment. <br />
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Speaking of <b>treatment</b> (a lot of you have asked about the details, so here goes)... we continue to praise the Lord for making a way for this Alpha Therapy (so many miracles already revealed in the timing, location, and approval of this treatment) and pray that the Lord carries us through all the nuances... it's starting to get real!!! UPDATE- We got a call from Andrew's treatment facility that the radiation manufacturer had to push back when they will have Andrew's dose available, so his new date for treatment is August 6th. He will have 2 days worth of scans and labs and we have a meeting with his Dr's for a consultation, to sign consents, etc that same week. Lord willing, he will get his first dose of radiation treatment on August 6th, then he and David will leave the clinic where he is treated and stay at a hotel that night, return to the clinic the following day for more scans, and then head to David's parents house where they will live upstairs for a couple nights and then go camping for a couple nights before returning home. After Andrew receives a round of treatment, he has to stay away from Abby and Grace for 4-5 days and we (adults) have to stay a meter away from him at all times because he's radioactive. He has to have his own bathroom, flush the toilet 3 times, we have to bag up any clothes or toys he plays with and put them aside for 2 weeks to allow time for the radioactivity to biodegrade off. In terms of the side effects he will likely experience, he will likely have a rebound of pain from the tumors being radiated, nausea/vomiting, fatigue, and his hair will fall out a good bit. It sounds like he won't be bald, but he will have very heavy "shedding" which will likely make him want to shave his head. Will you please pray all of these side effects are minimal or even non existent? Andrew isn't excited about losing his hair, especially upon entering a new school/campus (he will be going into the 6th grade, which is the most AMAZING school ever, so I know he will be in good hands, but it will be much different than the precious elementary school bubble he's use to). Above all, will you PLEASE pray that this treatment literally eradicates every single cancer cell in his body? The results in the 7 adults that have received this therapy are pretty astounding, however, what we don't know is how long these results last, long term consequences of the treatment (especially in a child), etc, but the good news is that God knows and this story is His to author, so we will continue to pray and hope for a miracle. THANK YOU for being such faithful prayer warriors!!! Your prayers mean everything to us!!! #fightlikeaRoss #butGod #hopeon<br />
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<br />The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com1tag:blogger.com,1999:blog-3515728319081642483.post-17291131314664498412020-03-27T17:49:00.001-05:002020-03-27T18:07:37.675-05:00Quarantine and a New Quest...<div>
Hello our sweet Army! Kristi here- </div>
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We pray you and your family are healthy and well during this crazy new "normal" that we are all trying to embrace. Many have asked how our family is doing, considering we have two "vulnerable" or "at risk" kiddos in our home, so thank you for your prayers and concern for our family. The truth is, we are most concerned about Grace getting covid 19 because she has been in the ICU and intubated due to a much less virulent virus before, so we are well aware of the huge risk covid 19 poses to her and her special heart. We are of course also concerned about keeping Andrew well, since he has a compromised immune system. With all that being said, not much has changed for us in terms of being ULTRA cautious about germs, since Grace was born, we have been programed to avoid germs in every way possible. While our hearts ache for those afflicted by covid 19 and those on the front lines of this battle, we have found the slower pace and increased family time to be pretty amazing. How often in life do we have a relatively empty plate to offer the Lord to fill in a way that He says is best? Time outside playing lots of soccer, basketball, bike rides, eating meals together, lots of barn time, family bible studies, and watching Grace's zest for learning (she joyfully does her school work everyday like it's a gift versus a chore... we could all use a little of Grace's attitude in our lives) are just a few of the things that have been the source of sweet memories that we aren't taking for granted. Don't get me wrong... it's not always rainbows, unicorns, and sprinkles over here, but we are trying hard not to miss the lessons and blessings God has offered us during this CRAZY and unprecedented time. Andrew's next scans are scheduled for May, however, I'm not sure how covid 19 will impact that plan, so we will keep you posted. In the meantime, we greatly appreciate your prayers that Andrew's cancer isn't progressing and for all cancer patients, since we know that cancer doesn't pause because covid 19 has appeared on the scene. </div>
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David taking over now-<br />
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It's hard to believe that just nine months ago Andrew had just begun talking about wanting a horse for his Make-A-Wish gift (after his original Make-A-Wish choice, a cruise, had to be cancelled twice because he was in such a rough place physically). We spoke with Make-A-Wish to see if that would even be possible and they sent us their guidelines for doing a horse wish. One major issue...we weren't horse people and had no clue how to go about finding the right horse for Andrew.<br />
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While we were talking and praying about how to even begin figuring out a way to make Andrew's wish a reality, we happened to be going to Pine Cove for family camp that same week. While we were at family camp, we remembered that Pine Cove leases out some of their horses to willing families during the non-Summer months. This got Kristi thinking, rather than having Make-A-Wish buy a horse and then we would have to figure out stable, vet, farrier costs, etc, what if we leased a horse from Pine Cove and then Make-A-Wish could potentially cover the stable fees (this way we would not be committing to a long term situation of horse ownership, without even knowing whether this would be something Andrew would love forever). Not only was Pine Cove fully on board with this idea, "Costa" (the Pine Cove Crier Creek head wrangler) had an amazing horse in mind for Andrew, Otto, as he was one of their best horses and was great with just about any rider that got on his back. He is all the counselors favorite horse... now we understand why!</div>
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Once we got home from family camp, Kristi got the ball rolling with researching different stables in the area, while I began reaching out to Make-A-Wish to find out if they would be willing to change the way they do things and pay for 9 months of stable fees and vet bills, instead of paying for a horse. Thankfully, Make-A-Wish was on board as well, but needed a lot of details on a few different stable options throughout the area. Kristi had found some great stables (like the one he had been taking lessons at) and some questionable stables, and everything in between... but we still weren't sold on where we should board because we were looking for a stable that wasn't too far away, allowed Andrew to ride as often as he would like, etc. We lucked out when we received a phone call from two different friends who had boarded or were boarding their horses at Carroll Stables (where Otto is boarded now). They had glowing recommendations of the stable, but even above the stable, they couldn't say enough about how amazing the owner, Mrs. Jody, was and they highly advised us giving her a call to see if she would be willing to take on a unique situation such as ours. We were overjoyed to hear her views of us boarding at her stables and even though she had never done anything like this before, having to coordinate with two different entities about payment and the horse, with neither of those entities being the person who would actually be the horse owner. However, it all came together in a way that had God's finger prints all over it!</div>
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It is crazy to think that 7 months has already gone by since we first had Otto delivered to Carroll Stables. Andrew was so surprised when he first met Otto and realized that Otto would be HIS horse for the next 9 months. Otto has been the perfect horse for the whole family. He knows who is riding him and how to adjust based on their riding level. Otto has been great this whole time, but after having Otto for a couple months, you could tell that Otto began to change... It's like he realized that this was more than just a job, he saw that we kept returning 3 to 4 times a week and before long we were his people, and he was another member of the family. Prior to this change, I wouldn't have known how to tell if a horse likes their owners or not, but you could tell that he knew we all went together now. </div>
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We always knew that we would only have Otto for 9 months and that he would have to go back to family camp in May; however, none of us really wanted to mention that reality or talk about what that would be like for Otto to leave us. You see, we would've never thought that in just 7 months we would be a barn family, but we have loved every moment we spend out at the barn. It has been a great experience for the entire family and such an answer to prayer. For Andrew in particular, Otto has brought him so much joy and confidence, but it has also been the missing piece for us as we struggled to find ways to really get into Andrew's world, outside of time spent at Dr's appointments, hospital stays, etc. </div>
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Fast forward to us now being in the month of March and family camp begins in just two months. The reality of Otto leaving us, just for three months, is so saddening. We love Otto just as though he were another member of the family. We would often joke with Mrs. Jody that Otto can't go back to camp because he has picked up some bad habits since being with us, for instance, Andrew enjoys trying to act like he is a real cowboy and tries to jump on Otto while he is walking. Now, Otto has formed the habit of starting to walk when we are about to get on him, thus making him no longer suitable for campers (or at least that is what we were trying to convince ourselves could help us to keep Otto ;-). The amazing Mrs. Jody was fully aware of our dread in having to return Otto in two months and since she needed to speak with Pine Cove anyway, in order to begin discussing when Otto would need to be picked up to head back to camp, she was willing to ask Pine Cove on our behalf if they would be willing to sell Otto (which we thought was a looooong shot because we knew when we received Otto that he was their top horse out of roughly 60 horses). </div>
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After Mrs. Jody spoke with Pine Cove, she called to tell us that "Costa", the head wrangler at Pine Cove, answered the phone and said right away, "I know why you're calling me." To our delight and amazement, Pine Cove was on board with wanting to make selling Otto to us happen and Mrs. Jody stated that they gave a very fair price for us to purchase Otto....$2,500. We have no clue about horse prices or value, but we trust that Mrs. Jody does, so while $2,500 sounds like a lot to us, I know that a horse as well trained as Otto could sell for much more than $2,500. Plus, he's priceless to us!</div>
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We have mentioned in many Facebook posts how amazing Mrs. Jody is (for so many reasons), but here is another example of why only God could've know how important it was for us to board Otto at Carroll Stables. Not only has Mrs. Jody been so amazing with everything at the barn, she also let us know right away that she knew $2,500 was a lot of money for our family (especially since we would also be taking over the fees for boarding Otto) and that she wanted to help in anyway she could to help us get Otto. We found out about being able to get Otto just a week ago, and in just that amount of time, Mrs. Jody has built these amazing Texas flag boards and had the idea to sell raffle tickets for $10 a ticket. She is awesome! We couldn't have done this without her! #butGod #OttoisaRoss </div>
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<img alt="No photo description available." aria-busy="true" class="spotlight" height="400" src="https://scontent.fhou1-2.fna.fbcdn.net/v/t1.0-9/90979990_3153586961332331_1982682999778443264_n.jpg?_nc_cat=109&_nc_sid=8024bb&_nc_oc=AQkkbNS_VvYDwV3geBPzzOESmGKXZTyeD8q2pMCtMQzf_eQKtD4sFiu8ib4OLJv7VYfF3QtlW_RfXgZfJng2eJJA&_nc_ht=scontent.fhou1-2.fna&oh=961db2816611a7beeac97ae93ab96faa&oe=5EA41563" style="height: 605px; width: 469px;" width="310" /></div>
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<span style="background-color: yellow;"><span style="font-size: large;">Raffle tickets can be purchased via <a data-ft="{"tn":"-U"}" data-lynx-mode="origin" data-lynx-uri="https://l.facebook.com/l.php?u=https%3A%2F%2Fpaypal.me%2FJodyCarrollStables%3Flocale.x%3Den_US%26fbclid%3DIwAR34c0m58QIELCXsiyGPukwWi5xhuxomi_F8m_zqE7DQ5ZgmWvFjG8sPFX0&h=AT3kZNCWJbmfizA231bOOZmg9FznK3eS4Bjjud6CGavUeGOHTB1DxkVD1GuUtInVACKwhYS2dSiwUckQqSEMApa5kYKK3eJE01aY2H7_6KsA7a9i7iMWe8LJrT_9EVv3U9VBF_i5cmO4-YCHmGU1eb9wDIWp7sFNU-K2hVbg-f2og8bAuvVUCA" href="https://paypal.me/JodyCarrollStables?locale.x=en_US&fbclid=IwAR34c0m58QIELCXsiyGPukwWi5xhuxomi_F8m_zqE7DQ5ZgmWvFjG8sPFX0" rel="noopener nofollow" style="color: #385898; cursor: pointer; font-family: inherit; text-decoration: none;" target="_blank">https://paypal.me/JodyCarrollStables?locale.x=en_US</a></span></span></div>
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<span style="background-color: yellow;"><span style="font-size: large;">For every $10 donated, Mrs. Jody will add a ticket to the raffle with your name and phone # on it. She will text you a photo of your ticket(s) if youâd like!</span></span><br />
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<span style="background-color: yellow;"><span style="font-size: large;">***Andrew would love to be able to sell raffle tickets in person, but obviously the quarantine makes that impossible, so that's why we are all virtual. Thank you for your understanding and support!</span></span></div>
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<img alt="Image may contain: Kristi Askin Ross, tree, sky, plant and outdoor" aria-busy="false" class="spotlight" src="https://scontent.fhou1-2.fna.fbcdn.net/v/t1.0-9/90908191_3153589471332080_673463649540505600_n.jpg?_nc_cat=109&_nc_sid=8024bb&_nc_oc=AQm0-KLdIMLUQ3TpyebnruZCWA8h6F1b74iDwLXyvh2rVGJH0D_Qoe94E6cnsplLPDJHFYQl2MnfF3EMirUOOMif&_nc_ht=scontent.fhou1-2.fna&oh=44cc67b0c508cdb982aadc7f4ee4af13&oe=5EA5D637" style="height: 800px; width: 679px;" />The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com0tag:blogger.com,1999:blog-3515728319081642483.post-80276929397704166012019-10-27T23:21:00.003-05:002019-10-28T10:58:27.703-05:00Summer and beyond... update on the horse!Helllllloooo our sweet Army! <br />
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I think about, pray for, and praise the Lord for y'all often! The way you have prayed us through the darkest of days and rejoiced with us on the brightest of days is never far from my mind. I wanted to give you a quick update, since my last post, on what God has been up to over the past couple months.<br />
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Summer and beyond:<br />
We had a crazy busy summer, filled with lots of great memories: A grown ups only vaca in Costa Rica (the trip we won in the raffle at the Gigi's Playhouse Gala last year), Toga party in Corpus Christi for a TOKC fundraiser (where an amazing family paid $5,000 in a live auction for a pomeranian puppy and then gave it to Andrew), officiating the wedding of two dear friends, our 7th year at Pine Cove Family Camp (best family vaca ever), soccer in Colorado, Family Reunion in Branson, awards trip in Park City, Utah, Abby and Andrew meeting up with family friends in Tennessee and then all of us meeting together in Louisiana, and to cap off the summer.... ANDREW'S MAKE A WISH WAS GRANTED!!! <br />
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Costa Rica did not disappoint!</div>
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Our favorite pediatric cancer foundation, Triumph Over Kid Cancer's fundraiser! </div>
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Still can't believe we were blessed with this little guy, Rocket Chase Ross!</div>
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Can you tell, I'm SO SUPER excited for these two?!?! After introducing them a year earlier, it was truly an honor to marry them!</div>
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FMILY CAMP!!! Year 6!!!</div>
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Family Reunion in Branson, while Abby and I were at a soccer tournament in Colorado...</div>
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Since David took Andrew and Grace to the reunion, I only got 2 pics from the whole tripđ!</div>
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These girls crushed it at Nationals! They made it to the semi-finals (lost in over time), playing up an age group!</div>
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The one pic I got of Abby playing, thanks to another mom taking it!</div>
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Team bonding with some white water rafting!</div>
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Besties reunited at the airport in Tennessee (just missing Glo Glo)! This was Abby and Andrew's first time flying all by themselves! They did great!</div>
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Amazing 9 mile hike in stunning, Park City, Utah!</div>
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***A SUPER SPECIAL DAY....ANDREW'S MAKE A WISH!!!***</div>
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The day Andrew got his Wish granted!!!</div>
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A boy and his horse (from just this weekend)...</div>
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Otto doesn't love playing soccer, but he will do it.</div>
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The first time Andrew taught Otto to jump...</div>
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Catching a ride back to the barn after catching Otto in the pasture one day...<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJexmQ2O3kZ77S915IBIBMt9_C6JwSDDrNA_FnWN9uOHtAFJ1YtM2gwDQJ_wfHDG53q6mZaFeSViofW4rj3AeljfqLbe_70QkXOJNssUwGx9ouRp5UjIrSGpD9sv0xiU7YjMNItgRT6DOG/s1600/31EA5219-FB6D-49B8-8790-D2209FCF7C79.heic" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJexmQ2O3kZ77S915IBIBMt9_C6JwSDDrNA_FnWN9uOHtAFJ1YtM2gwDQJ_wfHDG53q6mZaFeSViofW4rj3AeljfqLbe_70QkXOJNssUwGx9ouRp5UjIrSGpD9sv0xiU7YjMNItgRT6DOG/s320/31EA5219-FB6D-49B8-8790-D2209FCF7C79.heic" width="240" /></a><br />
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Abby loves Otto as much as Andrew does... she's become quite a little barn girl when she's not on the soccer field! Andrew and Abby have taught Otto how to run barrels... and Grace walks the barrels course :-)!</div>
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Only God could have known how much Andrew needed a horse in his life and really, how much our whole family needed this horse in our lives. As I've shared previously (I think), when Andrew was little he was always a major mama's boy.... once Andrew was diagnosed with cancer and on SO many pain meds around the clock (including multiple narcotics), we saw a change in his personality that made him very hard to connect with, especially for me. I'm not a very creative person, so trying to get into his world often times felt impossible. I missed my boy so much during this time and had to fight the thoughts that maybe God was putting distance between us during a time all I wanted was to draw near to him to protect my heart for when he called him home. Once Andrew was able to come off the narcotics (praise the Lord), we saw his personality return to normal, but I still yearned to find a way to connect with him like we use to, when it was so easy and came so natural. This precious horse and the stables it is boarded at (Carroll Stables), has been beyond anything I could have even thought to pray for. I absolutely love going to the barn with Andrew, it is our happy place (totally a God thing, since you know I'm not someone who loves a whole lot of dirt and being around horses... is not a dirt free environment ;-). The owners of the barn have become like family in just a few short months. They have taught us so much about caring for a horse, they take amazing care of Otto (and all the horses at the barn.... those horses are all living their best life now), have taught Andrew how to throw a rope (lasso), Grace is always looking for Mrs. Jody, so she can help her around the barn or just talk her ear off, we get to go on family trail rides, and really, they just love us well. Pine Cove couldn't have leased us a more perfect horse (for our family). Otto is 17 years old and works hard for Andrew, whether he's teaching him how to kick a big soccer ball, do an obstacle course, jump, run barrels, or just go really fast (Andrew's favorite thing to do), but he's equally amazing if Grace and Abby ride him. David and I love riding him too, even though we usually just ride after the kids (so we are riding in a kids saddle). <br />
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One more thing that is an extra little hug from God is the drive to the barn... the barn is about 25 minutes from our house, but it is such a beautiful drive, complete with a painted sky (especially during sunset) that boasts of God's majesty. The drive to the barn is always a great time chatting with the kids, listening to worship music, or just talking to God. Andrew's Make A Wish gift has been such a tremendous gift to our family in SO many ways. I did my best to give you a glimpse of what the blessing means to us, but it really feels impossible to articulate. We only have Otto until the end of May and then Otto has to go back to Pine Cove to work over the summer for camp. The kids will often say, "I can't imagine not having Otto in our lives anymore. I hate to even think about it!" Then, I know they are really hoping we can get Otto back after he is done working for the summer, but by that time the Make A Wish gift will be over (the gift was boarding and vet for Otto for 9 months) and owning/leasing a horse isn't cheap đŹ. I have to be honest, when I think too much about it, I sort of get anxious at the thought, so I have to choose to give it to God and trust that He will either change our hearts or provide a way for us to get Otto back. Will you please join us in prayer about God's will? I know it sounds silly to already be worried about that, since we have still have 7 months left with Otto, but it's a reality that's already on everyone's heart. <br />
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ABBY- playing for the u13 Houston Dash DA (soccer continues to be her happy place), loves Logo's (this school couldn't be a more perfect fit for her), and is still my little (big) side kick. Having a sibling with special needs makes for a pretty amazing human, but it also requires a lot of sacrifice and potential issues that, if you aren't hyperaware of, could be overlooked. For instance, studies show that kiddos of a sibling with special needs often times are perfectionists because they don't want to mess up and cause more stress on the family, they may feel over looked, may feel like they don't want to share their feelings/stress because they know their parents are already stretched so thin, etc. You take that reality and multiply it by two because both of her siblings have special needs of some sort. Therefore, we pray often about how to best pour into Abby and make sure she gets the time and attention she needs. One way we have found to be super helpful is making sure there is time for me to take her on a lunch or dinner date 1-2 times per week. I pray about what topics God wants me to talk to her about on our dates and He is faithful to answer that prayer every time (whether I go into our dates with a topic on my heart or let it organically come up). The time spent with her in the car driving to and from soccer is also a great time to connect with her one on one. I know we are quickly approaching the teenage years, so we pray that God preserves her, keeping her the sweetheart she is now, despite any teenage hormones. A peak into this girl's heart... you know Abby hates when David and I are away overnight, so us going to Costa Rica for 5 nights without her was a big step for all of us. When we came home, I found this as Abby's screen saver and she hasn't changed it yet (even though her friends often ask her "why do you have your mom as your screen saver?" đđđ). <br />
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ANDREW- pain has been well controlled on only 3 pain meds. He is thriving in school (even though he is still playing catch up from the 2 years of school that he missed most of from being in treatment, too much pain to go to school, sleeping through most of the day at school because of all the pain meds he was on, etc). He is going to play basketball this winter. Last time he played basketball is before he was diagnosed and he would get random bouts of tummy pain that made him have to sit out at times. Next scan is in December. He still has weekly playdates with his best friend, Mr Alan, and plays daily with his buddy, Christian, who lives down the street. This is big because Christian would knock on the door daily when Andrew was in really bad shape (from cancer), asking if Andrew could play, and I would have to tell him that Andrew couldn't because he was sleeping (Andrew would come home from school, when he went to school, and crash, sleeping much of the afternoon and then going to bed at 7:30 pm.... his poor little body). To see Andrew get to play hard outside is a gift we donât take for granted.<br />
***PRAYER REQUEST- Andrew's next MRI scan is on Dec 23rd, will you please pray for no progression what so ever? Also, Andrew had a lot of tears one night this weekend because he hates having cancer and the fact that he has to take so many meds and if he forgets his meds (like he did one morning last week), he has to deal with unbearable pain. Naturally, he gets discouraged when thinking about what his cancer is up to (is it growing, when will it start to grow again, will I always have cancer, will I die from cancer.....). He is so rock solid in his faith, but there are moments when the âwhat ifâ monster sneaks in and tries to steal his joy and hope. We all just snuggled him in bed and tried to honor his feelings (we want him to have a safe place to voice those thoughts, so we can help him process those fears and not ever think that having those thoughts makes him any less strong in his faith, brave, or that itâs too much for us to bear) and share with him that the enemy attacks us in the same way. As a family, we talked through the truths found in scripture, reminded ourselves of who God is (His character), and looked back at ALL that God has seen us through thus far (we know He wonât quit now). These types of conversations are SO hard... like SOOOOO hard (who wants to talk to their baby about their mortality and the sin in the world that he is experiencing first hand), but at the same time... itâs like going to the gym and lifting heavy weights... faith weights. Those conversations spur us on, keep us in fighting shape, recalibrate our hearts, and unite our hearts to the One that is all powerful, all loving, all knowing, and always good. Will you please also pray that Andrew (and the rest of us) would continue to root his hope and joy in the Lord and not be led by a spirit of fear? THANK YOU!!!<br />
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GRACE- still loving cheerleading at Apex cheer gym! She fractured her wrist at cheerleading, so she's out for a couple weeks, but can't wait to go back. Going to the ER for a normal child injury versus a scare with Grace's heart, lungs, etc, is a little refreshing and gives perspective. We hate that she hurt herself, but it was like "great, wrap that wrist up and we will be on our way!" She hasn't let her splint slow her down a bit and she never complains about it. Grace isn't doing her horse back riding therapy at this time because she is busy doing "therapy" on Otto. I can't believe how brave she has become. Otto is much bigger than the pony she use to ride and she rides him all by herself, bareback and all! She continues to LOVE school and is crushing 1st grade in an inclusion class with support 90 minutes a day (in class) with the amazing Mrs. Jones (she was Grace's aid last year too).<br />
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KRISTI- I could use prayers for February 22nd, 3 years since Andrew was diagnosed and that is the timeline his Oncologist gave us for how long he thought Andrew would live. We have expectant hope and trust that the Lord will make a way for Andrew to live a long life and we'll never stop praying for a miracle of complete healing or that he could live to be an old man with this cancer being managed as a chronic condition versus a life sentence. In March, it'll be two years since his last round of PRRT (radiation treatment that has never been done in a child before, but it was our only hope) and 2-2.5 years is the median progression free survival in the PRRT studies (the average time when/until a patient progresses). We use to feel like we would be so grateful if Andrew's disease could be stable for 2-2.5 years, but that time has flown by and I am starting to have a little anxiety; I don't want this sweet time to end, where breakthrough pain isn't a regular part of our every day life, acting as an in your face reminder that his body is riddled with cancer. We will fight to keep our eyes fixed on Jesus and continue to change our "what if's" to "even if's". #butGod #hopeon #Heisourhope<br />
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DAVID- he said he could use prayers in preparing for his goal of running 150 miles in the Snowdrop Ultra 55 hour race at the end of this year. The difference this year is that he knows what he is getting himself into; therefore, training has not been nearly as enjoyable, as he knows the impending doom coming his way (when ever fiber in your body hurts). <br />
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If you have made it to the end of this update, you are AMAZING and we really appreciate your support for our family! In hopes of making you smile, here is one of my new favorite videos ever (it's only 3 seconds, but it's a great life lesson)... this was taken this weekend at Gigi's Playhouse Sugar Land's Trunk or Treat. <br />
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When all else fails... just shake it!!!!!!!!</div>
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The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com1tag:blogger.com,1999:blog-3515728319081642483.post-90946008393248403602019-06-12T22:40:00.002-05:002019-06-12T22:40:47.263-05:00You're never going to believe this one...Hellooooo strangers! I have to start with a giant apology first, every time I quickly post an update on the kids or our family on Facebook, I always intend to post updates on the blog too because I know some of you are not on Facebook, but I inevitably forget every. single. time! Please forgive me! <br />
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The Ross family circus has continued to be full of high wire, trapeze, and lion taming acts, one after another, but God continues to be faithful through it all! I will give you a super fast run down of what's gone on the past 6 months (sigh... that was so long ago, sorry) and then I really need your prayers and input on a major topic we are praying through.<br />
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Abby- God has called Abby to go to a private Christian school next year (TOTALLY EVIDENCE OF GOD CHANGING HER HEART). The school is a university model, so she will go to school 3 days a week and homeschool 2 days a week, which will give her a lot more flexibility and time with the family since she is so busy with soccer. Abby continues to LOVE soccer and is excited about playing on the u13 Dash DA team next year (it's the highest level soccer you can play at her age, so it's been a goal of hers). She just had her last day of 6th grade on June 6th and the messages I read in her yearbook make me one grateful mama. A number of kids wrote how much she has impacted their lives in a positive way, helping them to make better choices and care about things that matter. While she may have just missed national honors society, etc, we continue to affirm her for being a light to those around her. <br />
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Grace- she crushed Kindergarten this year, finishing at or exceeding all expectations/requirements for typical developing Kindergarteners. I couldn't be more proud of her and grateful for everyone that played a role in her success. So many people (teachers and students alike) pour into her every single day and yet they share how blessed they are by knowing her. Grace is continuing to ride horses over the summer, will do a couple weeks of summer school, and her favorite of all... have her sissy tutor her.<br />
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***HERE IS WHERE WE NEED YOUR PRAYERS AND INSIGHT- Andrew had a great 4th grade year. He only missed a hand full of days this year because of pain, Dr's appointments, or being sick, which is truly amazing. His pain has been well controlled, with random spurts of pain here and there that seems to come out of nowhere. He has had days where he has felt "woozy" mid morning at school, when the nurse has checked his blood sugar it has been low, so she's given him juice and crackers and he has felt better. It breaks my heart to think that he could be developing diabetes at such a young age because of his cancer, which is obviously impacting his pancreas or as a result of the shot he has to get monthly to try to slow down tumor progression. We will start checking his glucose more regularly and follow up with his oncologist to come up with a plan, so I'll keep you posted on that. His next scan is scheduled for June 25th, will you PLEASE pray that his disease continues to be stable? <br />
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Andrew has been riding horses for the past year and we have found that it is such a perfect fit for him because it requires exercise, in the sense that he uses his core a whole lot, and it takes a lot of courage (which he has a ton of). There is something about horses that brings him so much joy, peace, and confidence. He even loves taking care of the horse before and after he rides. There are intimate parts of this story that are hard for me to type, so please bear with me... So, we were suppose to go on a Make A Wish trip for Andrew in 2017, but had to reschedule it because Andrew was approved for PRRT treatment right before and we needed to jump on the opportunity, so we rescheduled the trip for 2018. However, again we had to cancel it because Andrew was in so much pain at the time that we didn't want to take him on a trip that he wouldn't be able to enjoy because he was hunched over and throwing up from pain. We tabled the Make a Wish trip until we were in a better place, so we just started praying and talking about what Andrew wants to do for his MAW trip again. You see, the last two times we talked to Andrew about what his wish would be, he was on a ton of pain meds and really not himself in so many ways. The past 6-7 months have been an experience I will never take for granted... we have seen our boys personality return, since coming off a lot of the really heavy duty pain meds. It makes my heart ache thinking about the 2 years we spent trying to help Andrew feel as "normal" as possible when his life was anything but normal and it was hard to remember what his personality was really like because the kid in front of us was so often in a manic state (I intended to explain further, but its still a little raw to go there at the moment, so more details to come at a later date). It was painful to watch his best friend (Abby) fall apart inside over and over as she would try to connect with him like she always had and constantly be faced with the reality that he was just different now. There was a spoken and unspoken sadness that we were losing our Bubba, our Buddy, My Boy, physically and emotionally. It was so super hard to reconcile. All the while, Andrew was still the same great kid, with an amazing heart, but in the battle for his life (literally) and a battle for his sense of self. He knew he was different, but he couldn't do anything about it (the pain meds were necessary to keep him comfortable). After his 4th round of PRRT, we felt like we were at a place where we could start weaning him off of some of the crazy, heavy duty pain meds in hopes of getting our boy back (ever so slowly... it was almost a 5 month process to get him off of the really heavy ones) and we were dealing with a lot of rebound pain, etc (we would wean down and have to go back up, try to go down again, and go back up, etc). During this time he began horse back riding. It was through horse back riding that we witnessed improved pain control, increased confidence, courage, and so much more in Andrew.<br />
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There are 3 more things that weigh on our hearts heavily... We spend a lot of time on the soccer field with Abby. It's easy to connect with Abby around soccer because of her passion for it and because we both enjoy sports a lot. It has been hard to find ways to connect with Andrew (for us and his friends) over the years for various reasons (one obvious one being the different world his pain meds had him in), but the reality is, Andrew doesn't love competitive sports very much (this is probably a blessing, since cancer would keep him from being able to do them in many ways because of the heat and physical exertion, which he can do, but doesn't have near the endurance his peers do), he knows he is different because of his diagnosis (he lives with realities and experiences other kids can't relate to), so we have to be creative in trying to find ways to get into his world. Horse back riding is one way that we can get into his world! While we spend a lot of money on Andrew's health, we want to be able to invest time and money into something he loves, since he obviously doesn't love being treated for cancer and that will be his reality as long as he's on this side of heaven, as there isn't a cure for his type of cancer. This brings me to the biggest and hardest point to type... In many ways, I feel like Andrew's 5th grade year is monumental because February 22nd of this next school year marks the time frame his Oncologist told us he would likely no longer be with us. I so badly want to forget that statement (in addition to the "we are just kicking the can down the road" statement), but the enemy won't let me; therefore, I have to lay that date, that statement on the alter daily and remind myself that God is the author of this story and nobody else! <br />
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This is the place we find ourselves when we began discussing with Andrew what he wanted to do for his MAW trip next year and he says "I don't want to go anywhere, I just really want a horse." We have tried to sell him on any trip or experience under the sun, but there is no question a horse is the deepest desire of his heart (even when we make the responsibility of a horse sound dreadful). <br />
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Here is where you come in, will you please join us in praying about how to handle Andrew's request? We love the idea of allowing Andrew to be all in on his passion like Abby gets to do with hers and for us to have something we can do alongside Andrew (spend time at the barn, etc) more than just an hour a week. BUT it sounds SO overwhelming and unrealistic. While MAW would cover some of the expenses, like the horse and some initial vet bills, etc, this is a long term (expensive) commitment. It's hard to picture how in the world we could afford the equivalent of another car payment. In addition to praying for wisdom for us, please pray that God would align Andrew's heart with His will. Also, we would love any insight y'all have to offer. If you are a horse person or know someone that is, we would welcome your insight and advice... PLEASE! You can comment on the blog, message David or I on facebook, email us, or call us. Thank you for riding this roller coaster with us always! We are literally sustained by your prayers, so please keep bringing our family before the throne because our God hears, sees, and cares deeply for His children and their requests! #butGod #hopeon<br />
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<br />The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com2tag:blogger.com,1999:blog-3515728319081642483.post-58054141372943749892018-11-22T22:02:00.003-06:002018-11-22T22:03:15.251-06:00Thankful you haven't forgotten about us :-)Holy cow, we have been MIA for waaaaay to long!!! For those not on Facebook, you must think that we moved to Mars ;-). I can honestly say that we have not had more than a few minutes to sit down each week, so wrapping my head around trying to play catch up on the blog felt like a daunting task. I'm jumping on today to just give y'all an update on where we are at and not going to try and recap all that has happened since my last post because it might make you fall asleep or cause your eye balls to bleed.<br />
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If you can hang with me to the end of this update, I will reveal the super rad 2018 Snowdrop 55 hour Relay Race shirts that I'm SOOOOOOOOOO excited about<span style="text-align: center;">!!! You could always just scroll to the bottom, but y'all aren't cheaters ;-)</span><br />
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Let's start with this school year... this school year has been one for the record books in that each kid has an exceptional teacher(s) that were clearly hand picked by a big God who cares about the details.<br />
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-Grace is in Kindergarten and absolutely LOVES school! She is surrounded by kids who truly love her unconditionally. David was watching her at recess one day and she had 3 or 4 little boys around her pushing her on the swing and playing with her. Her friends in her class love to try and help her with everything, to which Grace often replies "Grace can do it by herself" and she will often times pick up her supplies and move to a different table to prevent kids from trying to help her too much. Her teacher has high expectations for her and holds her to the same standards as her typical developing peers. At our recent parent/teacher conference (the one that all kids have to get an update on how their child is doing at the midway point in the year), her teacher showed us all of her test scores and she is right where she should be, as if she were a typical developing child, and in fact she crushed some of the goals like being able to count to 20; she counted to 43 and then decided she was all done, but her teacher said "I'm sure she could have kept on going, but she lost interest." I LOVE, LOVE, LOVE that her teacher expects big things from her and doesn't put a ceiling on her ability, we just stand in the back ground singing God praises because there is no explanation, other than His goodness, as He has put gifted educators in her life since she was 2 years old and then a whole lot of grace has filled in all the gaps. Her teacher also told us that she is very chatty in class, always talking to her friends (often times when she is supposed to be listening to the teacher), to which I replied with total honesty, "I know it's probably really frustrating for you when Grace is chatty, for which I apologize, but I have to be honest that inside I'm praising the Lord because the fact that she can even be chatty and that her friends can understand her speech is such a GIANT blessing. Many kids her age are working on one, two, and three word utterances and that doesn't account for the fact that she spent the first 15 months of her life sedated and intubated for much of it." One of Grace's many gifts is her ability to make you feel like the most important person in the world when she sees you and runs to you with a giant smile and open arms. When she sees her Bubba at school (she is always looking for him at school), I know she blesses his day in a big way because of how she always greets him with overflowing joy. It makes all of his friends a little jealous I think because, who doesn't want to be made to feel like a rockstar for just being you, not doing anything special except just being you?!?!<br />
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My favorite picture of the whole year so far... Grace in the science lab!!!</div>
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Grace is doing cheerleading as her extra curricular activity and she is crushing it!!! It's a special needs team, so there are a number of teens and adults with Down Syndrome, but many have various types of special needs. Grace is by far the youngest one on the team (second to her bestie Sadie, when she's there), but she totally knows her routine and loves to practice at home. We can't wait to watch her and her team at her first competition in a few weeks!!! She's also been doing speech once a week at Gigi's Playhouse with Mrs. J, a speech pathologist who is a super hero!<br />
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-Andrew's teacher this year is beyond precious! She is GOOD PEOPLE! Not only is she the sweetest little thing on the planet, but she's a great teacher who has a great perspective on making sure Andrew learns wha'ts important (she has no problem pushing him where needed), but doesn't sweat the small stuff. You see, it's so hard to know how hard to push Andrew because only God knows how long he will be on this side of heaven, so you don't want to make his life unnecessarily stressful, but at the same time, we feel called to raise Andrew as if he is going to live a long life and, therefore, he needs to have a solid educational foundation. That balance can be so hard to find, as it relates to EVERYTHING in life (which makes the enemy salivate I'm sure), from discipline, school, family, friends, preparing for the future (planning and saving for when the kids will need a car, college, etc) and Mrs. Stuart (Andrew's teacher) puts this momma's heart at ease because God gives her great perspective and discernment on what that balance looks like, so it takes a lot of pressure off of us. Another huge praise is that Andrew hasn't missed a day of school yet this year, except for when he missed to go with his besties, Mr. Alan and Mrs. Kathy, to a Sunshine Kids event at Minute Made Park where Craig Biggio hosted kiddos with cancer and their families for a day of fun hitting and running the bases, playing games, eating yummy food, and making great memories (especially cool for big Astros fans, like Mr. Alan and Mrs. Kathy). Since Andrew has an adult disease and it is treated differently than all other pediatric cancers, Andrew rarely gets to see other kiddos who are in the same fight for their lives as he is. I think it's really helpful for him emotionally, to hang out with some of these kiddos, since he can relate to them in many ways.<br />
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Andrew is continuing to ride horses as his extra curricular activity. For years, we have prayed about what Andrew's "thing" is.... he's not the most athletic kid (which we see as a blessing from the Lord, since it's highly likely that cancer would have prevented him from being able to keep up with his peers in that area) and never looked forward to or loved an activity so much that he hated to miss, until he discovered horse back riding. He lights up in a special way with those beautiful animals. He has to take care of the horse, preparing it to ride (cleaning its hooves, getting its saddle and reigns on, etc), and cleaning it off after. Whether its scorching hot or freezing he never complains. He got thrown from one of the horses that got spooked, it was a scary fall that took 10 years off of my life, and it made me so grateful for helmets, as well as ALL that dirt in the arena (that I'm usually cursing because I hate how dirty I feel when I leave the barn) that softened the fall. He was so courageous as he cleaned himself off and got right back on that horse. I was crazy proud of him! I really feel like those horses help with his pain, confidence, challenges him mentally (who knew there were SO many things to know when it comes to controlling a horse), gives him physical exercise (it's a great total body work out)... and now I'm getting teary just thinking about how grateful I am that the Lord led us to horseback riding (the sweet horses he rides, his amazing teacher, and the new amazing family we met at the barn, since our kids ride together, who have quickly become dear friends). God is just that good! The script He writes is full of twists and turns, but never fails to honor our prayer that we would see His hand in the details of our day.<br />
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Andrew taking care of his horse after his ride...</div>
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Heading out to ride. This is the time Andrew said to me, "I wish they had a noise machine with the sound of horses walking because that's my favorite sound!"</div>
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In terms of Andrew's health.... as far as we know, his disease is stable. His next scan won't be until March, which is a little scary to not know before then what exactly is going on in his little body, but pain is usually a pretty good indicator for us and at this point we have been able to come off of one opioid entirely and we have been able to wean down on methadone ( a narcotic used both for pain and drug addiction) by over 60%. He is still on 4 other pain meds, but this is huge because we have continued to see his personality get closer and closer to "normal." We have no idea how long PRRT will hold his cancer back and we don't know what the next step will be, but we know the one who does know. Will you please pray that God will clearly direct our steps as to what to do next (when, where, what, who)? The Lord has brought this surgeon, who previously practiced at MD Anderson, but is now Chief of Pediatric Surgery in North Carolina, into our minds a few times lately. She is world renowned for her ability to pluck hundreds of tumors out of little people's abdomens (often times requiring 20 hours or more). I don't know if surgery will ever be an option for Andrew (it would in no way be curative, but with the goal of reducing the tumor burden, hopefully giving the cancer less opportunity to grow and for there to be less sites to treat in the future) and if so, when.... Is this the smallest the tumors will be now (post PRRT), so now would be a good time to try going after them again or will there be treatment down the road that may give a better response or new survival technology that would make it better to wait? The hardest part is that there is no "right" answer, in the sense that his Dr's can't say definitively one way or another, so we need God to tell us. I'm debating if I should reach out to that surgeon in North Carolina now or not yet. While she's clearly an amazing surgeon, I'm fairly certain she has never had a child with Andrew's type of cancer before (not sure how much that matters) and our favorite Dr in Denver, Dr. Liu, (who is also a surgeon) has seen more patients with Andrew's type of cancer than anyone in the country, however, he is only an adult surgeon, so he can't operate on Andrew right now. Then, of course, there is a very real probability that surgery may not ever be an option.... can you see how we have more questions than answers?!?! This is where y'all come in, will you please join us in praying for wisdom that can only come from our all-knowing, all-loving, all-powerful Heavenly Father? Please, also pray that Andrew's pain would remain well controlled and we can continue to go down on his pain meds and never need to go back up? Thank you for being such faithful prayer warriors, knowing y'all are praying means everything. A precious friend of mine, who also happens to be our pastor's wife, randomly texted me asking how she could be praying for me. As I contemplated my response to her, I realized that while we had only been talking and praying about this surgeon for a couple days, the second I made my prayer request known to my sweet friend, it was as if I felt a physical and emotional release, a familiar feeling that always comes with knowing y'all are covering us in prayer. I hope that you too have experienced the power of corporate prayer (even if not together physically, as we petition our good, good Father).<br />
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Andrew and I went to Legofest...</div>
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Our masterpieces...</div>
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Andrew LOVES lego minifigures.... they had a ton of shops with this many mini figures at each one! </div>
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-Abby is at a 6th grade campus, that is impossible to adequately explain in words.... picture a place where learning is made so fun, purposeful, and "all in" in every way from top to bottom (I'll bet even the custodians dress up in tutu's, etc for color out days). They are so focused on character and helping these kiddos become great humans, it's contagious. Abby has 6 top notch teachers (she would have 7, but she has off campus PE) that anyone would be lucky to have just one of them any given year. These teachers and administrators would literally swing from the ceiling, if it meant helping these kiddos learn better and build great character... <br />
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Here is Abby's Social Studies and Home Room teacher, Mr. Fraser, teaching a lesson on altitudes, etc. This is just a typical day at Poly Ryan Middle School</div>
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Her school has close to 700 kids, so she's had a chance to make a lot of new friends and you probably aren't surprised to know that her most favorite new friends are in the Life Skills class. It didn't take Abby more than the first day to set her eyes on this sweet boy, Maddie. Abby and a couple of her friends sit with Maddie every day at lunch (I love and appreciate that Abby's friends are always willing to join her in spending time with her special needs friends and they love them too). There are a number of other kiddos in Maddie's life skills class (in addition to their teachers) that Abby also LOVES, so much so that she has requested that they make an exploratory class (which are 6 week classes where they get to explore activities like cooking, fishing, caring for animals, tennis, etc) around serving in the life skills class and I think her dream may be made a reality in the next 6 week session! A few months ago, they had elections at Abby's school for House leader/Representative (within the first week of school the kids were each placed in one of 4 houses, Abby is in Amistad, which means friendship, and their color is orange). Maddie is also in Amistad. One day during lunch, the school was talking to the kids about what it means to be a house representative and at the end they asked anyone interested in running to put their hand up. Abby came home and told me that at first she wasn't going to get a paper because she knows she already has a ton on her plate, but then she said she heard me in her head saying "Abby, you should at least take a paper and be willing to pray about it," so she took a paper (that also served as confirmation that they are indeed listening to us even on those days we really question that being a reality ;-). The more important part of the story is that Maddie proudly put his hand in the air to get a paper too. Abby spent a couple days praying about if she should run (dreading writing a speech and having to do a panel interview... speaking in front of a bunch of people isn't her jam) and she came to me and said, "I feel like I should be willing to put myself out there and run, but I really wish there was a way I could help Maddie run, since I know it would be difficult for him to do it on his own. I agreed to ask Maddie's teacher (who happens to be Grace's amazing teacher from last year and a dear friend), who then asked the principal and counselor (who are crazy amazing in their willingness to be ALL IN for the kids they serve) and they said YES! Abby and Maddie worked together on making their posters and writing their speech (Abby did the majority of the talking and Maddie said a couple sentences at the end). There were about 15 other kids running too.... after their speech in front of hundreds of their peers Abby was so touched by the fact that a couple "rough" boys "that like to get in trouble" (in her words) came up to Maddie, looked him in the eye, shook his hand and said "you have my vote Maddie!" This power team made it past the first round and were on to the panel interview. During the panel interview, Maddie made everyone laugh as he talked about cheeseburgers and then would look adoringly at Abby and say "Abbyyyyyy!" Abby shared her heart to lead her house and to to give Maddie an opportunity he wouldn't otherwise have. They ended up winning House Representative!!! There are a million facets to this story that I think are so cool, but I will boil it down to this... It is such an honor to get to play a small part in paving the way for kiddos and adults with special needs, helping the world to see that they matter (BIG TIME), the sky is the limit in terms of what they can achieve when people are willing to invest and believe in them, and that they are such a valuable part of society as they teach the rest of us what it means to love others well. <br />
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Abby, Maddie, and Mrs. Patterson (the principal)... the most "all in", purposeful, and high energy principal EVER!!!</div>
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Abby and Maddie at their first school dance!</div>
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Waiting their turn to give their speech...</div>
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Speech time...</div>
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A random pic someone took during lunch and sent me. I can only imagine what Maddie is telling Abby :-)</div>
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This is how they find out their houses.... spin a wheel!</div>
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high fives...</div>
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Slide into your house...</div>
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Team Amistad!</div>
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Then, you get to celebrate with some of your favorite peeps that are also in the Amistad house! This is Mrs. Curtis, the nurse and precious friend!</div>
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Mrs. Rufo (the amazing counselor and precious friend.... Abby has most classes with her daughter and Grace has been in class with her son for the past two years) is also in Amistad, but for some reason I didn't have a pic of them together on color out day. This pic was from Gold out day for Pediatric Cancer.</div>
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Abby is of course still playing lots of soccer and loving it!!! That is her happy place. Her team went undefeated and finished first place in the top 06 bracket (they played an age group up). <br />
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The kids halloween costumes were my favorite this year because they were each something they truly love...<br />
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Andrew was Aragorn from Lord of the Rings (his favorite movie), Grace was Astrid from How to Train a Dragon (her and Andrew are always playing "Dragon Riders" together), and Abby a player from player from League of Their Own (the next best thing to a soccer player and it was the same costume as I wore ;-)</div>
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We had another fantastic year at the Gigi's Gala! This year was made extra sweet because we won a trip to Costa Rica (for 8 people) in the raffle (we still have to pay for plane flights and excursions, but the house that sleep 8 + people is AMAZING)! What?!?! We never win anything! It's hard to even imagine David and I getting away for 5 nights (the trip is actually for 6 nights, but there isn't a chance that I can consider 6 nights without hyperventilating... even 5 nights gives me heart palpitations). Will you please pray that nothing gets in the way of making this trip a reality and that the Lord would just provide and bless every detail that He knows we need? THANK YOU!!!<br />
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My girls... these sweet ladies sat at our table, but we are missing my Mother in Love in this pic :-(</div>
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The Gigi's Playhouse Sugar Land Board!</div>
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We have had a couple mini birthday celebrations for Andrew so far, but his real birthday is on Nov 26th! Can't believe my boy is almost 10 years old! <br />
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Celebrated a joint birthday for Mrs. Kathy and Andrew!</div>
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Andrew got a pocket watch from Mrs. Kathy and Mr. Alan! Mr. Alan has a matching one! Andrew hasn't put it down since, he even sleeps with it.</div>
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Celebrating a joint birthday with cousin Joe and Andrew!</div>
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***We will be running the Snowdrop 55 Hour Relay Race over New Year's again in support of Andrew's Army!!! We have two teams of 10 runners (where Abby and I will both run about 7 hours or more) and 2 individual runners (David being one of those two solo runners going for 100 miles by themselves). I put out a challenge where people could submit their t-shirt ideas for this year's race and whoever won would get one of these special shirts. I couldn't believe how many creative friends we have, there were so many GREAT ideas, but here is the winner!!!<br />
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The winner is a mighty prayer warrior of ours, Lauren Thurston! She put SO much thought into every detail of this shirt that I literally cried when I saw it!<br />
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FRONT- There are 5 stars for the 5 Rosses, 7 stripes because 7 is a holy number, our anthem, #butGod under the stripes, Fight Like a Ross on one of the stripes, and a gold ribbon for pediatric cancer<br />
SIDE- a military symbol on the sleeve (we love our service men and women), which also represents Down Syndrome (the three arrows pointing outward is a tattoo many families who have kiddos with DS have, as it represents the 3rd copy of the 21st chromosome and always moving forward, setting the bar high for our kids)<br />
BACK- the symbol at the top (a cross with AA in it) represents our trust in the Lord and being a member of Andrew's Army. This is the symbol Abby created and writes with a sharpie on her wrist before every one of her soccer games. The 4 logos are our amazing sponsors that unwaveringly support Andrew's Army and Gigi's Playhouse. They also happen to literally be our favorite restaurants, our favorite place to work out, and overall some of our favorite people on the planet.<br />
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On this Thanksgiving Day, I want to tell each of you that we are thanking God for each of you today! Thanking God for connecting our families whether we get to do life together in person or through Facebook/the blog, etc. Regardless of how our lives intersect, you matter to the Ross family in a big way! <br />
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HAPPIEST THANKSGIVING!!! </div>
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So thankful for this crew (my peeps and Papa and KK)! What a great way to celebrate Thanksgiving! My favorite part is hearing each person share what they are grateful for... let me give you a sample from Grace's- "I'm thankful for Bubba being my best friend and not having tummy pain, Sissy for being so sweet and for being good at math, Mommy for doing a great job at work, Daddy for doing a great job at soccer, and Papa and KK for playing babies with me." She said all this consecutively and without any prompting. That kid is all kinds of hilarious and sweet all rolled into one! </div>
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"But thanks be to God! He gives us the the victory through our Lord Jesus Christ!</div>
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1 Corinthians 15:57</div>
The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com2tag:blogger.com,1999:blog-3515728319081642483.post-20726107732342184722018-08-23T10:11:00.002-05:002018-08-23T10:43:41.164-05:00Summer ShenanigansThe Rosses haven't had a second to get bored yet this Summer, so it's hard to believe it's almost a new school year already! <br />
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This is a tag team post (both David and I adding details when we can, so I apologize ahead of time if we make your head spin)... Since our last post in July, we had the chance to head back home to Southern California. Abigail had a great opportunity with her soccer team to play in the San Diego Surf Cup in Del Mar, CA. Over 1,300 teams applied to play in that tournament and roughly 800 were chosen to play. Abigail and her team have had great opportunities to play against good competition, but this was certainly some of the best. The tournament was definitely a lot of fun, but we also had a great time visiting Kristi's mom, visiting lots of old friends, and taking the kids to Disneyland, California Adventure, Legoland, and the beach. Soccer was definitely a great excuse to head home!<br />
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Here are some pictures to better describe our whirlwind trip!<br />
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Upon arrival to California, we grabbed some lunch and headed straight to the beach to meet up with Kristi's friends, Vanessa (and Allison, although we remembered to take a picture after she left). Allison is Kristi's friend from sorority and they taught together at United Spirit Association. For Allison's 40th birthday, she organized a fun run in support of Andrew.</div>
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After the beach, we headed to Wray's house (David's friend from high school) and had a mini reunion with lots of old friends.</div>
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By the time we left Wray's house to drive to the resort we were staying at with Kristi's mom for a couple nights, Andrew and Grace were worn out and knocked out within five minutes of the drive. <br />
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On our way to San Diego to check in to the hotel for the soccer tournament, we stopped off at Legoland in Carlsbad. Andrew was really excited about this part of the trip and it turned out to be pretty cool. Seeing Legoland through his eyes made it especially cool.<br />
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Perhaps one of the best parts of our Legoland trip was getting to see Grace drive a car all by herself. Grace was an awesome first-time driver; however, if you are standing on the track when she is driving by, you might get an ankle cruncher. She's actually a great driver when she's looking straight, instead of at us as we were cheering her on.<br />
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We're good! Thumb's up!</div>
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After checking into the hotel in Del Mar, we got to bed early in order to be ready to go for three days of soccer. Surprisingly, it was hot for all three days of the tournament, but that heat (and minimal humidity) was nothing for our girls from Houston. They played great and walked away undefeated, tying two games and winning the other two games. Also, Kristi's friends always do such a great job of going out of their way when we are in town and making time for us (no matter how much of an inconvenience it is for their daily lives). It was so nice of them to drive two hours down to San Diego to watch one of Abby's games and have lunch after the game.</div>
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Do you see the second girl in from the left? Her name is Maliyah (she is one of my best friends' daughter) and she is headed to UCLA to run track (she's amazing at soccer too). Crazy proud of this girl... I am now officially a Bruins fan!!! Go Bruins!!!</div>
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Grace warming up with the girls! She is like the mascot for her team. These girls are so sweet with her... it's like she has 12 big sisters!</div>
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Grace did not want to miss out on any pictures in front of the large posters, so while the team was taking their photo, Grace would wait patiently on the side and when they were all done she would walk up to the stage and strike a pose. These two pictures just couldn't be passed up!</div>
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After the girls played their last game, many of the families met up at the beach and everyone had a great time frolicking in an actual blue ocean (all we have is hot, brown, nasty water near us in Galveston, TX).</div>
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David was the responsible adult that went out in the water with the kids to body surf... I'm pretty sure he had more fun than the kids did ;-)</div>
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We left the beach and headed to Anaheim to finish out our trip at Disneyland and California Adventure! Andrew and Grace do such a great job of cheering for Abigail in her games (especially Grace, she loves to coach the girls with "pass it to each other" , etc) and not complaining about having to go to them all the time, but it was obvious that after three days of spectating, Andrew was very excited about finishing up the trip at Disney.</div>
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Our hotel was right across the street from Disney and we could see the nightly fireworks show out of the window of our room!</div>
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The kids (especially Andrew and Grace) love all the gift shops in Disney. We have made it a family tradition to take pictures with various hats on (and never buying any of them;)</div>
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Andrew loved all these posters!</div>
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Grace has finally made it to 42" in height, so she was able to ride some big kid rides on this trip. She did awesome, had so much fun, and got off every ride saying "I'm so brave!" Grace was able to ride Splash Mountain, Big Thunder Mountain Railroad, Radiator Springs Racers, Soarin' Over California, and many other less adventurous rides. Here she is on Radiator Springs Racers!</div>
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Gadget's Go-Go Coaster!</div>
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Splash Mountain (maybe don't tell Grace's cardiologist about this one)</div>
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We were even swallowed by a whale!</div>
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The perks of growing up dancing in Southern California is that Kristi somehow has known someone in every parade that we have ever watched at Disneyland. This trip was no different. When one of Kristi's friends that she grew up dancing with found out she was at Disneyland, she asked if we were going to be at the next parade, and if so, where we would be sitting. Kristi informed her and she said she would let some of the cast members in the parade know to look out for our kids. We didn't get many pictures to show it, but they did such a great job of making our kids feel special. While they were in the middle of their routine in the parade, almost every character and many dancers talked to or motioned to our kids.</div>
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Lastly, in regards to Disneyland, since Grace has been little she has been terrified of all characters at Disneyland (or anywhere else for that matter). It doesn't matter if the cast member is wearing a big giant costume or if they look like an actual person, just with a costume on. This was true this year as well; however, the last thing Kristi took Grace to do before we left the park on our last night, was wait in line for the character meeting with Elsa and Anna (from Frozen, in case you don't know). Somehow, Kristi convinced Grace that it was okay and safe to go up to them and Grace was "so brave." It was a pretty big deal for this little girl and she was in heaven.</div>
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You thought you got to be all done reading the post, but wait there's more. After getting home from California on a Thursday, we rested for one day, unpacked and did laundry, and got ready for a one day 4v4 soccer tournament for Abby on Saturday. Her team did great and they won all four of their games and the tournament, with a goal difference of 41 goals for their team and only 2 goals against them.</div>
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We were able to head to church the next day and what a blessing it was to be back in our home church after missing it for a week. After church, we were blessed to meet up with an incredible young man and one of the finest Pine Cove counselors we have ever had the opportunity to meet. After serving at Pine Cove Family Camp for 11 straight weeks, "Spewtane" (Jacob), who was Andrew's Buddy Counselor, was driving home to Mississippi and stopped by Sugar Land to have lunch with us and hang out at our house for a bit. After "Spewtane" left our house, Andrew probably repeated himself about fifty times, telling us that he wished "Spewtane" lived closer and that he really hopes he will see him next Summer and that he really wants to keep in contact with him. He even said "this is one of my favorite days ever!" Thanks for making such an incredible impact on Andrew's life this Summer, Jacob!</div>
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On Monday, Kristi had to turn around and fly to Las Vegas for work meetings all week. She got home late on Thursday night last week, took a quick moment to breathe, went to work all day on Friday, and then we headed to The Woodlands for another soccer tournament in nasty, sticky, hot, humid weather. The girls played great in the top bracket for their age group and won their three games, as well as the championship game.<br />
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Almost done, I promise. Our kids had meet the teacher on Tuesday night and we are all excited for the new changes this year. Grace starting kindergarten and going to the same elementary as Andrew, and Abigail starting her first year of Middle school. We are excited to see how God works in and through each of their lives this school year.</div>
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Grace in kindergarten with Mrs. Lavine! She's AMAZING!!!</div>
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Andrew in 4th with Mrs. Stuart! I (Kristi) have only spent a brief amount of time with Mrs. Stuart and I seriously want to take her home or at least hang out with her for a few minutes everyday. She is a little slice of heaven, that's the best way to describe her. She has been teaching for a looooong time and this is likely her final year teaching before retirement. I'm certain that God has her still teaching this year for Andrew. God is so good!</div>
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Poor Abby... we totally forgot to take a picture of her at her new school. They didn't have meet the teacher, but instead a scavenger hunt where they could meet some of the staff and get a feel for the layout of the school.</div>
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Abby and the AMAZING counselor at Polly Ryan Middle School! </div>
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Lastly, clinically Andrew has been doing so well and we have weaned one of his eight pain medications down so much to where he is almost completely off of Dilaudid (which is amazing). He has been on such high doses of that opioid for over a year now, so the fact that his pain is doing so well is just awesome! However, we just got the results from Andrew's most recent blood draws and one of the tests (Chromogranin A-which is a tumor marker) showed that the numbers were starting to climb. The range for that lab is 0-95 and his was at 122, so it is not at 400 like when he was first diagnosed with cancer. But, after getting a few months of labs showing that number to be in the 0-95 standard range, we are left with the question of why that number is higher again. We are hoping that it is nothing to be concerned about, especially given how well Andrew is doing and looking right now, but we do want to ask you all to be praying that number will stay low and not continue to rise. We are choosing to not allow our minds to go to all the "what if's" right now, but that is a definite battle we have to fight (especially since we have had a taste of a much more "normal" couple months), so we greatly appreciate your prayers. The day before we got these lab results, Andrew made the comment "It's so nice... I don't feel like I have cancer.... I mean, except for getting overheated and getting more tired out than my friends, but it feels good!" My (Kristi) heart leapt with joy and gratitude, but it only took the enemy a second to remind me "but this won't last forever.... and then what?" to which I have to preach to myself something like this "...then what?... then God's grace will be sufficient for that time and He is already where we are going..." I don't know how to even process the "then what," but I know He has not and will not leave or forsake us. There are SO MANY moments each and every day when I have to battle the enemies attacks with truth, but it doesn't mean it's easy, in fact it's exhausting, but always worth the fight. I must put on my armor 100 times a day (for Andrew's health of course, but also Grace's health and well-being, and how all of this is impacting our sweet Abby, etc)... I put it on and the sword (of the Spirit) feels like its starting to slip out of my hand, so I tighten my grip again, the shield (of faith) gets heavy... I reposition again, I can't feel the belt (of truth) around my waist, so I cinch it tight again, and so on. Please know that your prayers are what keep us in the fight. God has been so gracious to us. Thank you for walking this journey with us!!! We love you!!!</div>
The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com4tag:blogger.com,1999:blog-3515728319081642483.post-77353928275162231072018-07-22T16:48:00.001-05:002018-07-22T16:48:33.786-05:00Sorry, we've been MIA...Oh dear, I just looked at the date of the last blog post and realized it has almost been two months since our last update....oops! So sorry, we don't get to sit down much. <br />
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For our non-facebook using friends and family... here is an update on Andrew that I just posted:<br />
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<span style="font-family: inherit;">Psalm 71:14â15 (ESV): But I will hope continually and will praise you yet more and more. 15 My mouth will tell of your righteous acts, of your deeds of salvation all the day,<br />for their number is past my knowledge.</span></div>
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<span style="font-family: inherit;">Check out Godâs grace displayed in these pictures!!! The picture on the right is Andrew a year ago... still smiling, but his body wearing the effects of stage 4 cancer. The picture on the left is Andrew this morning when I dropped him off at horse camp... same sm<span class="text_exposed_show" style="display: inline;">ile, a body still full of cancerous tumors, but by Godâs grace the recent prrt treatment he completed has gone to war against these tumors (itâs not a cure, but we pray it will wage war on those tumors for a looong time... forever would be awesome <span class="_5mfr _47e3" style="line-height: 0; margin: 0px 1px; vertical-align: middle;"><img alt="" class="img" height="16" role="presentation" src="https://static.xx.fbcdn.net/images/emoji.php/v9/ff6/2/16/1f609.png" style="border: 0px; vertical-align: -3px;" width="16" /><span class="_7oe" style="display: inline; width: 0px;">đ</span></span>) and allowed his body to do more than just survive, but even thrive. Heâs put on about 12 pounds over the past year which is huge for a cancer patient. </span></span></div>
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<span style="font-family: inherit;">This battle is FAR from over, but we will continue to fight on our knees, trusting our good, good Father daily! Please continue to cover this sweet boy in prayer. Specially that his cancer would remain stable, we would continue to see improvements in pain, and that we can continue to ween down on his crazy pain medication regimen. <a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/butgod?source=feed_text" style="color: #365899; cursor: pointer; text-decoration: none;"><span class="_5afx" style="direction: ltr; unicode-bidi: isolate;"><span aria-label="hashtag" class="_58cl _5afz" style="unicode-bidi: isolate;">#</span><span class="_58cm">butGod</span></span></a>!!!</span></div>
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<span style="font-family: inherit;">Andrewâs Army (you), your prayers and support are what sustains us! THANK YOU!!!</span></div>
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<span style="color: #1d2129; font-family: inherit;"><span style="caret-color: rgb(29, 33, 41);">***of course, just as I had feared... </span></span><span style="color: #1d2129;"><span style="caret-color: rgb(29, 33, 41);">shortly</span></span><span style="color: #1d2129;"><span style="font-family: inherit;"> after I shared this post, Andrew had some tummy pain (</span>although, no where near as bad as it's been in the past)<span style="font-family: inherit;">. It felt like such an attack from the enemy, since he had been doing SO good for so long with pain. I was hesitant to share that post for fear it would </span>stir<span style="font-family: inherit;"> the hornet's nest and the enemy would get busy, since he </span>certainly<span style="font-family: inherit;"> doesn't want God to be praised so </span>publicly. Whether Andrew's pain was the enemy at work or coincidence, it caused me to be confronted with my fear... fear that rushes in like a flash flood anytime Andrew's pain shows up.... his pain is an in your face reminder that he has cancer and I can't help but let my mind go to dark places like "does this mean the cancer is spreading?," etc, but the song "Fear is a Liar" is a great reminder of fears proper place and name. Fear is a liar! It belongs in the fire where God will burn off all the impurities (lies) and lead you to what is true. That is the place where "But God" reigns. But God doesn't adhere to what makes sense in my finite mind (pain = cancer is spreading)... He is bigger than my problem and He already has a solution for what I'm going through and what lays ahead, etc. Soooo much easier said than done, but what are you fearful of? What stops you in your steps, steals your breath, robs you of your rest, and your happiness? Read the lyrics to this song and I pray it helps you put fear in its proper place too!</span></div>
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<span jsname="YS01Ge">When he told you you're not good enough</span><br /><span jsname="YS01Ge">When he told you you're not right</span><br /><span jsname="YS01Ge">When he told you you're not strong enough</span><br /><span jsname="YS01Ge">To put up a good fight</span><br /><span jsname="YS01Ge">When he told you you're not worthy</span><br /><span jsname="YS01Ge">When he told you you're not loved</span><br /><span jsname="YS01Ge">When he told you you're not beautiful</span><br /><span jsname="YS01Ge">That you'll never be enough</span></div>
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<span jsname="YS01Ge">Fear, he is a liar</span><br /><span jsname="YS01Ge">He will take your breath</span><br /><span jsname="YS01Ge">Stop you in your steps</span><br /><span jsname="YS01Ge">Fear he is a liar</span><br /><span jsname="YS01Ge">He will rob your rest</span><br /><span jsname="YS01Ge">Steal your happiness</span><br /><span jsname="YS01Ge">Cast your fear in the fire</span><br /><span jsname="YS01Ge">'Cause fear he is a liar</span></div>
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<span jsname="YS01Ge">When he told you were troubled</span><br /><span jsname="YS01Ge">You'll forever be alone</span><br /><span jsname="YS01Ge">When he told you you should run away</span><br /><span jsname="YS01Ge">You'll never find a home</span><br /><span jsname="YS01Ge">When he told you you were dirty</span><br /><span jsname="YS01Ge">And you should be ashamed</span><br /><span jsname="YS01Ge">When he told you you could be the one</span><br /><span jsname="YS01Ge">That grace could never change</span></div>
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<span jsname="YS01Ge">Fear he is a liar</span><br /><span jsname="YS01Ge">He will take your breath</span><br /><span jsname="YS01Ge">Stop you in your steps</span><br /><span jsname="YS01Ge">Fear, he is a liar</span></div>
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-Grace has been doing tutoring at Gigi's Playhouse a couple times a week and anytime she's not at Gigi's, she's begging Abby to tutor her. Here is a glimpse of a typical day in the Ross household... Abby will tutor Grace in reading for 30-45 minutes and at the conclusion Grace will say " aaaand now... math tutoring time" (picture this in her joyful little voice). When math tutoring is over, she will say "aaaand now.... writing tutoring time!" I'm so grateful that Grace loves tutoring so much, especially with her Sissy (even if she wears her sissy down a bit đ¤Ł) . At least Grace appreciates all her sissy's time and investment in her, when she lost her 2nd tooth and got candy and 50 cents from the tooth fairy, she gave her 50 cents to Abby and said "here you go Abby, this is for tutoring me." When not tutoring, Grace can be found playing How to Train a Dragon, Harry Potter, or Lord of the Rings with Andrew. Welcome to Grace's world!</div>
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<span style="caret-color: rgb(29, 33, 41); color: #1d2129; font-family: inherit;">-Andrew just finished horseback riding</span><span style="color: #1d2129; font-family: inherit;"><span style="caret-color: rgb(29, 33, 41);"> camp this past week, which he LOVED! He asked to keep riding </span></span><span style="color: #1d2129;"><span style="caret-color: rgb(29, 33, 41);">horses</span></span><span style="color: #1d2129;"><span style="font-family: inherit;"> during the school year, so we are going to </span>give<span style="font-family: inherit;"> it a go! I'm praying it will be something that gives him confidence, </span>relieves any stress he is hanging on to, and maybe even helps with pain in some way. Andrew has also started violin lessons with his favorite music teacher. He has always (since he was a little guy) been interested in the violin, so the fact that he's actually getting to try it and with a teacher that loves him like her own is, well, a big, giant blessing! </span></div>
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<span style="color: #1d2129;">-An area we are struggling in with Andrew is in math. Andrew is a very smart kid, despite being on drugs all day </span><span style="color: #1d2129;">everyday, and lacking a whole lot of motivation; however, math (specifically his multiplication facts) has been SO hard for him to learn and retain. David works with him daily and has tried so many different strategies to try and help him, but it is a constant battle. David has put a lot of time and energy into researching possible problems and solutions. We hope to have him tested for Dyscalculia (basically dyslexia, but for math) and or anything else that could be the issue because we are desperate to help him. I hate to see Andrew struggle so much with something that should come so much easier, but then again I have to be honest, it's the least of our concerns (in the big picture). I'm grateful to have a normal kid kind of concern, but then we battle the thoughts... how much do his grades really matter any way, there's no telling how long God will keep him on this earth, so do we spend a ton of energy focusing on something that at the end of the day may not even matter that much (see that's the enemy) or do we raise him as if he is going to live a long life and be an old man? We choose the latter until God says otherwise, but I would be lying if I didn't say I have to fight the temptation to feel like we are wasting precious time on something frivolous. Wow! I just probably overwhelmed you with the roller coster my brain lives on. Sorry! I'm just grateful that this roller coster docks at the platform of truth (what God has to say about it all)!</span></div>
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<span style="color: #1d2129;">This is how I feel about mathđ. No really, this is the kids at Mrs. Kathy and Mr. Alan's house <span style="caret-color: rgb(29, 33, 41);">being silly on one of there many fun playdates.</span></span></div>
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<span style="color: #1d2129;">-Abigail continues to play a ton of soccer in addition to work out at F45 (which she absolutely LOVES), where David and I love to work out too. Abby and her team won a 3V3 tournament this weekend where her team won the championship and we got to hang out with some of our favorite Pine Cove counselors! Abby went to a pretty amazing soccer training/camp a couple weeks ago. Here is a Facebook post I made about it:</span></div>
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<span style="color: #1d2129;">3v3 champions!</span></div>
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Hoot Smash and Trap being silly with the Rosslings!</div>
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There is something so unique and special about your Pine Cove family! Love these girls!</div>
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Abby hates to miss getting to work out at F45! I don't blame her, that place not only helps you get strong, but they make it SO fun!</div>
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She's got some hops like her Daddy!</div>
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This pic is Abby in a nutshell... She is on the right looking fierce and determined to beat her dear friend Annabella in a race. These girls are super close friends, but watching them go head to head on the soccer field might lead you to believe otherwise :-). I'm just glad they are on the same team!</div>
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<span style="font-family: inherit;"><span style="background-color: white; caret-color: rgb(29, 33, 41); color: #1d2129;">Abigail made some amazing memories and grew a lot (in soccer of course, but also emotionally and spiritually) at the Region III Olympic Development Program (ODP) Camp in Alabama this week! Those that know my girl well know that she hates to be away from her immediate family and who could blame her really (she has had far too many experiences where she wakes up in the morning to find out that one of her sibling has had to go to the ER, or our family is forced to be split up b</span><span class="text_exposed_show" style="caret-color: rgb(29, 33, 41); color: #1d2129; display: inline;">ecause one of her siblings is in the hospital, and being faced with the mortality of those she loves most day in and day out)... The girls stayed in the dorms at University of Montevallo (which was beautiful by the way), so Abby struggled some with wanting to stay with me in a hotel instead of the dorms (which obviously wasnât an option), but she learned to lean in hard to the Lord and fight that fear with truth. The girls received high-level training from college coaches and competed against other Region III state ODP teams from Florida, Georgia, Tennessee, Mississippi, North Carolina, South Carolina and Louisiana. Overall it was a great experience and I couldnât be more proud of this sweet girl!</span></span></div>
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Abby's Andrew's Army symbol she writes on her wrist anytime she plays soccer!</div>
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Flight delays can actually be fun when with great friends!</div>
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<span style="color: #1d2129; font-family: inherit;"><span style="caret-color: rgb(29, 33, 41);">As I </span></span><span style="color: #1d2129;"><span style="caret-color: rgb(29, 33, 41);">mentioned</span></span><span style="color: #1d2129;"><span style="font-family: inherit;"> Abby struggled with being </span>away from me during this trip (she stayed in the dorms while I stayed in a hotel and cam to watch her scrimmages and some training, but didn't get to talk to her in person for more than a couple minutes twice a day). She talked to her counselor about her experience and what we learned is that she is insecure about being away from us because if she has eyes on David or I then she is assured that everything is ok (with her siblings, etc). For some reason I thought this trip to Alabama was going to be super relaxing for me, but it was far from what I had envisioned. Helping Abby process her feelings was emotionally exhausting and my sweet friend and I did a lot of driving back and forth twice a day( 35 minutes each way) to watch the girls play when ever we could, staying up late, and getting up early, but it was all worth it. Abby got to learn from some amazing soccer trainers, but most of all she got to practice her mental game (setting her mind on what is true), and we made some amazing memories. We leave in a week and a half for California where Abby and her team will play in the Surf Cup in San Diego and we will (Lord willing) get to see friends, the beach, Disneyland, Legoland, etc. </span></div>
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-Last but not least, Family Camp! Here is my Facebook post about Family Camp:<br />
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<span style="font-family: inherit;">Pine Cove Crier Creek Family Camp was a little slice of heaven! This would have been our 7th year, but we had to miss last year because Grace was busy having her 6th open heart surgery. This year was so different than previous years because we were just crazy grateful to even get to go back to Family Camp this year (our lifeâs normal shenanigans didnât keep us from being able to make it) that we didnât have any expectations, worry about logistics/what everyone would wear for<span class="text_exposed_show" style="display: inline;"> theme nights, etc. Instead we just enjoyed and soaked in all the sweet memories. </span></span></div>
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<span style="font-family: inherit;">We certainly got to see Godâs tender hand in the details this past week in so many ways... it rained the first 3 days (but didnât thunder or lightening, so none of our activities were interrupted), cooling down the temperature and slowing the pace down a bit which helped Andrew out tremendously. Andrew was assigned the most amazing counselor whoâs sole responsibility was to hang with/take care of Andrew, and he did just that in a way that was perfectly suited for Andrew (they went inside to play games or read Lord of the Rings when it was too hot outside for Andrew or in an effort to get Andrew to rest a little, etc). The biggest blessing (that truly felt like a miracle) was the fact that Andrew had ZERO pain all week despite the late nights, early mornings, Texas summer heat, and the exhaustion that comes from having so much fun all day everyday <span class="_5mfr _47e3" style="line-height: 0; margin: 0px 1px; vertical-align: middle;"><img alt="" class="img" height="16" role="presentation" src="https://static.xx.fbcdn.net/images/emoji.php/v9/f17/2/16/1f64c_1f3fb.png" style="border: 0px; vertical-align: -3px;" width="16" /><span class="_7oe" style="display: inline; width: 0px;">đđť</span></span>! The girls also had super awesome counselors that have left a powerful impact on all of our lives.</span></div>
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<span style="font-family: inherit;">Iâm praying everyone of you will get to experience something like Family Camp someday because it is truly nourishing, refreshing, and overall a great reset each year for our family! <a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/heisthegoodshepherd?source=feed_text" style="color: #365899; cursor: pointer; text-decoration: none;"><span class="_5afx" style="direction: ltr; unicode-bidi: isolate;"><span aria-label="hashtag" class="_58cl _5afz" style="unicode-bidi: isolate;">#</span><span class="_58cm">HeisthegoodShepherd</span></span></a> <a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/butgod?source=feed_text" style="color: #365899; cursor: pointer; text-decoration: none;"><span class="_5afx" style="direction: ltr; unicode-bidi: isolate;"><span aria-label="hashtag" class="_58cl _5afz" style="unicode-bidi: isolate;">#</span><span class="_58cm">butGod</span></span></a><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/crazygrateful?source=feed_text" style="color: #365899; cursor: pointer; text-decoration: none;"><span class="_5afx" style="direction: ltr; unicode-bidi: isolate;"><span aria-label="hashtag" class="_58cl _5afz" style="unicode-bidi: isolate;">#</span><span class="_58cm">crazygrateful</span></span></a> <span class="_5afx" style="color: #365899; cursor: pointer; direction: ltr; text-decoration: none; unicode-bidi: isolate;"><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/weloveourpcfamily?source=feed_text" style="color: #365899; cursor: pointer; text-decoration: none;"><span aria-label="hashtag" class="_58cl _5afz" style="unicode-bidi: isolate;">#</span><span class="_58cm">weloveourPCfamily</span></a></span></span></div>
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<span style="color: #1d2129; font-family: inherit;"><span style="caret-color: rgb(29, 33, 41);">If you are </span></span><span style="color: #1d2129;"><span style="caret-color: rgb(29, 33, 41);">looking</span></span><span style="color: #1d2129;"><span style="font-family: inherit;"> for a vacation that will draw your </span>whole<span style="font-family: inherit;"> family closer together, closer to the Lord, build a lifelong bond with some AMAZING </span>counselors<span style="font-family: inherit;"> (who you want your kiddos to look up to as what they are aspiring to be in college), and families, laugh a lot, even cry a little, do rad activities like zip </span></span><span style="color: #1d2129;">lining, horse back riding, wake boarding, and ultimately recalibrate your heart as to what really matters in life than please do yourself a favor and sign up for Family Camp!!!</span></div>
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Grace's Character Quality was "Loving"</div>
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Grace aspires to be a counselor too (just like Bubba and Sissy). This is one of the many chants she loves to do (Wild Kids is the group she was in at camp :-)<br /><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dz6cDLZod1pDpHQz_6o7zbieA50iVV09gOP5Fl4lH848-j7C3NhY3EJnF47elD-iLsbf00eFJrWHIp2Lun86A' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
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Love the extra time with my man.. especially playing pickle ball in the pouring rain while most other couples relax. This guy doesn't know much about relaxing đ</div>
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Presley Pepper (this little girl is every Ross Family members favorite little person) and her family/our dear friends!</div>
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The counselors... The most God honoring college kids your will ever meet!</div>
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Pine Cove summarized in one picture! I couldn't find Andrew one morning and as I looked off in the distance I found him.... being prayed over by his amazing counselor, Spewie! </div>
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<br />The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com3tag:blogger.com,1999:blog-3515728319081642483.post-58625384006024725962018-05-27T21:26:00.003-05:002018-05-27T21:26:58.836-05:00All kinds of updates...David here...<br />
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On our last post, we didn't have time to do this event justice, so we saved it until we had a few more minutes to write about it. We were blessed by an overwhelmingly gracious fundraiser some friends (and new friends) did on our behalf. This group of high school friends began getting together for Houston Astros' opening day a few years back. As years went on, their opening day group continually grew. Eventually, this great group of people decided to make a fundraiser out of it and the last two years they have decided to make that fundraiser in support of a specific family. By the grace of God, they decided this year to choose our family to be the recipient of their generosity. We were blown away and humbled by the willingness of these kind people to be used by God to bless our family in a manner that we would have never expected. Thank you so much to everyone who showed up to the opening day Astros game and fundraiser!!! We are so grateful!!!<br />
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Last weekend, we had the opportunity to attend the annual Triumph Over Kid Cancer (TOKC) golf tournament and Toga party in Corpus Christi. Last year, Andrew was asked by this organization to be James' "Wingman." For those who are unaware, James Regan started TOKC when he was diagnosed with Sarcoma at the age of 12. He battled cancer for 9 years before he won the battle and left this earth for his heavenly home. Every year since then, TOKC has chosen a child also battling cancer to be James' "Wingman." This year, we headed back to Corpus Christi to support the event and be a presence and voice for the organization in whatever capacity we were able to (which means I let Kristi do all the talking). The kids had a blast, enjoyed some fun time on the beach, and Grace danced the night away from 8pm-1am (if you ever need someone to help get a dance party started, we will rent Grace to you). Andrew impressed us all with the confidence he exuded as he walked around the party all night (totally independently, we didn't know where he was most of the time) acting as a true ambassador. We would find him talking to people he knows and many he doesn't know about his journey with cancer or just life in general. We couldn't have been more proud of him!<br />
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Andrew kicked off the Golf Tournament by hitting the first ball!</div>
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Andrew getting some pointers from a pro, </div>
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VIP party</div>
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Andrew was proud of his creation, Meatball Man... he got to share his vision for Meatball Man with the Oscar Award winning director (and super nice guy with a huge heart), Andy Sacks :-)</div>
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Sweet Anna was James' oncology nurse and the reason we were connected with TOKC!</div>
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Some beach fun!</div>
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Corpus has this brilliant program where they provide bags so you can pick up litter along the beach. Abby and I actually had some serious fun cleaning up the beach!</div>
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Toga Party fun!</div>
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Post Toga Party (this is in the hotel lobby at 1:30 am)!</div>
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Check out this awesome doll house my Father in Love made for the silent auction!</div>
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And just like that, the Spring season comes to an end for both Andrew's first flag football season and Abigail's soccer season (although soccer never really ends because Abby still has tournaments throughout the Summer and will continue to attend any soccer training available). Andrew has enjoyed playing football for the first time, but at the same time he is glad it is almost done and it doesn't sound like he is all too eager to play again anytime soon (glad we checked that box). Abigail's first year playing with the Houston Dash has been great! Her team finished first place in the top division in both the Fall and Spring seasons. At this point, she still loves soccer and will play any chance she can get. It has been great getting to know some new families this year and build new friendships on the sidelines.<br />
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Grace has been taking ballet and tap this Spring and her end of the year dance recital is coming up next week. She loves going to dance each week! She listens well, has a joyful attitude, and has grown so much in her abilities. We are amazed at what she is able to accomplish and grateful she will be able to actually participate in the recital this year. Just think, last year around this time Grace was in the hospital for a week leading up to her sixth open heart surgery at the end of May of 2017. <br />
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This is what you get at dress rehearsal when you tell Grace to pose...</div>
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Kristi here...<br />
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And... as football and soccer wind down (well, not soccer really), both Andrew and Abigail are doing Summer swim team again. In the past month, Abigail has probably made it to a total of 2 or 3 swim practices (out of probably 20 or more) because of soccer, so she is content knowing that swim is just for fun and not "her sport" (this is big for her because you know she is a highly motivated, super passionate, and competitive kid). She has even really embraced the fact that it's actually a great thing that this is one sport that Andrew is better at than her because it builds his confidence (getting smoked by your sister all the time isn't always fun ;-). Andrew isn't the fastest or slowest on his team, he is right in the middle and, to be honest, regardless of what he does in that pool, every time he races, deep down I'm screaming "Boom.... you crushed that race, nobody else in that pool is battling the hell out of stage 4 cancer!", but of course those are inside thoughts, I would never say that out loud... writing doesn't count and y'all know my heart, right? :-)<br />
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Andrew and I got to go on a Mother/Son date which was, in Andrew's words "his best night ever!" Which in turn makes it my best night too!!! He was such a gentleman and seeing him dance his heart out with me and with his friends was more than my heart could handle!<br />
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My handsome date!</div>
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Grateful a friend caught this special moment!</div>
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We are sweaty, but with full hearts!</div>
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Abigail had her 5th grade performance this week. We can't believe it is her last elementary school performance! We were so proud of her for doing such a great job despite the fact she was not happy about having to wear a big bow and use pom-poms. That sporty girl does have some pretty good moves :-).<br />
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Grace had a big first... she lost her first tooth!!! She was so excited for the Tooth Fairy to come and bring her a coin like Peppa Pig got when she lost a tooth ;-)<br />
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We celebrated Abigail's birthday on Thursday! She is 11 going on 31 because she is such a wise old soul. She is our tender-hearted, soccer loving, loyal, selfless, fierce, oh so generous, hard working, thoughtful, passionate, and most importantly God loving and fearing little angel!<br />
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Celebrating this sweetie on her birthday and this is what you get when you ask David to take a picture!</div>
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Andrew got Abby a new soccer ball!</div>
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When Abby was 2 years old she started a tradition of getting her Bubba something for her birthday because when we asked her what she wanted for her birthday, all she would say is to get Andrew something. We agreed to letting her get Andrew something just so she would tell us what she wanted... it's been a tradition ever since.</div>
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She got Andrew a quill (like in Harry Potter)... his face explains it all!</div>
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***Update on Andrew- since his last PRRT treatment in early March, Andrew's pain has been very well controlled, to the point that we have even started cutting back on some of his 8 pain meds which had been very exciting. We ditched one pain med all together and have been slowly weaning him down on one of the opioids. This small adjustment in pain meds has allowed us to see glimpses of the Andrew we know (prior to being on heavy duty pain meds around the clock) and to say that it has been a giant blessing is an understatement. It has been very odd that the terrible awful pain hadn't appeared on the scene yet (following the pattern it has after previous treatments), so I began getting hopeful that maybe the pain would somehow go away and stay away (although, in the back of my head I knew it was more than likely right around the corner). Over the past two and a half months, I have grown to love and appreciate the absence of any break-through pain... I had forgotten what it's like to have a life that resembles a little teeny tiny bit of "normalcy" (not having a clear and present reminder daily that your kids body is full of tumors), but that little vacation has come to an abrupt halt over the past couple weeks as we have seen the pain make it's presence known. One praise is that, so far, it hasn't been the terrible awful pain that has made him throw up, but it is bad enough to make him miserable. <br />
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We spent the day yesterday at the soccer field ALL DAY and it was humid and HOOOOOTTTTT!!! Andrew and Grace went to the morning game and then went to David's parents house for the rest of the day so they could cool off in the pool, etc (since both of them can get overheated pretty easy). We intended to go to dinner on our way home from the tournament, however, I could tell Andrew was probably experiencing some pain based on his pink cheeks and the way he was sitting. When the pain gets really bad, he can't eat anything, so I thought I was being creative when I asked him if he would eat if we stopped for dinner (since I knew if I asked him if his tummy hurt, he would say just a little, but not bad), so I was surprised when he said yes he would and that he wanted to stop and sit down to eat. It wasn't long after we were seated and started playing some of the games on his kids menu that I new where we were headed... he was trying so hard not to show anyone that he was in a lot of pain because he never wants us to not do something because of him. I hate going out to eat when he's in pain because I can't enjoy myself knowing he is miserable (we have left many restaurants before ordering or boxed our food up and took it home because we want him to be comfortable in his bed, not having to lay on my lap or with his head on the table in pain). His food came and of course he couldn't touch it by then because the pain was so bad, so we went and sat in the car, so he could try to fall asleep. My heart was crushed in a million pieces because the weight of my baby having stage 4 cancer hit me like a ton of bricks. I've been learning how to carry those bricks daily (the giant tower of bricks always feels off balance, like the stack of bricks could come crashing down at any moment... sort of like the game jenga). On the hour drive home I held back tears as I contemplated and experienced the exhaustion, brokenness, and frustration about the fact that nothing in our life ever goes the "easy way". In addition to all that comes with having a child with stage 4 cancer.... For Abigail, I feel like she is so often the underdog (always having to prove herself being so small, etc), Grace's INR (blood thinner levels) has been way off (too low, which puts her at risk for a stroke) for no good reason, we've been in the thick of preparing for and having her ARD meeting (which are always a reminder of your kiddos deficits... and strengths of course, but plain and simple, it's a reminder as a special needs parent that your journey is far from "normal" and you always have to be on your toes), and with the busyness of our life/circus, David and I could be doing a better job of feeding our marriage. I fought back tears on the drive home because I try to be cautious about when I allow myself to break down in front of the kids (they absolutely see me cry and we sometimes have a good cry together, but I try to be prayerful about when and how often I let them experience that because I'm very aware as to how much my emotions impact them). When I got home I grabbed the dog (since she had been in the house all day and needed to get out too) and went for a walk where I had a good cry and listened to worship music. I came home feeling much better and ready to get back on the battlefield, but still physically, emotionally, and spiritually exhausted. As God and I wrestled about why it has to be so hard, I asked Him to speak to me clearly, helping me to see His hand. Just as our faithful Father always does, He did just that this morning at church. He revealed to me that I have allowed fear to have a stronghold on me despite the fact that I know better and I didn't even realize that fear, like cockroaches, were hiding in the dark crevices of my life (yuck.... I hate that analogy I just went with because I despise cockroaches, but then again I despise fear too, so we will stick with it). Like the song we sang at church this morning, fear is a liar!!! It takes our breath away and stops us in our steps... I can't tell you how many times my breath is literally knocked out of me and I keep from falling to my knees because fear is one of our enemies favorite weapons in his attempts to kill and destroy us (thats what the Bible says Satan's mission is). I don't understand why our life has to be so messy, but what I do know is that God knows.... our suffering is not in vein, His perfect will is somehow being accomplished through it all and while I may not always understand it, I can trust His heart. When I put into perspective how big our God is and how much He loves us, it makes our earthly problems so much more managable and I'm freed up to experience joy in the suffering. One of the many ways He covers us with His grace is by sending faithful troops to come alongside of us and speak into our lives. I made a Facebook post last night asking for prayer and so many of you responded with words of encouragement and commitments to cover us in prayer (although I trust and know that so many of you pray daily for our family, which I can't thank you enough for). I fell asleep shortly after posting that message, so I woke up to your comments, which caused me to weep as I read them because I didn't even really know how much I needed y'all in that moment. Then, at church we were encouraged to let the Spirit lead in terms of what He wanted to say to us (whether it was meant for us or a nudge to encourage someone else). During this time David and I were standing up and along the wall as part of the prayer ministry (for anyone needing prayer), which left Abby sitting by herself in her seat (Andrew and Grace were both in children's ministry). I knew Abby would be fine sitting there by herself, however the Lord led some sweet ladies to one at a time walk over and talk to and pray for her. This picture served as a powerful reminder that God never leaves us alone (even though this journey can sometimes feel lonely because your life looks so different than most, not because people aren't around.... in fact we have the best support system EVER). Then, there are the words that some shared with us or prayed over us... all of this (and more) God used to set our feet back on solid ground and get back on the battlefield. <br />
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***Prayer requests- will you please pray that Andrew's pain won't get any worse (in intensity and frequency) and above all that his scans on June 12th (we won't get the results until our appointment on June 13th) will reveal nothing but GREAT news (no progression what so ever, and lots of regression and dead cancer)? Grace has an echo this Friday, will you please pray that her heart looks super happy (no concerns what so ever)? And above all, that God would get all the glory!<br />
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THANK YOU, THANK YOU, THANK YOU for the ways in which you come along side of us!!!<br />
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Here is a nugget I took away from todays sermon at church... I encourage each of you to join me in praying this for yourself "Lord, let me know more about you, believe everything I know, and let me live like it's true." <br />
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The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com2tag:blogger.com,1999:blog-3515728319081642483.post-72793730546214615162018-04-30T17:04:00.001-05:002018-04-30T17:04:43.530-05:00Last week's whirlwind...I believe this post is well overdue and I have the time to write it as I (David) am sitting in the hospital with Andrew (at least, I began this post while in the hospital with Andrew last week). On Sunday and Monday last week, Andrew had been rather lethargic and woozy. On Sunday, Andrew woke up in terrible stomach pain, so we gave him his pain medicine and then let him fall back asleep. He slept from 8:00 am - 4:00 pm. We woke him up to take him with us to Life Group at church, but right when we got home he was ready for bed again (he was asleep by 8:30 pm). On Monday, Andrew woke up to go to school and was really tired, but he is always really tired before school, so that wasnât out of the ordinary. We received a call from the school nurse at 9:30 am when Andrew went to get his medicine and she stated that he was extremely tired and acting a little different. We picked him up and took him to the pediatrician and she tested him for strep and commented as well on how different he was acting. She also took his pulse ox, which was around 91-92% and then the nurse came in to confirm that he was very positive for strep. The doctor stated she would like Andrew to go to Texas Childrenâs Hospital for the doctors to due some lab work and imaging. She was so concerned with how he looked that she called the ambulance to transport him.<br />
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This is how Andrew spent ALL day Sunday!</div>
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We got to TCH and Andrew got to go through FastPass to get a bed in the ER (one of the few bonuses to having a kid with a major illness... we have two kids that get fast passed in the ER). He gets poked a couple times before they land the IV (they ended up having to call the VAT team to place the line.... thats the team they call when they can't get a line started), has a head CT completed, and then a chest X-ray. They were concerned with how lethargic he was, but based on lab results and head CT, they were prepared to send him home and let him ride it out at home, which would have been fine by us. However, after they shared that they would get paperwork ready to discharge, they then returned to state his chest X-ray came back and Andrew had a severe case of pneumonia, which is crazy because he wasnât showing any major signs of pneumonia (other than being lethargic). Kristi had given me specific instructions as to what she wanted them to test for and 2 out of her 3 main concerns were done automatically (I didn't even need to request it), but they didn't see a need for the third thing which was a chest x-ray at the time because he didn't have any pneumonia like symptoms (Kristi just had a gut feeling thats what it was), however when I expressed concern about his lower than normal oxygen levels they agreed a chest x-ray made sense just to be safe. Due to Andrew's extreme exhaustion the docs thought it would make a little more sense to keep him overnight and monitor him a little more. For the 32 hours we were in the hospital, Andrew probably slept for about 27 hours; he was really only awake consistently for the last four hours of us being at the hospital. While there, when he would wake up, he struggled to keep his eyes open, might watch 15 minutes of a movie and eat a few bites of food, then zonked out again. During the night the doctors would wake him up to ask him some questions (since they had him on neurological monitoring due to his lethargy and odd behaviors), he usually got them right, but on one occasion none of us could wake Andrew up and after about five minutes of trying really hard, the doctor had to give him a pretty aggressive chest rub with his knuckles and Andrew finally said, "huh." When the doctor asked him who I was, Andrew said, "Mr. Incredible" with an attitude that was like, you should know that. Andrew also said that it was 2008. When the doctors clarified the year, he corrected himself and said it was 2007. His behaviors and inability to rouse were so concerning to the doctors that they were planning on ordering an MRI of his head in the morning because they were concerned that his cancer had spread to the brain. Thankfully, Andrew woke up in late morning that day and was able to respond much better than he had the night before, although still falling asleep while the doctor was talking to him and while he was trying to put some eggs and bacon in his mouth (if you have ever seen those videos of babies falling asleep while eating, that was Andrew). The doctor wasn't completely sold yet, but still not ready to order an MRI. Kristi got Abigail out of school early and they came to visit us in the hospital and Andrew perked right up when Abigail got there. He stayed awake the rest of his time at the hospital, so when the doctor came back in to check on him she was rather relieved with how he looked and was communicating, so she put in the orders for discharge. I guess Andrew just needed his best friend/sister there with him. Who would've thought that we would be so relieved for the diagnosis to be a severe case of pneumonia and strep throat. Thank you to everyone who has stepped in to help in some way, offered to help, and prayed for our family. Your thoughts and care for us means the world to us and we are extremely grateful!<br />
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Getting admitted...</div>
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Sissy to the rescue... proving he is ready to be discharged. This experience was great evidence of the power of presence. Sometimes just being there is enough!</div>
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It has been so long since we last updated the blog, I hardly would expect y'all to read a lengthy explanation of all the stuff we could write about; therefore, I will give some brief descriptions with pictures. (Plus, that gives me the excuse to not need to write a lot. I leave that to Kristi)!<br />
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It is rather difficult to remember past last week, so I am having to go through pictures on the computer to remember what we have been up to; therefore, I am also going to post things in order from most recent to further in the past.<br />
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-Abby has continued to play A TON of soccer because she really just can't get enough of it! Such a treat that Pastor Joe and Mindi came out to cheer Abby on during one of her 3 games this weekend!<br />
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-Grace had kindergarten round-up for Campbell Elementary last Friday. We can't believe she will be starting kindergarten in the Fall! She was so excited to go to bubba and sissy's school and that she was able to see some friends from her current PPCD class there, along with some neighbors. She walked off to the classrooms without us (while they went over details for parents) and had no issues whatsoever. We are so excited for next year and thankful for all of the teachers, therapists, and aides who have invested so much in our little girl over the past four years of school!<br />
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-Two Saturdays ago, the school my sister (Becca) teaches at in The Woodlands was having a 5k run in support of pediatric cancer, so Andrew was asked to be one of the kids cutting the ribbon before the race. He had a lot of fun being able to participate in that event, but I think Grace might have enjoyed the festivities even more. After the race began, we walked to one of the water stations where my nephew, Joe, was handing out water and we sat down there for a moment. As each runner passed, Grace cheered for them at the top of her lungs. Some of the runners had their dogs running with them as well, so Grace would also cheer, "Good job, doggy! You're so cute!" As the runners would drink water and then throw their cup on the floor, Grace was a little confused. She got a cup of water from Joe, drank it, and then chucked it onto the sidewalk just like all the runners were doing. My description doesn't sound that funny, but I assure you it was hilarious.<br />
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Grace just couldn't resist, she wanted to race too!</div>
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Andrew loves German Shepard's, so he had to get a pic with this pup</div>
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-Abigail and I got to go on a daddy/daughter date with a 50's sock/hop theme at our church three Saturdays ago (it was sponsored by the college kids/young adult group, in order for them to raise money to go to an orphanage down in Mexico that our church has a relationship with). It was so much fun taking her on a date! So much of the individual time I get with Abby is on the long car rides going to and from soccer, so it was a pleasure to have alone time with her. I praise God for the young woman she is growing into and for the constant transformation taking place in her life. I know everyone loves their kids, so it isn't like I am claiming that I have it better than anyone, but I am stating that I do feel extremely blessed and grateful that Abigail is mine! I make a lot of stupid decisions in life, but I think the best decision Kristi and I ever made is choosing for me to quit working when Abigail was born, so that I was able to stay home and really help raise her (as well as Andrew and Grace... but Abigail was the first).<br />
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-On the same day that Abigail and I had the father/daughter dance, that morning Kristi took Andrew to a superhero party put on by Sunshine Kids (a local organization supporting pediatric cancer patients and their families). Andrew loves all the Marvel and DC superheroes, so he had a blast at this event. He made some crafts, took pictures with superheroes (which includes Kristi, since she's pretty super as well), had a caricature drawn of them, and enjoyed just having some alone time with Kristi!<br />
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-The big kids got to go to an Astros game with their besties, Mrs. Kathy and Mr. Alan!<br />
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***This is Kristi with a quick prayer request :-)- Andrew's pain has been very well controlled since his last treatment in early March, which almost feels eerie in many ways because we have never gone this long without break through pain. I literally can't stop praising the Lord for this break in pain and at the same time I'm fighting the temptation to live in a place of fear, anticipating the arrival of the REALLY bad pain that typically shows up with a vengeance after the honeymoon phase (temporary relief in pain that typically lasts a few weeks) post treatment ends. God can absolutely keep that pain away and not allow the honeymoon phase to end (even though it feels unlikely because his pain has been so difficult to control and always a moving and disappointing target), so I'm holding on to hope that this relief in pain is evidence of PRRT working, that the pain would stay away, and that we would be able to get our sweet boy off of some of these crazy pain meds. This feels like a giant, sort of crazy prayer request, but I'm going to ask you to please join us in praying for these requests because I know that our God is able!<br />
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Andrew's shirt says it all... "you can't stop awesome" and boy is our God AWESOME!!!</div>
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I know we say it often (but it never feels like we say it enough), we really do appreciate all of you and are grateful for your willingness to walk through this journey with us. God knew we wouldn't be able to do this without all of your support and encouragement, so I am thankful for His wisdom and provision through each of you!<br />
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This is Emme smiling, she appreciates it as well!</div>
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<br />The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com1tag:blogger.com,1999:blog-3515728319081642483.post-74678413477160733092018-03-17T21:48:00.000-05:002018-03-17T21:48:00.307-05:00Post 4th Round of PRRT Update...-Post PRRT update: We were reunited on Tuesday evening and boy does it feel good to all be under one roof again!!! In case anyone is late to the party... Andrew had his 4th round of radiation therapy and after he receives his treatment, he has to stay away from Grace and Abby for 6 days (that's why David and Andrew go to my In-Love's house in the Woodlands and pretty much live upstairs for most of the time... although they were on vacation this time when the boys were there). During this time, we (grown up's) have to stay at least a meter away from him and avoid touching him for 3-4 days because he is highly radioactive and it is not safe to get to close to him because radiation has risks such as cancer, etc. While we all missed each other terribly, it's especially hard on Abby and Andrew to be apart. They want to spend every minute possible on FaceTime or the phone together, even if they aren't talking (sometimes I'm like... "ok, we will talk to you later..." because there is a lot of silence or they are each playing or watching tv and they are like "nooooo, do we have to get off already?"), they literally just love to know the other person is there/do life together in any way possible. We have learned a lot over the past 4 rounds of PRRT, so each time we try to make modifications to the plan to make it as easy as possible on everyone.<br />
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Andrew getting a scan after treatment to make sure the radiation is being taken up appropriately</div>
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Andrew has had a great break from pain (except for one really bad morning in The Woodlands where Andrew was miserable and eventually threw up), so we are praying it continues for a looooong time! The reality is, if he follows the pattern of previous treatments, the pain should come on with a fury in a couple weeks and last for 3-4 weeks. Will you please pray that Andrew could avoid the intense pain phase and we would just see an exceptional improvement in pain that is sustained? Please also pray for wisdom for us and his Dr's, we are meeting in early April to discuss next steps. At this point, it looks like Andrew's tumors are stable (praise the Lord)... he has a follow up scan in 3 months and then 6 months to see how things are holding up. If there is progression at that point, they can do 2 more rounds of PRRT. Will you PLEASE pray for no progression what so ever and that we would get many years of stability... actually lets pray that his cancer stays stable forever because our God can absolutely do that?!?!<br />
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-Since being home, Andrew has been able to do "normal" kid fun stuff like playdates and even a sleepover (thanks to a sweet friend who never minds giving him meds throughout the night, even waking him up for his 3:30 am meds). We went to the rodeo, one of our families most favorite things to do together! Most people go to the rodeo for the concert (I think some guy named Chris Stapleton was playing the night we went), but we literally go for the actual rodeo and leave when the concert starts because we don't even know any of the artists who play there (except Garth, we do know who Garth Brooks is... LOL). <br />
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The Ross Family Circus!</div>
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Carnival rides with friends!</div>
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Grace with the ponies in the background (that was her favorite, second only to the piglets and the bull riding :-)</div>
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Love that David took this pic over his shoulder while walking so they didn't even know they were being photographed!</div>
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Nothing beats watching the rodeo with this kid... here is Grace's reaction when a bull rider fell off the bull practically right out of the gate!</div>
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This is how we closed out the rodeo... my boy fell asleep in my lap. The people behind us said "you must have worn him out at the carnival all day..." Nope... that's just what a warrior taking a rest from battling the hell out of cancer looks like!</div>
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-Update on Abby... we are so proud of her for making the ODP (Olympic Development Program) State team! She loves soccer so much (it's her happy place) and works so incredibly hard, we are grateful she gets to experience accomplishing goals that she sets for herself. <br />
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Abby rockin' her zebra headband and logo on her wrist for her Bubba during her tournament last weekend!</div>
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-I'm loving my new role in the Oncology Division so far, but I don't love having to go out of town and be away from the family. I leave tomorrow after church for training in New York, please pray for our time a part.<br />
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-A few nights ago, I had tears as I shared with David how much it breaks my heart to hear Andrew talk about when he is a dad or when he is grown up, etc because there is a high likelihood that he may never have that opportunity and he would be SUCH AN AMAZING DADDY.... like SO AMAZING!!! As David and I talked and prayed, I was once again reminded that God is the author of Andrew's story, so I can't give root to those fears and instead it is ok for me to dream right along with him (instead of fight back tears in the moments). Wouldn't you know that as I got the mail today there is a letter from a Dr I didn't recognize from TCH.... I immediately thought "this must be from the genetic Dr that insisted on doing further genetic testing," despite the fact that our incredibly brilliant friend who has literally committed his life to better understanding/curing cancer has already looked at every protein on every strand of DNA in his tumors, never the less, since our friends work was considered "research" based verses clinical, they wanted to rerun their tests. We were totally fine with that because we figure it never hurts to have a second look and in the event it helps them gain more information about Andrew's cancer that may help him and/or other patients down the road, it's totally worth it. My heart was pounding out of my chest as I opened the envelope, I scanned the page for any scary information and at first the bolded section that caught my eye mentioned some mutations that I knew they were testing for and at first glance I thought it said they found those mutations in Andrew's tumor... As I felt my heart pound so hard I could feel it in my ears, I decided to read the letter from the top and praise the Lord the bolded section said that they did NOT find any of these mutations (which means we don't need to have the rest of our family tested for this dreaded disease... PRAISE THE LORD). As I flipped to the second page and read on this sentence jumped off the page and melted my heart... big time!!!<br />
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Please hear me clearly, I'm in no way saying this letter is prophetic, but it certainly serves as a reminder and huge hug from God that Andrew could absolutely have his own family some day if that is what God wills in His infinite wisdom and power! That's what #hopeon is all about. We will hope on with certainty that God alone is the author of our story and we trust His heart, even when we can't see or understand his hand. <br />
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-One more prayer request... as a result of Andrew's radiation treatment, his hemoglobin is low, so he gets more tired than normal and he gets out of breath easier (until it returns to normal). He is suppose to start flag football and a swim clinic in preparation for Summer swim team, will you please pray that he excels in both of these areas... that it builds his confidence instead of tear it down and remind him that he is different (has a hard time keeping up with other kids because of cancer)?</div>
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THANK YOU TROOPS!!! LOVE YOU!!!</div>
The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com0tag:blogger.com,1999:blog-3515728319081642483.post-87717091619073353602018-02-20T20:45:00.002-06:002018-02-20T20:58:01.984-06:00Come Laugh and Cry Along With Us...Please forgive us for the many weeks that have gone by without a post... as you can imagine, our life literally never has a dull or boring moment. I'm going to share some highlights with you from over the past month or so that I want to make sure I document, since in many ways this blog is like my own personal journal. <br />
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1) Quick update on Andrew and Grace- Andrew's pain has been pretty intense for the past two weeks. He has had to go to school late because he wakes up in terrible pain or come home early from school because the pain was so bad he was throwing up. We are praying with every ounce of our being that it is just evidence of tumor death and not anything else. Each time after PRRT, he goes through a time where there is a honeymoon period (pain isn't bad right after) and then it comes on with a fury for a couple weeks, the timing/interval in which this routine plays out is always different, so it's hard to anticipate. Lord willing, we should start to see pain improvement now. Will you please pray this is the case? Also, Lord willing, his next round of PRRT is scheduled for March 8th, with scans on the 7th. Will you please pray his scans on the 7th show no progression, a whole lot of regression, healthy kidneys, and we get the green light to move forward with his final round of PRRT on the 8th? <br />
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This picture says so much... notice Andrew's face is bright red, that's evidence of a boy in insane pain... pain that caused him to throw up just before this pic was taken. Despite the red face, he smiles as he knows his little sissy (who also knows pain and suffering all to well) insists on snuggling him and loving on him while he attempts to sleep off the pain.</div>
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We have such a huge yearning in our hearts to see Andrew off of SUCH heavy duty pain meds or at least on a whole lot less of them because it's so hard not being able to remember his personality without being "on drugs." Andrew is super tender-hearted, loves to serve younger children, always looks for the kids that are "left out" or a little different and befriends them, and he loves his family fiercely. All of these qualities remain in tact (praise the Lord), the things that make it hard to watch is when he seems manic (talks really fast and nonstop about whatever he is interested in at the moment... it's usually something related to what his amazing imagination is dreaming up) and when he gets overly sensitive. We know that his medication induced personality changes could be SO much worse, so we praise the Lord that it doesn't manifest in the form of aggression, etc, so we can absolutely endure, it just makes it hard to really connect with him at times because it feels like an unfamiliar (it's so out of character) and moving target. It is especially hard on Abby to see his personality change and not know exactly how to manage it because that's her best friend whom she loves to pieces and just wants to love well, but it's not as easy as it used to be. Also, Andrew is dealing with just feeling "different" at school because his life is so much different than all of the other kids (he is constantly faced with questions about his mortality, he misses a lot of school, when he is at school he is often times distracted by brutal pain, and he is trying to act as "normal" as possible, despite the fact that he's on medications that make him feel different and maybe act different, but he can't really control it). It has broken our heart to hear him share how he sometimes feels lonely at school. Andrew has always had a ton of friends and he still does, but there is no question that things have changed... even just as it relates to how much school he misses. When he isn't there kids naturally develop new patterns of who they partner with in class or play with in his absence, so when he is at school, it's hard to jump back in as if he had not been gone. Not sure if that makes sense, it's just so hard to explain. All that to say, will you please pray that Andrew can get off of heavy duty pain meds as soon as possible and not experience loneliness at school?<br />
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*Grace is doing much better... those of you not on Facebook, Grace's INR level was more than double what it should be (putting her at a high risk for internal bleeding). She was sucking on a sucker (it was her reward for being so brave during her blood test) and she somehow got a tiny cut on her tongue. Her tongue literally bled for over 4 hours straight, so that in conjunction with her high INR warranted a trip to the ER. We got her INR back down safely, but then it was too low (putting her at risk for a stroke), but by God's grace it is now within the right range and we hope we can stay there. <br />
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Bubba holding pressure on Grace's tongue for over an hour in the car!</div>
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She finally knocked out at the ER and the bleeding eventually stopped over 4 hours later! We were grateful her and David were home by 3:30 am (before the big kids woke up... they hate when she's in the hospital).</div>
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More on Grace- so, you know she took the COGAT test this year (it was 3-4 hours a day for 3-4 days) and her teacher said she crushed it. She stayed engaged during the whole test and was really thinking through the answers. I thought that was a huge accomplishment that she took the test, so when we got the results back we were crazy proud of her and once again marveling at God's awesomeness. In a couple of the sections Grace tested at a 2-3 year old level, but in the quantitative (math) section, she scored as a 6 year old (she's only 5 years old, has an extra chromosome, and has spent much of the first 2 years of her life intubated, sedated, and in the hospital). Now that's ALL God (working through her amazing teachers who love her like their own and set high goals for her because they truly believe in her) because let's be honest, it's not like we do a whole lot of therapy outside of what she gets at school (which is easy to feel guilty about) because we just don't have time for it with all the Dr's appointments we have with both Andrew and Grace, all of Abby's activities, work, etc. <br />
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Grace being both a cheerleader and coach at one of Abby's soccer games (she legit, has good coaching tips... "pass it, hustle, nice try..." :-)!</div>
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Grace has started her tap and ballet classes again, which she LOVES. We are excited to watch her in the recital (Lord willing) because last year she didn't get to perform in the recital because she ended up having her 6th open heart surgery instead. Another proud Grace moment, was when David was with her on a date at Ihop. They were walking back from the bathroom and Grace did a double take at a table they were walking past, she excitedly proclaimed "that girl has Down Syndrome like me!" We can't get over how cool it is that she can recognize homies with an extra chromie like her. In our house we celebrate Down Syndrome and other special needs because it would be such a boring world without our special needs friends teaching us how to celebrate the big and small things in life and getting to see life through their eyes. No joke, everything is way more magical when seen through Grace's eyes (even the most mundane tasks in life). <br />
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Can you find Grace in this pic? Keep in mind that an extra chromosome usually leads to being extra flexible... she's the second one in from the right ;-)<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKt-5FMRgnw1MoqCdDWPsSZ_aNwPUh61d8PGxBO1IvNYbMs62yTX8glYpG5eg3T2MAnvGUt6hC1w3JfRl1-wfFq_KwGq3oXFU4roixInIFuZT0DKpjlT-Q1GxQHshhxxi3TZ9MKkmRrNUd/s1600/fullsizeoutput_58f3.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1082" data-original-width="1566" height="221" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKt-5FMRgnw1MoqCdDWPsSZ_aNwPUh61d8PGxBO1IvNYbMs62yTX8glYpG5eg3T2MAnvGUt6hC1w3JfRl1-wfFq_KwGq3oXFU4roixInIFuZT0DKpjlT-Q1GxQHshhxxi3TZ9MKkmRrNUd/s320/fullsizeoutput_58f3.jpeg" width="320" /></a></div>
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2) David and I have found our new favorite place to work out! It's called F45, it's in our neighborhood and it's owned by two amazing Christian families. We had only been there a couple times when one of them asked me about what the meaning behind my Andrew's Army shirt meant and before I knew it they had created the coolest fundraiser for our family! Last Saturday, they had 3 classes in the morning where everyone wore Andrew's Army shirts that were provided by the gym for a donation in return. This little, brand new (has only been open for 2 months now) gym raised $2,000 for our family and we were blessed to witness a bunch of new and old friends pushing themselves to the max in honor of our boy. What a blessing! I walk away from these classes most every time more sore than I have been in years and it is the most fun and motivating workout environment you could imagine. If you live anywhere near Sugar Land, please come try F45 in Greatwood! You will love it, I promise!<br />
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One of the two super cool owners, Derek! These guys have hearts of gold and are doing Kingdom business in that place!</div>
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One of the 3 classes that day! I didn't get a pic of the class we participated in that day... maybe we were seeing stars and about to pass out! When David and I workout together, we are a little competitive ;-).</div>
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3) One of my favorite ministries of all time, which the Lord has so generously allowed me to be a part of, is a girls bible study that we started 3 years ago. Watching the Lord use these girls as He grows them in their faith is super cool! Over the years, the Lord has put it on our hearts to help these girls become more prayerful people and to serve others sacrificially. In a way only God can, He brought a special man into our lives to build community with and love well because he literally has no community, in fact he doesn't have any contact with the outside world. In many ways, He is a prisoner in his home because of a stroke he had many years ago that left him wheelchair bound and only able to use one side of his body. All of his family lives in India. We have made it a point to go to his house and plant flowers in his front yard, bring him Christmas gifts, play games, and above all share God's love with him. He is Hindu, so he has told me about the 365 God's that he worships. Despite the fact that we have different faith backgrounds, he absolutely LOVES the company and is always happy to have us pray over him. This past Sunday we brought him some Valentine goodies, played bingo, and gave him his very own Bible. We shared with him about how much Jesus loves him and all that He willingly gave up for him as evidence of that love. Will you please pray that the Lord would bring our sweet friend to a saving faith in Christ and that God would be his ever present help and companion?<br />
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Helping our sweet friend get acquainted with his new bible!</div>
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Playing Bingo!</div>
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4) We had been praying about finding the right counselor for the big kids (just someone to help them process their feelings as they endure this tough journey we are on) for over 6 months and I had emailed a number of people, but just hadn't found the right fit. Well, in His perfect timing, He answered that prayer by leading us to a counselor that is literally a God send. After only a handful of sessions, I feel like she knows my kids as if she had known them since birth. They both LOVE going to see their counselor (and I love the couple minutes I get to chat with her after her sessions with the kids). Initially, the kids weren't excited at all about seeing a counselor because they felt it was weird to talk to someone they don't even know, especially when they really just prefer talking to us. We explained to them that their mommy and daddy are big fans of going to counseling before the wheels fall off. We shared with them how we went to marriage counseling and retreats before we were married and continue to be proactive in making our marriage a priority. They willingly, but fearfully agreed to go see the counselor once to see if they liked it. We showed up to the kids first season to find the counselor waiting for us in an Andrew's Army shirt (one of my dear friends dropped one off on her porch before our meeting without me knowing anything about it). From the moment they saw her standing there with her Andrew's Army shirt on, along with her sweet and inviting disposition, I could tell they were sold. <br />
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*While we were in Orlando for Abby's soccer tournament, one night (late at night when the kids really needed to be sleeping because we had an early morning the next day), Abby and Andrew had a conversation that I thought might destroy me because it felt as though I could feel my heart was beating outside of my body; so vulnerable that it was hard to breath, but I knew I had to help them navigate the expression of their feelings. Andrew basically shared with Abby that he is afraid that someday when she's older and has a family of her own that he doesn't know if he could handle if they had to live far apart from each other (he specifically said, "I know you love playing soccer and I love that you play soccer, but what if you have to live in another country someday... this brought on a lot of tears), she might forget about him, and she might stop taking care of him because she will have a family of her own to take care of. He went on to say, "what if God calls me home early, I want you to always remember me and smile and never ever forget about me, I don't want you to think about times when I made you mad or upset you." Needless to say, there were lots of tears, hugging, reassurance, and prayer. The conversation ended up being such a blessing, giving us a ton of insight into Andrew's heart and helping Abby see why he may respond to her in certain ways. I'm grateful David and I have their counselor to help us process these types of feelings with the kids. She (the counselor) confirmed that Abby is Andrew's #1, so the reassurance of her love for him and that nobody, no time, no temporary separation will ever hinder her love for him is something he needs to be reminded of. Something else that we are always striving for is to make sure we have a God-honoring balance as it relates to Abby's soccer. If it were up to her, she would play soccer all day every day (although she is great about prioritizing her walk with Christ over soccer). Their counselor has affirmed for us over and over that soccer is a very healthy outlet for Abby. It is her "safe" place... the only place she can go and not think about cancer, Grace's heart, etc while having a ton of fun. Abby also loves that David and I are so purposeful about watching and cheering her on whether it's practice or a game. Despite the fact that we love watching her play and love our soccer family, it makes all the time, money, and energy we allocate to her love for soccer worth it to know that it is a healthy escape for her because she spends SO much of her life serving others (especially her family). All that to say, as I prayed about finding the kids a counselor I did something that is difficult for me and that was to just be still (wait) until the Lord moved. I tend to be the type that wants to get things off my "to do" list as quickly as possible (i.e. find the kids a counselor... check), especially if it is a task that impacts the kids spiritual, mental, physical, or emotional health. However, it took well over 6 months (including much research, emails, and phone calls) before the Lord brought us to this counselor that is perfectly suited for our family. While I don't know why He allowed a 6 month delay, it was certainly a reminder of God's faithfulness... He is never late; He knows our needs before we do; He is already where we are going; He is tender and merciful; and His grace IS sufficient for our time of need (not a moment sooner ;-).<br />
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The crew at one of Abby's basketball games this weekend!</div>
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I don't have many pics of Abby at soccer for some reason, despite the fact that she's always playing soccer, but I did find this pic from a tournament a few weeks ago. Abby lovin' on her bubba in between games!</div>
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This girl is something special (I mean Abby... although Emme, the dog is special too)! Love her heart that is so tender and so fierce all at the same time!</div>
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5) Last update I promise, but I have to make sure to document this moment for myself too because it was such a special one... our church had an Ash Wednesday service which was AMAZING!!! I took Andrew and Grace because David was with Abby at soccer. The service was a powerful way to start preparing our hearts for the next 40 days, leading up to Easter. We were reminded of our depravity (sin/moral corruption) that nailed Jesus to the cross. Cancer and congenital heart defects exist because we live in a fallen world... they (in addition to the heartache and devastation we see all around us) serve as a constant reminder to our family of the ramifications of sin (not Andrew or Grace's sin, we don't believe in the karma type of sin... you sinned, so you get a bad consequence like cancer... otherwise we would all be punished constantly/all day everyday, but instead the sin that entered the world as a result of the fall of man/Adam and Eve), but the story doesn't end there (THANK GOD)... our sin is trumped by the ultimate act of grace that our God displayed on that cross 2,000 years ago. As it says in Isaiah, He was pierced for our transgressions, He was crushed for our sins, the punishment that brought us peace was on him, and by His wounds we are healed! What a great God that He would die in our place, that makes Jesus the most loving man I know, but the fact that He conquered the grave... he didn't stay dead, He rose again and is seated at the right hand of the Father interceding for us. The peace and joy on earth we can find in Jesus (even when life really sucks) and the hope we have in eternity, changes everything! Sorry, I got off on a tangent (can you tell that speaking truth to myself is something I have to do often because it is powerful?), but between our pastor's teaching and the awesome time of worship, the Holy Spirt spoke to my boy in a powerful way. He worshipped with his arms around me and looked up at me once to say "Our life is so hard, but I know it's going to be ok, I know its going to be ok!" Later, he looked up at me and said how much he loved me, that he wouldn't want any other mommy, that he really loves that I always point him to God when times are hard, etc. Fortunately, since Andrew's love language is words of affirmation, he is really good at affirming those around him often, so this isn't out of character for him, but it was so heart felt. Through a plethora of tears, I shared with him how proud of him I am and how I strive to be as strong and brave as he is, how I admire the way he is truly broken about his sin and so serious about repenting (really trying to do things better), the way he loves others so sacrificially, and then I couldn't help but to start praying over him, at which point our precious friend, Mrs. Kathy, joined us in prayer. It was such a grace-filled time, all of which took place while Grace was both worshipping on her own or sitting on the ground with her hands folded and head bowed, praying (I was really proud of her for being such a good listener and so patient during the whole service). Since David and Abby weren't there, Andrew's bestie, Mr. Alan and his wife Mrs. Kathy, sat next to us on the front row (may favorite place to sit in church :-). Mr. Alan and Andrew went up to the front of church together to do an activity symbolizing being renewed and set free in Christ. They drew a cross together with paint on a canvas and prayed together while up there and I of course sat and wept as I witnessed a young boy and elderly man (although Mr. Alan is the youngest 82 year old I have EVER met) that could only be united in such a profound way by a God that is tender beyond words. Who knows how long either Andrew or Mr. Alan have on this earth, but one thing I know for sure, Andrew being loved and mentored by a man that loves the Lord with every cell in his body (despite living through some of the deepest loss and brokenness that you could think any one person could endure), has a bond with my boy that is unlike anything I could ever imagine (they literally have playdates 1-2 times per week for up to 8 hours sometimes and it is still never enough time for them to do all of their drawing, lego building, watching movies, etc), and has not a fear in the world about going home to meet his Savior someday, makes me ponder. Is the Lord so tender that He would unite their hearts hear on earth, so that when they go home (whenever that is... I've talked to God about Mr. Alan living to be 100 and Andrew getting to be an old man), Andrew will know someone upon entering heaven and not have to fear getting there and worrying about how he will know where to go? Well, I can't get my mind, heart, or fingers to type the rest of that thought, but I'm trusting you know what I mean ;-).<br />
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Not the best pic, but I had to snap it quick so I didn't look too awkward taking pictures during the church service ;-). These two are 73 years apart in age by this worlds standards, but they are both equally young at heart, and yet, oh so wise as their souls reflect God's goodness and joy even in the midst of raging storms.</div>
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Heading off to one of their weekly playdates!</div>
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WOW! It's hard to believe, but in just two days (Feb. 22nd) it will be exactly a year since we received Andrew's cancer diagnosis. That day we went to an appointment with an oncologist thinking they were going to release him to be followed by the liver specialist because, at that time, the Dr's had crossed out with a pencil the possibility of cancer. Nothing could have prepared me for that day... all I could remember is after hearing stage 4 cancer the room went silent, despite the fact that the Dr's mouth was still moving. All I could do was watch my healthy looking boy who was sitting on the table next to me, joyfully playing his iPad, completely oblivious that he was being given a death sentence at that moment. Filled with such disbelief, fear, and heartache my mind was racing.... is this for real? how quickly can I get out of here so I can start doing some research? where do we go to find the best Dr's to help us? how in the world do we explain this to Abby? even more so... how do we explain it to Andrew? Our lives will never be the same... that's when I stopped the Dr mid sentence and asked him if we could just stop and pray. From that day on, God has taught me what it looks like to let Him and Him alone be the author of our story. Allowing God to be the author requires us to see with our faith, not with our eyes, heart, mind, or the expertise of Dr's... it calls us to a radical faith that many days feels foolish because it flies in the face of anything this world deems as reality. We learned the lesson of opening our hands/releasing the grip we have on our children and trusting His will, not ours, when Grace was born (after almost losing her twice and 6 open heart surgeries later), but cancer is a whole different beast! We continue to surrender our children and our will daily to Him and we continue to live everyday with radical hope that our God can do exceedingly, abundantly beyond anything we can comprehend and even if that doesn't come in the form that aligns with our will, our hope... we will praise Him anyway. Until we have a reason to believe otherwise, we are going to hope on and ask God for a miracle for Andrew because only He can heal Him or let him live a loooong healthy life with cancer in his body. He is able and He is worth it!<br />
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"Let us hold unswervingly to the hope we profess, for he who promised is faithful." </div>
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Hebrews 10:23</div>
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<b>***Will you please pray for my heart on Feb. 22nd, I don't know if that day will come and go like any other day or if I'm going to get taken out at the knees by the enemy?</b><br />
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<b>***Friendly reminder... please pray for Andrew's next scans on March 7th! For more great news and the green light to move forward with his 4th and final round of PRRT! Please also pray for wisdom as to what the next steps should be after PRRT because at this point, we don't really have a plan... we need God to tell us and our Dr's what to do next. </b><br />
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This is what we would look like without y'alls love and support (this pic is courtesy of Grace during a daddy and Gracie date;-)!</div>
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THANK YOU ANDREW'S ARMY!!! You are our people!!!</div>
The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com0tag:blogger.com,1999:blog-3515728319081642483.post-9676527794680197272018-01-25T08:40:00.000-06:002018-01-25T08:40:34.747-06:00Lots of praises!This is David again, I was trying to figure out where to begin the blog and the first thing coming to my mind is that we received great news from Andrew's scan results before he began his 3rd PRRT treatment on Friday. The tumors have not really changed in size (maybe only .02cm total across about five of the larger tumors they are monitoring for each scan); however, the good news is that on Andrew's FDG PET scan, there is about 50% less uptake of glucose unilaterally across all tumors throughout Andrew's body. Andrew's cancer tumors require glucose in order to multiply, therefore, this demonstrates the tumors slowly dying and having less of an ability to reproduce (at least, that is my interpretation and could be very far from an accurate medical description of what is happening). The doctors at Excel Diagnostics also stated that, while the tumors have not reduced in size yet, if this trend continues, then after his 4th PRRT treatment the hope will be that the tumors collapse on themselves and will cause shrinkage of the tumors. We are praying and hoping tumor shrinkage will lead to pain shrinkage and an ability to get Andrew off all these pain meds (he's still on about 8 heavy duty pain meds). No matter what, we are excited about how this treatment is working thus far and praise God for His continued work in Andrew's body. Although, to be honest, if nothing was working at all, we would still be praising God for his continued work in Andrew's life and body. <br />
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PRRT round 3!</div>
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Andrew's sleeping arrangements for his 6 days of quarantine He's got his snuggle buddies (a bear to represent every member of the family with some of our clothing on)</div>
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During PRRT, Andrew and I did our usual night of camping. At 38 years old, you would think I would be wise enough to pay attention to the weather and plan better for myself; however, I did not learn my lesson from last time and spent the night shivering in my sleeping bag. At home, Kristi usually makes me feel like I'm roasting with the temperature in the house and I sleep in the bare minimum; therefore, I did not plan well for sleeping in 38 degree weather. Oh yeah, my sleeping bag lies as well, it states that it'll keep you warm down to 35 degrees.<br />
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<span style="font-family: inherit;">Anytime I have to be away from the house I have a talk with Emme and remind her of the important role she has in keeping the girls safe. Emme keeps eye contact when I tell her this, therefore, I assume she gets the message. This is a picture of Emme going above and beyond the call of duty. Good job, Emme!</span></div>
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We had a great time at Abigail's 3v3 soccer tournament in Orlando. We enjoyed getting to spend time with Abigail's teammates and their families. The team did great, finishing in third place at the tournament. Most of the other teams in Abigail's bracket were from somewhere in the Northeast, where they play a lot more soccer inside during the Winter and frequently practice and play these small sided games. The fact that our girls finished third, with this only being their second tournament of them all playing together was fantastic. The team that won the tournament only beat us by one goal in the semifinals, in a game where our girls dominated the game in possession and shots, we just didn't get enough in the goal. Overall, it was a great experience and one our kids will never forget. We also had the opportunity to go to Universal Studios (with most of our time spent in Harry Potter areas) and Disney World (Magic Kingdom, Hollywood Studios, and Animal Kingdom). Grace especially loved Disney and one of our highlights of the whole trip was when Andrew and Grace were selected during the Lion King show to go onto the stage and perform with cast for one of the songs. I will attempt to post the video of this (Grace was amazing)! <br />
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A well deserved 3rd place in the Nation for this great group of girls!</div>
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Team and their siblings (minus Grace since she didn't want to get close to Minnie)</div>
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Andrew got to be the team captain for the semi-final game and the game for 3rd place. The ref gave him the coin he flipped and Abby's coach gave him a trophy too! So cool!</div>
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Harry Potter world (not official name) was awesome! </div>
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Hogwarts Express was so well done!</div>
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More Hogwarts Express...</div>
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I want one of these...</div>
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Magic Kingdom fun while waiting for the creepy Winnie the Pooh ride</div>
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A glimpse of Abigail's rarely seen (by the general public) silly side!</div>
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Zebra Minnie ears.... how awesome is that!</div>
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Buzz and Woody were a huge part of Andrew's life for many years, we couldn't resist having him take a picture with them (just not in the 45 minute long line)</div>
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Lovin on their Bubba with a sneak attack!</div>
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Tea cups with this cutie. We knew Grace couldn't spin it too fast so we agreed to go on the ride with her verses the big kids ;-)</div>
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More Buzz! We can't get enough of that dude, he's like a part of our family!</div>
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Dumbo ride buddies!</div>
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We've noticed Andrew's many pain meds make everything more vivid in life (even the 3D "Bugs Life" movie/ride was a little much for him), scary Yeti monsters included, so we were so proud of him for going on the Everest roller coaster</div>
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Andrew got to do Jedi training!</div>
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Grace and Andrew participating in the Lion King Show at Animal Kingdom!<br /><iframe width="320" height="266" class="YOUTUBE-iframe-video" data-thumbnail-src="https://i.ytimg.com/vi/nSC4KHF-coY/0.jpg" src="https://www.youtube.com/embed/nSC4KHF-coY?feature=player_embedded" frameborder="0" allowfullscreen></iframe></div>
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<span style="text-align: center;">At the end of our trip at Animal Kingdom the kids went to use the Disney gift card they got for Christmas... Andrew had his heart set on this lion stuffed animal he saw, so you can imagine what Abby was determined to use her money for, that lion for Andrew. While David and Abby rode the Everest ride (we did a parent swap), Andrew, Grace and I looked around the gift shop. Andrew saw the jewelry section and immediately said "I want to get a ring for Abby with my money." I couldn't believe it since he had been REALLY excited about getting that lion he wanted. I helped him pick out the right size ring for Abby and he went to pay for it with his gift card. I could see the wheels turning in his head as he waited for the cashier to ring him up... "if I buy this for Abby, I won't get my lion, but it's ok...." He bought the ring and gave it to Abby, She loved it! I was so proud of him for loving so sacrificially. A few minutes later I asked Abby what she wanted to buy with her gift card (already knowing the answer). She replied "I want to buy Bubba the lion!" His eyes lit up with such gratitude. It was a pretty amazing teachable moment!</span><br />
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Abigail had her first basketball game of the season and her team had a big win in a hard fought game... and Abby only fouled once. She had played soccer all weekend at ODP (Olympic Development Program) training, so itâs all too easy to bring some of the aggressiveness of soccer to the basketball court, but she did a great job of going hard and minimizing fouls. ;-)<br />
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Abby's cheering section!</div>
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Grace continues to provide constant comedic relief with her hilarious and witty antics. Her favorite song these days is the Seagulls bad lip reading song from Star Wars. Hearing her sing it and act it out is the best! In case you haven't had the opportunity to hear this gem, here it is for your listening and viewing pleasure.<br />
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Kristi and I have been praying a lot about her job and if she should consider moving to the Oncology division within Pfizer (since she obviously has a new found passion for the Oncology world). In December, a position became available in the Houston area (in the Medical Center- same hospitals she has been calling on for the last 12 years), so we prayed about it and Kristi applied for this position. After having had a few interviews for the position, Kristi was offered the job this past Friday (same day we got good news about Andrewâs scans) and she accepted. She is looking forward to moving into this division and having the opportunity to grow in her knowledge of the oncology landscape, but above all, she's excited to help patients in their battle against this dreadful disease . Anyone who knows Kristi knows she doesn't do anything half-a*#, so the next few months of home study and training are going to be intense for her, but I know she will love it.<br />
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***I (Kristi) am back- We were all reunited (after our six days of quarantine from prrt) and it feels SO good! <br />
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Grace's first comment when she got off the bus and after she gave David and Andrew a hug, "Family hug...oh, oh, picture!"</div>
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We are rejoicing over good news, great memories, and new opportunities! Therefore we shouldn't be surprised that the enemy is busy trying to crush our hope and cause us to fear the future instead of rejoicing in the present (especially when we get good news about Andrewâs treatment, the enemy's motive is to squelch our praise by reminding us of what statistics say, etc), but we will continue to hope on and hold on to the One who holds our future in His hands. The One who can do exceedingly, abundantly beyond what we can even imagine! We serve a big God, who Iâm certain has big plans for our family and yours. Letâs not grow weary in asking God for that miracle for Andrew and for what ever is burdening your heart!<br />
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We sang this song in church on Sunday and I havenât stopped thinking about the power and truth behind these words... Iâm praying this song over our family and yours!<br />
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âLet faith arise in spite of<br />
what I see Lord I believe<br />
But help my unbelief<br />
I choose to trust You<br />
No matter what I feel, let faith arise<br />
Let faith arise<br />
For my champion's not dead, He is alive!<br />
Oh, and He already knows my every need<br />
Surely He will come and rescue me<br />
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Chorus<br />
God of miracles come<br />
We need Your supernatural<br />
love to break through<br />
Nothing's impossible<br />
You're the God of miracles<br />
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Let faith arise and see the kingdom come<br />
I lift my eyes, oh<br />
for the battle has been won<br />
My God is faithful, oh<br />
and every single word<br />
He said is true, oh<br />
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Bridge<br />
This world is shaking<br />
but You cannot be shaken<br />
My heart is breaking<br />
but I'm not broken yet<br />
Your love is fearless<br />
Help me to be courageous too<br />
Oh there is nothing impossible<br />
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Chorus<br />
For the God of miracles<br />
We need Your supernatural love<br />
To break through, nothing's impossible<br />
You're the God of miraclesâ<br />
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What is the enemy using in your life to steal your joy and hope? Letâs choose joy because our God is bigger (than anyone or anything), He is worthy, He will never let go of you, He is already where you are going! Let faith arise! #hopeon #Heisbigger #butGod<br />
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ANDREW'S ARMY, you continue to carry us with your prayers, encouragement, acts of service, and so much more! I will never stop thanking God for you and praying over you and your family!</div>
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The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com0tag:blogger.com,1999:blog-3515728319081642483.post-57588898457595502792018-01-08T21:16:00.002-06:002018-01-08T21:16:39.302-06:00Merry Belated ChristmasWe pray that you and your family had the Merriest of Christmases! We have spent this Christmas contemplating "what if God never chose to put on human skin and come to this earth as a baby 2,000 years ago?" It would have changed EVERYTHING! How would we endure suffering with peace and hope if Jesus was never born to live the perfect life we could never live and die the death we deserve to die? Jesus' birth IS the ultimate gift! I pray we never lose the awe of this truth!<br />
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For so many reasons, this Christmas has been one we will never forget... It is a time for us to reflect on HOW much our lives have changed in just a years time. A year ago, we knew Andrew had tummy pain that we were working hard to find a solution to, assuming it was a more common cause for tummy pain in a child (food allergies, acid reflux, IBS, etc). We never dreamed we would hear the "c" word just two months later. Also, in the midst of a new cancer diagnosis, Grace's heart would require another emergent open heart surgery. This year has tested our faith like never before and forced us to answer deep questions and with more than our words (that's the easy part), but with our hearts, minds, and ultimately our daily living. "Is God enough (no matter what happens to us, even if that means losing a child)?" "What do I do with hope when everything around me says there is no hope for my hearts desire to be accomplished (my son to beat cancer)?" "Do I trust God to make a way where there is no way?" We all know how we are suppose to answer these questions, but when you have to live that answer out, it requires a whole other level of faith and dying to our self. <br />
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This Christmas God reminded us once again that He has the details figured out before we even know there is a problem. You see, we had to have our shower redone a year and a half ago because there was a leak, which caused mold to grow in the walls. This was an unexpected cost at the time, but we knew it was necessary. Everything looked great until I noticed the drywall along the pony wall near our shower was soft. Eeeek! We had it looked at and repaired, until one day I noticed mold coming through the paint on that same wall. Long story short, we learned the shower wasn't replaced properly and now we had mold worse than when we started. We had to get a new person to redo the shower that had just been replaced (meaning we got to pay for our shower to be fixed twice) and at the same time we found out David's car needed $1,000 worth of repairs. While these unexpected expenditures were frustrating, especially at this time of the year (Christmas), just before these expenditures reared their head, I had a sweet friend from the big kids school ask if I would be ok if she did Christmas for our family (with the help of our absolutely, positively, amazing community.... and even a new community that I didn't even know existed) all because the Lord had put it on her heart. In addition to the amazing Christmas blessing from our friends and community, we were also blessed with some wonderful gifts for the whole family from Candlelighters (an organization providing emotional, physical, and financial support to families of children with cancer). We can't say enough words of thanks to everyone who was willing to give on our behalf! Our family was overwhelmed with everyone's generosity! Only God could have known how desperately we could use these blessings. Still brings me to tears every time I think about it, look at, or use the gifts we were given.<br />
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Let's pretend this is our Christmas Card :-). Once again we didn't get Christmas cards out this year, but please know that each Christmas card we received has not gone to waste. We take one family/card and pray for that family for a whole week. Please know if you sent us a card, we are committed to praying over y'all. </div>
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We got to spend Christmas Eve with Lu Lu and the kids' Besties (Mrs. Kathy and Mr. Alan). Check out these cool shirts our super talented friend, Jenny James, made for them. In case you can't see it, it has a drawing of "Scar Neck the Encourager," which is Mr. Alan, and "Scar Belly the Brave," which is Andrew. </div>
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**Quick bit of information, Kristi had started this blog post right after Christmas and then our life got really busy and it doesn't look like we will have a break anytime soon; therefore, I (David) am taking over and will give you a quick snapshot for the rest of this post.<br />
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On December 30th, we had the opportunity to run in the Snowdrop Foundation Ultra 55 Hour Race & Relay. We have run in marathons, half marathons, spartan races, etc, but none of those come anywhere close to how amazing the Snowdrop Ultra 55 hour was for us and our team. Our good friends, who are part owners of some amazing restaurants in Sugar Land (Japaneiro's, Jupiter, Guru Burgers, and Kilo), sponsored us to form two teams, Andrew's Army and Andrew's Army, Jr (which was mostly a kids team). Kristi will be able to better express how amazing this race was, but in my own words I can say that I have never walked away from a half marathon or marathon and thought, "I can't wait to run that race again," however, with the Snowdrop Ultra 55 I actually can't wait to run it again next year. The willingness of so many people to run at all hours of day and night for 55 hours straight, all to support childhood cancer, was inspiring and heartwarming. Thank you to everyone who supported us and ran with us! This is Kristi... David did a great job, but there are SO many amazing moments and details I have to share with y'all later about this race ;-)! It was truly AMAZING, so stay tuned!!!<br />
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The whole crew!</div>
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Andrew's Army Jr. team (the kids were lucky to have some rockstar adults to help them out)!</div>
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Andrew's Army team!</div>
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My people!</div>
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These 3 girls combined put in about 85 miles!</div>
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So proud of my running side kick for logging 30 miles in 55 hours!</div>
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Our favorite shift of all was running from 2- 3:30 am! Every time we passed Bubba's pictures (he had two, since he had two teams) we would give him a high five!</div>
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These awesome running shirts were also created by the amazing Jenny James!</div>
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This dude ran 20 miles in the middle of the night on New Years Eve/New Years Day!</div>
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So proud of him!!!</div>
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These two kicked off the race!</div>
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Grace getting to participate a bit too! The crosses in the back of the picture are a representation of the number of children that would lose their life to cancer in the 55 hours we were running.</div>
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Later this week, we are headed to Orlando for the 3v3 soccer championships. Abigail and four of her teammates (and great friends) qualified for this tournament over the Summer when they won the regional tournament. While there, the kids are thrilled to also head to Universal and Disney. Andrew has been praying at night for Abigail's team to do well and that he'll remember the reason we are going to Florida and to not be too eager to get to the parks after Abigail's team is done playing their games each day. Good job, buddy! Oh yeah, Grace has woken up every day since Christmas asking if we are going to Disney today.<br />
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Then, we get home from Orlando on the 16th and Andrew has scans on the 17th and 18th, followed by his 3rd round of PRRT on the 19th. So far, Andrew's pain has been much better. He is still on tons of pain meds, but he is not having the breakthrough pain he used to have all the time, praise God! Let's pray his pain continues to subside, and even more, that this hopefully means the tumors are shrinking, there is no progression, and we get the green light to move forward with the 3rd round of PRRT! <br />
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THANK YOU faithful prayer warriors!!!</div>
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#butGod #fightlikeaross #hopeon</div>
<br />The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com1tag:blogger.com,1999:blog-3515728319081642483.post-60523333329686925642017-12-09T21:12:00.000-06:002017-12-09T21:12:42.442-06:00All kinds of updatesLike a riveting movie, the suspense of the Ross Family shenanigans mounts...<div>
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There are way too many details to capture in one blog post, so here are the highlights (for anyone not on Facebook, I apologize, these updates are long overdue and I'm so sorry)...</div>
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-Andrew continued his "wingman" duties for Triumph Over Kids Cancer Foundation at the Big Easy Fundraiser. We continue to be so grateful for those who stand in the gap for children with pediatric cancer. Thomas Morstead, the punter for the Saints, and Andy Sacks, an Academy Award winning director, hosted the hugely successful (and super fun) fundraiser. Check out Andrew's speech.... SO PROUD OF THIS GUY!!!</div>
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-Andrew turned 9 years old on Nov. 26th. We celebrated his birthday in true Harry Potter fashion with the cousins a few days before his actual birthday, since he was going to spend his actual birthday in Dallas at one of Abby's soccer tournaments. While that might sound sort of unfair or a buzzkill in many ways, if you knew the amazing girls and families that make up Abby's soccer team, you would know that he couldn't have been surrounded by more love. Abby's team surprised Andrew with a birthday cake and gifts. We have only been a part of this soccer team for one season, which is hard to believe it's been such a short time because they truly feel like family (added bonus.... the girls on the team are crazy talented ;-).</div>
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Birthday fun with the cousins!</div>
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Celebrating with Abby's soccer team!</div>
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Much bonding over being brothers of sisters playing a lot of soccer. Love the friendship these two have forged!</div>
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Jaz, one of Abby's sweet teammates!</div>
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Birthday morning in the hotel room!</div>
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-The day after Andrew's birthday he went in for a day of scans in preparation for his second round of PRRT. PRAISE THE LORD the scans showed the tumors are stable. Remember our huge prayer was that there wouldn't be any progression (because then we wouldn't have been able to continue treatment which would have been devastating), so stability is certainly praiseworthy news. The next day Andrew received his second round of PRRT and went to stay at my in-laws in The Woodlands since he can't be around Grace and Abby for 6 days after treatment and he is suppose to stay a meter away from us during that time too. It is never easy being apart, however, by God's grace this time was easier than the last time, for a couple of reasons. My mother in love came to stay with the girls and I while David and Andrew were gone, which allowed me to pour into Abby in ways she really needs (especially during that time) without having to keep up with meals, laundry, dishes, and taking care of Grace, which was much of our focus during the first round of PRRT. Also, we did a good job of staying super busy, which is also a great distraction. The time went faster and more smoothly for Andrew and David too since they knew what to expect, the generous gifts Andrew got for his birthday kept him busy and the highlight and new tradition of PRRT time, the boys went camping. Andrew had a blast getting to do a lot of things that would make his mommy way too nervous, so it's best done during daddy day care time.... things like playing with matches, an axe throwing competition (trying to make it stick in a tree), etc. </div>
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Andrew becoming a super hero... becoming radioactive!</div>
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He totally rocked his 5 hour infusion! </div>
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Why not camp while radioactive?!?!... brilliant idea that David had!</div>
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-This time around, the aftermath of PRRT has been different, in that the first week after treatment he had some very intense pain and throwing up (one morning he said it was the worse pain he's ever had); however, the past 5ish days he hasn't had any breakthrough pain... at all (that's not normal), so we are overflowing with gratitude about that and praying the relief in pain is not temporary and lasts more than a couple days like last round. Andrew had to get the terrible awful shot in his butt on Monday (he will have to do this very painful shot every month for the rest of his life... unless God says otherwise) and he was so brave. I also got to watch him be the Andrew I know and adore so much as he encouraged other kids at the infusion center as he waited (forever) to get his shot. This little boy in particular Andrew showed him what a great friend looks like as he played games with him, reminded him that he is brave and courageous and has a God that loves him.</div>
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-Grace took the COGAT test this past week, which still blows our minds that she was able to take a test 3 hours a day for 4 days straight (she will have to take this test in Kinder, so I guess it was good practice). Apparently, I agreed to it in her ARD meeting... you know the meeting that took place while Andrew was have an endoscopy/biopsy. They took Andrew back, I rushed to Grace's meeting and rushed back to get there before he woke up. Clearly, my mind was elsewhere during that quick ARD meeting, but I'm grateful that Grace rocked the test and was so proud of herself for being such a big girl and "taking a test just like Bubba and Sissy," verses it causing her to hate all things school. Some other funny Graceisms... she LOVES Santa, but wants to get no where near him. She wakes up before us most every morning and meets us in the hallway fully dressed, shoes and everything. She has got skills when it comes to putting an outfit together that matches (and she doesn't just take the shirt and bottoms at the top of the pile), in fact she does better than David in that department. Her favorite sayings are "oh my word." If she dresses up as someone or something, she loves to take off the costume and say "it's me," as if she really had us fooled. She says "thank you majesty" anytime she thanks us for something. She recently said in her silly voice "don't be a chuckle nuts" (cue the entire family fall out laughing). Moral of the story is, there is never a dull moment with this kid around and seeing life through her eyes heightens any experience by a million.</div>
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See Grace and I in the right hand corner of the pic? That is as close to Santa as she would get!</div>
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While David and Andrew were away, Grace had a cardiology appointment... thumbs up for rocking her echo!</div>
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And a thumbs up for a great report! Thank you Jesus!</div>
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We found a petting zoo at a Christmas event in Rosenberg. Grace made Abby touch all the animals she was scared of touching, but she agreed that she would touch this goat with Abby so I could take a picture. </div>
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It's officially Christmas time! Grace is giving the dancing snowmen a good daily workout!</div>
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"It's me, Gracie!" In case you thought that was an elf next to Santa!</div>
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She should really be her own emoji!</div>
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-Abby continues to be my "goose". She's my wing girl. I love hanging out with her because she is so sweet, funny, helpful, wise, and thoughtful. She continues to LOVE soccer (her team finished the season undefeated), just started her basketball season, has some pretty amazing friends, loves school, and is all around a great kid with a huge heart.</div>
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Abby in her happy place... lovin' on kiddos with an extra chromosome!</div>
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Abby went to school late the morning Andrew had PRRT because she wanted to spend time with him before they had to be separated for 6 days. He woke up in awful tummy pain, so she just snuggled him through it.</div>
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-How about this for the finale... you all know that our normal over the past 6 years is best explained by the term varying degrees of crazy, well Tuesday's middle of the night shenanigans was one for the record book. It is a contender for the top two or three scariest events of my life, in fact it may even be #1. At about 1 am, only about an hour after we went to bed, David jumped out of bed and laid on the floor clutching his legs with a tone of voice that I have never heard from him before. I could tell it was a pain like nothing else he has experienced (and you know he has had all sorts of injuries from tearing his ACL, compartment syndrome, broken hand, etc from playing soccer, to other injuries that come from flipping off of walls, jumping onto mailboxes, etc). I tried to help him massage the pain, and it subsided, until a couple seconds later when he said "oh no! I can feel it coming back"... he was in agony again and that same sequence happened again. He got up and limped as quickly as possibly to the bathroom because he said he felt like he was going to throw up from the pain. He was only in the bathroom for a few seconds then I heard noises (banging on the wall) that I knew was him falling. I ran into the bathroom to find him on the floor looking pale, sweaty, very disoriented, and sort of shaky. I helped him up and said "lets get dressed I'm going to take you to the hospital just to be safe"... at first he said no he was fine, but I convinced him to get dressed just in case we changed our minds. He agreed and went into the closet where he once again passed out. He didn't lose consciousness, but was again very disoriented and couldn't get up despite multiple attempts. I helped him up again and called 911 because I really felt like maybe he was having a stroke or something because his speech seemed a little slurred too. Plus, I couldn't leave the kids at home to take him to the hospital immediately. My parents arrived at the same time the ambulance did, so we went to the ER. After lab work, a CT, and ultrasound, they couldn't find the cause except to say that his GFR (the way his kidneys were working) was a bit compromised, so they said he could be dehydrated which perpetuated a severe muscle spasm in his hip/leg and the passing out could have been caused by the pain. All I could think of during that awful experience is that I need my teammate to be ok. Our life is so hard that I can't imagine not having my teammate to lead us through the wilderness. Of course, God is my ultimate provider, sustainer, and rock, but I'm certain that He very purposefully gave me David as an earthly world class teammate knowing how desperately we would need a solid team that has our eyes fixed on Him. We are so grateful that David feels back to his normal self, so much so that he played soccer tonight. We are praying we never ever have to experience anything like that again. If nothing else, it made me love and appreciate my man even more (if that's even possible). </div>
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***GIANT HUG FROM GOD ALERT- After a practically pain free week and David starting to feel like himself again after the horribly scary episode a couple nights before, this is what we woke up to on Friday morning...</div>
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Will you please pray that we continue to see a huge improvement in Andrew's pain, that it would be a direct correlation to ALL of the tumors shrinking, and that there would be no new tumors whatsoever? Please also pray that David (and the rest of our family) remain healthy. THANK YOU ANDREW'S ARMY!!! Thank you for being our people! We love and appreciate you so much!</div>
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The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com1tag:blogger.com,1999:blog-3515728319081642483.post-6014157583776290382017-11-12T21:36:00.001-06:002017-11-12T21:36:54.495-06:00Radical hopeI feel sort of behind on posting, so I'm not sure where to pick up other than saying that as it relates to Andrew's pain it has gotten a little better since we changed some of his pain meds. Unfortunately, his body has become desensitized to opioids a good bit, since he has been on them for so long and at such high doses/frequency. There were a couple of mornings when Andrew didn't wake up with tummy pain and that was amazing, but then we would see the pain return later in the day. We are still praying that PRRT will radically disarm his tumors and we will see some pain relief and be able to back off on some of his pain meds. This is a huge prayer of mine because then we will know that something has finally knocked the cancer back some, but also, I hate that I can hardly remember my boy (how different was his personality, his energy level, etc) before pain meds... before we heard the words that our boy has cancer. Will you please pray that his scan on Nov. 27th does not show any disease progression (because if there was there would not be any reason to continue with PRRT), but instead his tumors are stable (unchanged) or a home run would be that we already see some regression (highly unlikely this early on, but we serve a big God, so let's ask Him)? Lord willing, Andrew will receive his second round of PRRT on Nov. 28th. We scheduled it on that date, so he wouldn't be radioactive over Thanksgiving and his birthday (that would really stink to not be able to be around your family on those two holidays).<br />
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This weekend, Andrew and I had a mommy/son date. We went to ifly (which was super cool), the LEGO store, Cheesecake Factory, watched a movie in our hotel room, and just laughed a lot! We had such an amazing time together and I couldn't help but praise the Lord all night that Andrew didn't have any tummy the entire day and night. It was almost unbelievable because he ALWAYS has tummy pain at night. Naturally, my mind went to trying to theorize why the lack of pain, hoping it could be a mommy's touch (his cancer impacts the endocrine system, which is tied to our emotions, so maybe he was having so much fun that his pain didn't have a chance)... then came this morning... He woke up in agonizing pain that turned our morning plans of playing LEGOs and going to breakfast (his favorite type of food is breakfast food) to laying in bed snuggling, crying, praying, reading Scripture, throwing up, and sleeping. While that was far from the morning I had envisioned, I can't help but wonder if that too was a part of God's blessings on our date. You see, that may be the worst pain I've ever seen Andrew in, but I was able to love him through it in a way I wish I was able on any other given day; however, the needs of our two other children, work, etc, make it difficult to stop everything and just focus on him. As I cried with him, rubbed his back, and encouraged him while he threw up, I couldn't help but ask God if this was His idea of bonding time with my boy. As he sat hunched over the toilet exhausted from throwing up (and looking like he had just run a marathon), Andrew said "thank you for being the best mommy ever. I'm so proud to call you my mommy and grateful that I get to be your son. Nobody could ever take care of me like you do." Once I got him settled in bed in an attempt to sleep off the pain, he reiterated the same sentiment and concluded with "I'm sorry you have to deal with my tummy pain. I know when I'm in bad pain I can sort of freak out and maybe be unkind, so thank you for helping me through it so much." I hate that he apologizes to us for his tummy pain because God knows, it's no fault of his own. Long story short, the time I spent with my boy this weekend was priceless, both the mountain and the valley!<br />
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As we continue to live in the fiery furnace, here is what the Lord has recently convicted me of. I didn't know this, but I realized I have struggled with the fact that I don't have a sliver of statistical hope to hang on to. You know, even if we were told that we only have 20% chance Andrew would be cured, at least I could be praying that God will allow us to be a part of that 20%. Instead, the (earthly) statistics for Andrew's case looks more like this... it is impossible that he will have NED (no evidence of disease) and even if that was achieved, 100% of the time it comes back. Therefore, without God's radical intervention and healing there is no way Andrew will be free from cancer or be granted a long life with cancer that is well controlled. Once God convicted me of my desire for some earthly statistical hope to hang on to, I realized He is calling me to a radical hope... the kind of hope rooted in God and only God. There is nothing else to hang on to except God and the truth is there isn't anything more powerful and able than God. Will you please continue to pray for Andrew like he is your own boy. Pray that God would radically heal him and that his faith would be strengthened (as well as the rest of our family)? THANK YOU!!!! #Hopeon #butGod #Heisable<br />
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Thanks to Sunshine Kids, we got free tickets to Disney on Ice. Going with Grace makes everything magical. She thinks everything is awesome!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilgB_JTsCbo2gUyaiVq0dTsBOakqaVlRyV31u_RzhEe9DTIeixhAWkF5bg8DFOYj44ELNEJdy8-9haefOFJ8GKgBAywEX9nlVUAPHm2W9sBdLa8OH76X_-ce-a-YK5HWGZA8ciPeri6Aw8/s1600/IMG_7297.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilgB_JTsCbo2gUyaiVq0dTsBOakqaVlRyV31u_RzhEe9DTIeixhAWkF5bg8DFOYj44ELNEJdy8-9haefOFJ8GKgBAywEX9nlVUAPHm2W9sBdLa8OH76X_-ce-a-YK5HWGZA8ciPeri6Aw8/s320/IMG_7297.JPG" width="240" /></a></div>
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While Andrew and I were on our date and Abby was at a birthday party, this is what Grace and David were up to!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3pvOtAuEODFdRe8-KvKum2_XsgFhMEDaCRzjr5Afi9tgnFOFVpPxEAGTaEu3jFPtkozGoeSBNJs-hcswa6TGUUXolHXTodObufvA_TL5vGcAx4_PASfuwPg05O9EpoDQiE9fwekjcJMpO/s1600/IMG_0973.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3pvOtAuEODFdRe8-KvKum2_XsgFhMEDaCRzjr5Afi9tgnFOFVpPxEAGTaEu3jFPtkozGoeSBNJs-hcswa6TGUUXolHXTodObufvA_TL5vGcAx4_PASfuwPg05O9EpoDQiE9fwekjcJMpO/s320/IMG_0973.JPG" width="240" /></a></div>
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I have to end on a super happy note... last weekend these precious elves surprised the kids by putting up a Disney themed Christmas tree and leaving tons of gifts under the tree. We are going to Disney World in January (Abby has a soccer tournament there that we are going to make a family vacation), so this helps us get super excited for Christmas and our upcoming trip! You can't help but smile when you see this tree and it even has a remote control for the lights!</div>
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<br />The Ross Familyhttp://www.blogger.com/profile/00958134995606293991noreply@blogger.com1